I'm new here, that's fair to say, OK?

But, to RSD/TOS, No way. 26 years.(83) Se7en yrs, undiagnosed, then raising my young children by myself, and in (98) another accident causing discs, neck and low back, and TBI, (with related crapola). How much worse, can one be hurt, with out the Monster killing s/him? (That's the payoff for this sort of pain!)

I'm Pukin' Sick and Dam tired of people, doctors, spouses, family, friends, Ins.company workers, ANYONE who says or even THINKS that anyone with RSD, or any of it's sister pain syndromes, want a "Buzz", or are "Malingering"!

What I've got to say to anyone thinking that? "BUZZ T/F OFF"!

You want to wear this pain 24/7?
I dare any of you to come try it!

If there were a God Honest way for us to "trade bodies" for just a day, You would pray, EVERY DAY, for the rest of your life, that NONE of US would have to endure what we do, EVERY DAY!

I'm HERE TO SAY, THAT I'm SICK AND TIRED of BEING SICK AND TIRED, ESPECIALLY OF YOU HYPOCRITES SAYING THAT WE'RE MALINGERING, FOR THE "BUZZ". FIND ANOTHER CAUSE! How about greenhouse gas? Like that that you spew?

BUZZ THIS!

Only reason you've got something negative to say, is because YOU COULDN'T TAKE IT FOR A MOMENT!
(BAD WORD), You Angels!

I love you too, hey?
Wanna trade?

ANYTIME, ANYWHERE, ANYPLACE!
(Fridays's Gal, Cary Grant)....


Pete
asb

Don't forget the insomnia,depression,anxiety...along with the PAIN!
Don't forget the challenge it is to get dressed and feel comfy in clothes..heck, one's own skin!
Don't forget fear of crowds as to not get bumped "into" might cause PAIN!
Don't forget the isolation, Too Many Meds We HAVE TO TAKE which cause high blood pressure, gerd, and weight gain!
Don't forget that RSD patients are human barometers and FEEL PAIN when weather changes!
Don't forget the sweats/chills we endure which fluctuate 24/7!
Don't forget that to Hug a family member or friend is something an RSD Patient HAS TO BRACE THEM SELF FOR..as touch/embrace cause additional pain!
Don't forget that the RSD patient's days are filled with multiple doctor appts;PT;psychologist,etc.


Dew

Pete,

If I were a violent person, I would have snatched a few heads off over comments about meds. When I forget something or make a mistake I hate the comment she must be over medicated today. I have developed an evil glare and the occasional not so kind remark that get my point across. I wish I could go back to the days of my daily vitamins (I'm sure we all wish for that day).
Yesterday was a very very painful day (brought on by a sleepless night due to my pregnant daughter in law being in the hospital, she's ok and back home). I tried to keep moving and keep my mind off the pain it wasn't easy. My pain level was too high and my energy level too low.
What I really wanted to do was pull the covers over my head and not move. When I do that I feel guilty for wasting the day. If it's not pain we battle it's the emotional roller coasters. In my pain journal when I give a pain rating I give an emotional rating. I think most will agree when we loss control of our emotions our pain is a lot worse.
Something else that gets under my skin. When people around me will comment about pain they have. I want to scream at the top of my lungs welcome to my world!
What we deal with is so unfair and at times so cruel. We aren't alone in this. My mom, "God rest her soul", use to tell me if it doesn't kill you it will make you stronger. We are aloud to have a rotten day from time to time. Yesterday was my rotten day today I will pick myself up put on a smile and dare the affects of pain to try and rule another day.

Pete and Dew I wish you a day filled with what every makes you happy!!!!!!!!!!!!!
Take care of you,
Sherrie

I feel ya bro.

I catch myself thinking about what I can say to my doctors this time that will convey my true pain, and what it is doing to me.

The words "drug addict" should never be mentioned in the same breath as RSD. Would a faker beg to have his leg amputated?

Dont ya hate when they say things like...it is all in your head. That one really brings on the heart rate for me, and I start thinking about what part of their body I could hurt the most with my cane. Too bad the cane pain wouldnt last long enough for them to identify with RSD pain.

Lately the thing bugging me the most is my sisters boys always begging for pain meds. At first I was believing they had REAL pain, but you can only have so many tooth, back, knee or any other pains in a week. If I catch them snooping in my room again, their gonna wish they never knew me

It is people like those mentioned above that are making it so hard on us...people with zero pain, but an insatiable appetite for pain meds.

