Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 04-29-2009, 02:56 PM #21
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daniella,

i had wonderful results with the lidocaine iv's.....for 5 years i was functional, in little pain, and had few sympathetic symptoms.

tho my pain doc did have some patients who had the iv's once a month, i did better with a different approach....i would have 3 treatments spread out over 8 or 9 days, and then none for 3 months......the first one never gave me more than 10 or 12 hours of pain relief, the second would last for a day or 2 and third was good for about 8 or 9 weeks.

as of 3 years ago, my insurance company will no longer pay for ANY sort of lidocaine treatment and i have had a serious increase in all symptoms since then....i wish with all my heart that i could have the treatments done again, but we can't get approval for it.

if your insurance will cover it, then u might want to give it a try.....it doesn't work for everyone, but it seems to work very well for the people it does help.

good luck with the treatments.
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Old 04-30-2009, 08:27 AM #22
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Liz,

I'm so sorry this happened to you. I don't get it. Why won't they want to keep paying for something that actually works for you? Is it because they know that you'd need it for a long period of time? Is it just the financial side they're worried about? That's terrible.

What treatment are you on now?
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Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Old 04-30-2009, 09:31 AM #23
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I am so sorry Liz that your insurance stopped paying that is horrible. I have heard others with a similar problem. They find something that works and then the insurance makes them stop or switch. I am scheduled for Tues. I am fearful because my body with all the other problems besides RSD I have though the doctors know that I do they are not sure why. I will keep everyone updated. I hope you can fight the insurance company or find something that works for you again. Many thoughts and thanks
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