I know every one of us here is different. Still, I wanted to ask you the following, for those of us taking Neurontin, how much Neurontin are you taking? What's your RSD like?

I've been taking Neurontin (the generic Gabapentin rather) since September 2004, with great results on the pain. First they started the Neurontin at a low dosage, up 'till about 2700 mg a day (3x 300 mg). It's not the highest dosage, but almost. I needed some margin in case the pain got worse at some point. It didn't completely rid me of the pain, so I was prescribed Buprenorphine pain patches and Buprenorphine sublingual pills for breakthrough pain. This hasn't gotten rid of all the pain, but it is at a level where I can live with it (the balance between extremely tired and hurting is a hard one, though). I do get breakthrough pain several times a day, and at night. But I know, have learnt rather that nerve pain is hard to treat.

It's been almost 5 years for me, taking these meds. I am also on a muscle relaxant called tetrazepam for the muscle cramps. I usually take this before bed because it makes me extremely sleepy.

My RSD was diagnosed almost 3 years into it. I have it in both legs fully (fully progressed RSD) and last year it spread to my arms/hands.

If on Neurontin, how much are you taking? And if so, what other medication are you taking besides the Neurontin.

I have tried several times, wanted to cut back on so many meds (against doctor's advise) but I have had to admit several times that the pain is intolerable without the medication.