Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 04-18-2009, 11:39 AM #1
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Default what type of doc follows you for crps/rsd?

I am followed by my regular doc (internist) who made the diagnosis
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Old 04-18-2009, 12:46 PM #2
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It depends on the person. My family doctor is important to me. He did an internship with Dr. Schwartzman in Philly many years ago. His knowledge, personality and support have been amazing. He goes above what I had expected. Then I have a Pain Managment doc., pain management physcologist and a chiropractor. My chiro is a life saver. Since we have a nerve condition keeping the spine aligned is important. I have been to see Dr. Schwartzman in Philly he said the chiro is the best thing I do for myself. I have full body RSD with organs involved. So I have a cardiologist on my medical team.
It takes time to put together a medical team. So many doctors don't unerstand RSD and are intimidated by what they don't know. Some doctor just want to write prescriptions and some don't want to take the time that' needed. It took 9 years and 17 different doctors to get to where I am. One doctor accused me of being a drug seeker I picked up my purse and walked out of his office.
Sorry to ramble I hope I helped.
Take care,
Sherrie
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"Thanks for this!" says:
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Old 04-18-2009, 01:12 PM #3
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Visiting a pain specialist next might be a good idea. They know a lot about RSD.
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Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Old 04-18-2009, 02:01 PM #4
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Pain management doc chosen by WC ins. co. Psychologist, Physical Therapist, and my family doc.
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WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
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Old 04-18-2009, 03:37 PM #5
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My Pain Management Dr is the doctorthat usually follows my case however my PTs keep him informed on how I am doing on a weekly basis also.

I also see a Neurologist for my Dystonia and Myoclonic spasms, my GP, Psychologist and Occupational Therapist whenever I need to.
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Old 04-18-2009, 06:03 PM #6
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Just have a pm doc. I'm happy he's the only one I need cause I can't afford another doc! LOL

Hugs,

Karen
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Old 04-19-2009, 12:52 AM #7
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i see a pain management doc that is also a neurosurgeon .. and i also see a reg. neurosurgeon for my pump.. you key is finding someone that knows a great deal about RSD and the correct treatments..

wlecome to our group. im sorry that we had to meet like this ever. im happy to see that people are gettin DX sooner tho it took a couple years to DX my RSD as i was a teenager when this happend 11 yrs ago. and kids having it then was rare to say the least.. well i gues not rare but docs knowing how to treat a kid with rsd is what was rare. it took alot of differnt docs to find the one that was knowledge able. but by this time my rsd spread to all of my limbs face and neck and back. now its basicly head to toe and internal.


i really hope that you are able to find the right doctor to help you..

welcome again

carrie
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rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,,




please check out our website to help bring awareness to RSD!


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Old 04-19-2009, 01:01 AM #8
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Right now my family doctor is handling most of my prescriptions but works with my pain management/vascular doctor. My family doc was the first to acknowledge my RSD after my PT suggested I might have it; this is the second pain specialist I've gone to and he believes in trying to correct underlying conditions that may be causing or impacting the RSD. While no where near pain free, every year with him the pain lessens a bit and he's been able to make it so I've been able to keep working. God bless Dr. Bruce and Dr. Schwartz. ONE MOMENT CAN CHANGE EVERYTHING!
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Old 04-19-2009, 05:36 PM #9
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Default rsd)crps)

Quote:
Originally Posted by fewdalord View Post
I am followed by my regular doc (internist) who made the diagnosis
Hi fewdalord,

I am followed by my chronic pain doctor who diagnosised my RSD in my left foot.

Kate
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Old 04-20-2009, 01:26 PM #10
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Right now a pain management,neurologist,internist but have seen many other specialties through this and my other conditions. Constantly it seems at a new doctor.I forgot I also see a psychiatrist though so far only 2 times. I have before this but my coping lately has been off so decided to go back. So far I am not thrilled but am going to keep trying. I do see when my pain and physical health is better my mood is more rational and happy and when it is not after this long I'm mentally a wreck. Oy!

Last edited by daniella; 04-21-2009 at 06:38 AM.
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