ITA!

How absolutely barbaric. I hope that the flare-up he has from this won't make it spread. No knowledgeable RSD doc will push you to and through a flare-up or pain.

I think one of the best questions of any doctor, when you suspect rsd, is
"How many times have you diagnosed rsd?"


pete
asb

Could I possibly get the information to the Cleveland Clinic?? We live in Illinois, so Ohio isn't too far of a drive...

Alot closer than PA. =)


Thanks Again!!!



Courtney

Does anyone know of any specialist in this area/region?? It'd be nice to stay closer to home. Car rides bother him...

Also, thanks for everyones feedback. It means a lot to us..

He made Corey run to diagnose Compartment Syndrome.. he wanted to do a less invasive procedure to test for it. He thought that poking around with a needle would flare up the RSD...
Don't look at me, I didn't agree with it.

Anyways-
Thanks.

Courtney

Hi. I drove from MI to OH. I saw Dr Stanton Hicks and Dr Mckale if you google or email me I will tell you more. Dr Covington at the day program as well and he deals with rsd. I did not end up doing the treatment with them but my friend sees Dr Stanton Hicks and he helps her a lot. I do know Rush Hospital deals with RSD but like I said I am not sure if it is childrens only as the person I know that went there for there day program was 17. If you call the hospital and ask for pain management and ask who and if they have an anestesolgist who deals a lot with rsd that is what I would do. I am not sure if you were talking about Philli and Dr S but he is booking into 2010 of Oct that may have changed though. Stay strong.

Wow, Dr,s can do more damage to our bodies & minds. I just wish they would say "Hey, I don't have a clue, but here is the name of a dr that deals w nothing but your problems". Like that's ever going to happen.

I would suggest that first and for most you Tell Corey to become his own patient advocate. You guys need to research and find Dr's that know RSD inside & out. This disease is a MONSTER and you need to be aggressive.

Talk with him, keep communication open, but do your research. God bless
& gentle hugs

Renee'

I wish I could go back to the day before I had surgery and stopped it. I had a hip replacement after being diagnosed with RSD and it put a gas pedal on the RSD- It has spread from just my foot to full body with muscle wasting ....It is so horrible. I wish I could go back to the days where it was just in my foot. Do a lot of research and proceed with caution!!!

Deb