Allen, I was 12 when I injured my back. My mother wouldn't believe the pain I was in. Yep..told the Dr it was all in my head.

He said Yes it is. It's her brain that is registering her pain.

Shut my mother right up.

Do you keep your meds locked up? If not, you might want to. You never know what kind of friends your nephews have.

I sure do keep it locked up....I wish I could figure out how to keep them from desiring the pain medication. I guess if I figured that out I could be the next millionaire LOL

i feel the same way the thing i hate the worse!!
your too young to have all this wrong with
because one day i was sitting at home at 16yrs old thinking
humm i want a illness that is incurable and the most painfull ever that sounds great right WRONG!!!! or like allen said. its all in your head i went thro this with so many docs that i lost count.
or why do you need break thru meds. your pump does enough...

the one i get all the time too. .. you shouldnt be in pain you have enough meds in your pump to kill a horse!!!

i also get sick of having to PRETEND that i am fine !!!!! it takes more to pretend that to just be sick !!!


thanks for the venting pete !!! love it

carrie

Hey, to all of you Friends, I am a Master Plumber. It's all about "Venting". (Sorry, inside joke).

But hey, I caught my soon to be ex wife, (My 2nd) using my Zanaflex medication, to keep her asleep, all day and night. Soon, I realized (after I locked the scripts up) that she was having them REFILLED, and picking them up herself! (for me supposedly)! (She claimed depression, and didn't hafto work, but, would never finalize the claim, because I had her insured for life, and disability).
You can never be TOO CAREFUL with your meds! EVER!

I caught her giving my Methadone, to her 9 y.o. daughter for "Menstrual cramps"! (ever think of an aspirin?)
And then, (This is gonna get gross, look away, taking my Methadone, as it's crushable, like an aspirin, and wetting it, rubbing it on).
Her Hemorrhoids!

THAT, I had to catch, and see for myself! Now, she's a petite, pretty woman. I can't say that I married a "Pig".
But, she sure as heck behaves like one!

Worst thing is, in court, in front of a "master", she accuses me of using "Methadone" and alcohol. Therefore, being abusive.

Did I ever mention the time she ran me down with my own car? She told her children and mine, that she'd KILL ME> with one hand tied behind her back, because I'm a *uss*! Thank GOD! That as my attorney taught me, when she starts, hands in pockets, and back away!.
She woke me up with this one. I needed my Camera, out of my car, for this particular trip.

I put down a trail of plastic milk crates, on a gravel road, to stop her "the car" ( I needed that camera kit, out of my car, then, she could go!! good riddance.) She drove up over the crate and over ME! I have scares on my shins, (THAT IS, MY FEET WERE THE ONLY THING STICKING OUT FROM UNDER THE FRONT OF MY CAR!) a Front wheel drive Pontiac Bonneville SSE, and,my face, was less than 12" from the front wheel, SMOKING,
(I couldn't breathe) her foot was to the floor, only my feet sticking out from under the front of the car! Thank You Lord, that the crate had lifted the front of the car, and there was a "gully wash" on the gravel road, that kept her and the car from getting traction....
Or, I'd have been CRUSHED!

I was wearing only a robe, underwear, socks and moccasins.

Enough?
No way!

The car was stuck "Up" on this crate, it couldn't move, either way.

SHE ran into the house, called the police and told them I was accosting her with a GUN! (I don't own a gun).
I got out from under the car, and inside in time to hear this. I called on another line.

An officer arrived (This is a Beautiful Sunday Morning on Mt Pocono, My Business, been in my family since the early 60's!), and who gets handcuffed?
ME!
Even though I'm bleeding onto my feet, from my legs, just as I said on the phone.
I had to lay down, in the wet mountain dew grass, face DOWN, and get "frisked" for the gun.

She didn't get written up as "Crazed", or attempted "Homicide by vehicle"! NOPE~!

Just let her go. She knew how to do this thing called the "Civil Dance" (ask your lawyer). She just says it's a divorce situation, and the cops let her go, free. Now, do you think they've done that with me?
No WAY! That's how I, Myself and my two children got put out of MY house THREE TIMES!
Men, get to Leave, no matter HOW ILL!
Just GO!
(I went to the Phila. Justive Center, twice, with my children, whom she was abusing as well, They laughed, and said, You a man, defend YoSelf!) Thanks! And, IF I DO??

