Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 04-21-2009, 09:40 AM #1
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CRPSbe CRPSbe is offline
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Originally Posted by Dew58 View Post
I knew this culprit could spread;however, I am taken aback by the intensity of the spread to my left knee. It is a sharp, deep, achy pain. It feels like someone is pounding the left knee with a hammer! I had been experiencing the burn in both knees,hands and base of spine. This is a totally different intense pain

You say that it is a totally different kind of pain, so I'd trust my gut feeling, and have the doctors rule out anything else besides the RSD. There's more to a knee than you think, it's a very complicated joint, and there could be all sorts of things wrong with it.

My cartilage pain is a deep achy feeling, sometimes sharp, that lessens when I take it really easy. I can't do stairs, for instance (I lack strength for a full flight of stairs) or the knees will start acting up to such a degree that I could basically scream in pain, it enhances my RSD too (it will cause a flare-up in the knees like you wouldn't believe). It will then take more than 2 weeks for the knee pain to lessen to a tolerable level (and no my regular meds don't cut it at all). It's mostly my left (unoperated knee) that gives me the most problems and that has the most intense flare-up. I have to be careful with the knees, because if it comes to the day where I will need to have the knees replaced, that's an operation I won't be able to undergo due to RSD.
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All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Dew58 (04-21-2009)
Old 10-30-2010, 07:06 AM #2
DebraKosbar DebraKosbar is offline
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Quote:
Originally Posted by CRPSbe View Post
You say that it is a totally different kind of pain, so I'd trust my gut feeling, and have the doctors rule out anything else besides the RSD. There's more to a knee than you think, it's a very complicated joint, and there could be all sorts of things wrong with it.

My cartilage pain is a deep achy feeling, sometimes sharp, that lessens when I take it really easy. I can't do stairs, for instance (I lack strength for a full flight of stairs) or the knees will start acting up to such a degree that I could basically scream in pain, it enhances my RSD too (it will cause a flare-up in the knees like you wouldn't believe). It will then take more than 2 weeks for the knee pain to lessen to a tolerable level (and no my regular meds don't cut it at all). It's mostly my left (unoperated knee) that gives me the most problems and that has the most intense flare-up. I have to be careful with the knees, because if it comes to the day where I will need to have the knees replaced, that's an operation I won't be able to undergo due to RSD.
Hello yes I also have r.s.d in my right knee after total knee replacement and that brought on my rsd for a year of painfull crying pt I really thought I was going crazy. They stretched my knee untill I thought It was going to come off my body...... I have had many sugeries in both knees the pain is unbearable at days, I still work on my feet 8hrs aday. The weekends our bad because Im not moving as much pain need a break off my feet..Now I have a because of rsd in right knee... Can it get worse...... Want to donate my body to the University of Michigan find out all the can I this painfull disrupting thing called rsd!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! If you need someone to talk to I'm here for you I really feel your PAIN............
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