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-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   rsd:dont know what to do (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/84401-rsd-dont.html)

SandyRI 04-17-2009 07:49 AM

By "ma." do you mean Mass?

If so, there are good docs at Caritas St. Eliz., Mass General, and Beth Israel in Boston. I have read that there are also some good docs at the Bayside Medical Center in Springfield.

Generally, the pain centers at the hospitals are where you would call to set up your initial appts.

Good luck. Don't mess around with a small town doc if you can help it...

Sandy

tjbird 04-17-2009 08:50 AM

Don't Know What to Do
 
[FONT="Arial"]
Bob,
This is a great place for imput, as I am relatively new to this site. I have an SCS that I use for the knees down to the feet. I just had it put in Nov. 2008. I do believe that I have RSD in my spine now but I don't think my pd wants to admit it however, when they put it in I already had degeneration of the spine(athritis in my spine) so my spine aches anyway. The SCS helps the RSD in my legs but since I have other medical conditions, I can't use it all the time. There are some things I don't do without it. I am also on long term opiods as well as many other meds, 13 all together. I was diagnosed with RSD on June 19, 2007 a year after I broke my leg in three places and tore my ACL and the miniscus to the point where my ortho will not even consider fixing with a replacement, I also had bone infection.:eek:
There is a lot of sites that deal with RSD and talk about SCS and despite what the sites say this too is an individual reaction issue, and is a large desision and it is important to learn about the RSD as well as the SCS :icon_question: If you don't understand something at a RSD site, come back here and ask your question:) this group has a lot of experiences and you can get imput:yahoo: We are all here seeking the same thing, how we can best deal with this disease that is different with each person that unfortunately endures it :welcome_sign:
tjbird

tjbird 04-17-2009 08:58 AM

My primary did not know much when I first went to him. (small town) however I have been lucky because he has learned more about it since I have been diagnosed with the RSD. My pain drs are in a bigger nearby city that I travel once a month to check in and get my meds. However when I went to seek some mental incuragement, all they knew about RSD was that they heard it was a "bear" needless to say you can find me all over the web as it is my therapy. But as far as a Pain Dr check out a larger medical center, I travel an hour each way, and that is OK with me.
tjbird

baseballfan 04-19-2009 05:53 PM

Rsd
 
Hi Bob,

Did you have a sympathetic nerve block to help the RSD? have you tried pt, acupuncture? good luck:)

Kate

Dew58 04-20-2009 02:10 PM

Welcome to the group.:hug: We uplift each other, and you will always have a place to come to whenever you need a helping hand.


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