(Then, of course, she come after me, and got, spousal support, from MY DISABILITY!).
She never had to put in HER disability claim! I could never buy my children a gift for Christmas, or birthdays again!
I'm a grandfather now, Yet, I don't Know my GrandDaughter! Because of this Woman! (whom is not much different than my first wife). I pick 'em.

(Don't worry, I been through that part of the "triangle". My old/departed sister....)

She didn't.
Two hours later, she called from one mile away a pay phone. (cell service didn't work up there at the time).
"Why did you do that"?
You're on drugs!
(I was sound asleep).

Huh?

Ok, then.

^^^^^^^^^^^^^^^^^^^

For anyone who is interested, I have a deadline with a divorce master on Monday. I'm not going to make it.
I told my attorney, (new, I just hired her), that I want a JUDGE, not no "Master"!
I want someone to "Hear" this case!

If you still care, I'll keep you up to date.

My wife is a drug seeking alcoholic, who "spins" it, on to me.
(Because I have the drugs/meds).

This stuff, and using type people, can make us so dam paranoid, that it's a real shame.

I will still live my life my way, even though most of it has been stolen away.
My Children's too.
I'm working, very hard, fingers to the bone, with rsd, tos, discs, and tbi, to get this crap resolved after more than a decade.

And, an attorney stole my 42 Acre property on top of Mt Pocono.
I have an action against him.
He tried to trick me, and he did, but, it was illegal.

I don't trust lawyers, as far as I can throw them.
They's good ones, and there's bad ones.
BE SURE, you get a good one!
(It's tough to tell, until they start working).

Sorry for the Ramble / Tamble.
I'm outta words now..

We'll talk again, huh?

Love to all,
Pete
ASB

PS
While this may not have a lot of bearing on medications and their abuse or "supposed" abuse, I do think that My "Real Life Story" is one that should be heard,
because,
Nobody EVER knows, when the finger of blame will be Unjustly Pointed, at them, or YOU.
As I have had.

While it may seem that this story stands alone, I beg to differ.
While making my way around through doctor's office's and other "Realms of Hope", I find that there are SO MANY, Similar stories,
Buried, Beneath the Din of of the "average noise of despair".

And, that won't help anyone, to take this story down.
This is the kind of story that calls for deeper understanding, as I call for a "Judge", not a mere "Master".

I pray, that none of you need to hear this story, however I know, that all too many of you DO!

Peace it Out!!

PAW

After that Rant, sorry, I didn't cover it all.

"Our Best Behavior".....

How on earth could we even think of "embarrassing" our most coveted of friends / family?
Of course Not! So, we've got to hold on "tight" to whatever there is, in our imaginations, and Pretend, that "I don't hurt".
Paste on a smile!
Oh, So Dam good to see ya! (Oh, you look so good)..... yea! OK.

Well, I'm not trying to be wise, Ya'll know that, (Never Me) but,
sometimes we've got to do things that we wouldn't do,
IF,
IF only,
We had "Props".

My brother, two years ago, (He is my elder by 8 years) fell off a ladder, and is paralyzed from his breasts,(C6) down.)
A Wheelchair! My Brother has No pain, but, it's a terrible inconvenience, I'm sure.
He is "stuck" with a wheel chair!
(He has been my hero since childhood)!

I use a "walking stick", when I can, (Notice, when I can), it's Great, it has a hand strap, so I can't "drop it".(Because I'd hate to bend over to pick it up), It's name brand is "Leki".
I also Don't Use it, when I can!

It's spring loaded, and has a round wooden top, that fits perfectly in the palm of my hand, and since I have TOS, the spring load, makes it PERFECT! It does Not jam my shoulder, like a normal "cane" would!
It's easily length adjustable.
(I have no idea why, some days I'm taller than others)?
Maybe it's a "guy" thing? Hah!
The "Scent" in the air..... (am I allowed to have fun here?)

Although my pleasant wife took my snow cup for it, I can take off the rubber tip, and it's got a titanium tip, for "Ice" traction. Lots of that here in the NE.
It's got a belt clip, and a compass built in.
It's really designed for "hiking and trail skiing".

I'll tell ya'll.
It's priceless for me!

And, it gives that little bit of
the "Prop", which I HATE to SAY!

Why? Why do I need to Advertise that I'm disabled?
From the dam license plate,
to the thing hanging on the mirror, someone else's car..
to my ID,
and On, and On.

How about this?
The "Handicap" Wheelchair Logo?
Tattooed to my ForeHead / cheek / hand / etc.....



Love to all,
Pete
ASB