Hi,
 

My PCP does all my care. He is also a Sports Medicine Dr. and does councelling. So all my bases are covered with him.

He sent me out to other Drs. such as PM's and they weren't any good. So he took over for me. We've been on this for over 10 years and I'm finally in remission.

Now we are dealing with my stomach issues and I am going to go back into PT for my back, neck, and TOS. I keep doing too much and can't keep it quietened down.

I think it depends on the Dr. If you find one that acknowledges what you have and know what to do for it then you have it made.

Ada

My Neurologist-- an american dr, when I lived overseas, dealt with all my neuro issues-- including CRPS and was my diagnosing dr (in terms of the CRPS ). It was so nice having a comprehensive neuro....Stateside, the neuro dept I am seeing immediately sent me out to "Pain Management" for the CRPS . My PM, is a nice guy, but, doesnt take time to explain anything to me (hence the reason I am seeking a second opinion, but who knows how long that will take).

I have only met my pcp once.

(Please give me back my overseas neuro and pcp ! )

My Internal medicine doctor diagnosed me. He does help me with prescriptions to neurontin, celexa and baclofen and has also given me breakthrough pain meds. But, I also see a pain management doctor who is also a spine specialist who deals with my SCS and also my new back issue.

I've never seen a neurologist. My doctor didn't feel that it was necessary to go through the testing as it was obvious it was RSD.

My primary doc diagnosed me & he resumed control of my pain meds but I have a pain managment doc who takes care of my SCS & anything else I need (like he is sending me to therapy again soon), psyciatrist, & a LPC (licensed counselor in our state). I dohave a neuroligist but I havent needed to see him in over a year because my PM does alot of his own stuff.

I am WC from RI.

I have a wonderful PCP who doesn't take care of WC. He only writes my pain meds.

I had a dork of a PM doc who screwed me up and then quit my case. He wrote all my other meds (Topamax, Lidoderm, Voltaren, Soma, Catapres and Cymbalta)

I have a great team of docs in Boston who do my nerve blocks. But they don't do WC stuff, and were really upfront about that when I first went there. Tomorrow will likely be the last time I see them (I get my 6th block)

I was supposed to have clearance to go to Mass General by WC. But they will only pay the RI fee schedule. And Mass General wants more money than that. And they won't negotiate. So no go.

At the moment I am in the position of having NO doctor for WC. Even though I have private insurance, it's still hard to find anyone willing to take me. When my scripts expire I'm fairly certain that my PCP will help me with renewals. But it shouldn't be so hard for WC VICTIMS to get doctors. Most of my problem lies the insurance company - when hospitals hear the name "The Hartford" they know that it they are the very worst to deal with and they just don't want the hassle. How is it that they get away with this?

My attorney has a list of doctors in RI that the Hartford works with, and is going to send it to me. Joy, joy. Like any doctor on their list would be ethical.

Sorry for the rant...my answer is at the moment I really don't have a doctor for my RSD.