ok i have had time to cool off.

do i think that she has pain !yes do i think that she has RSD not at all...
its pretty bad when you are acting on live TV 2 nights out of the week like your drunker than a skunk.. i work and i dont act like this.. yes i take meds and have for years i have fentanyl in my pump and have a high dose and take other meds too.. but ask anyone thats has talked to me im not acting drunk or stoned..

she makes us all look bad period.. i dont care that she isnt the poster child for rsd .. thats not what erks me.. what erks me is that she has done nothing to help or to support RSD awarness or chronic pain awarness for that fact.. dont be the poster child just try to bring some awareness for god sakes.


thanks to everyone that has posted their feelings good or bad..

carrie

Hi. It's my understanding based on "people who know people" in LA that she in fact has RSD. That said, because her doctor is a prominent rheumatologist, I'm guessing she keeps in in check with an anti-TNF[alpha] drug like Remicade (Infliximab), which has a black box warning that's way too scary for me. Check it out at http://www.nlm.nih.gov/medlineplus/d...s/a604023.html (For a while, I saw a rheumatologist who suggested that I consider Remicade myself.)

And the other thing about Remicade is that it's a strickly off label use of a very expensive drug, so there's no possibilty of insurance coverage. Still, it ties in with the CRPS/autoimmunity abstract I posted a few minutes ago at the start of another thread.

Mike

micheal

yes i know how scarey this drug is due to the fact that my uncle was taking this for his RA and he also had lung cancer and he went back for this 10yr check up and they found more cancer well long story short
he had the surgery and died because the remiciade basiclly made it so that his blood wouldnt clot at all and he bleed out 10 times over .. the lived in a coma for a week then died... so i understand the risk of this med. and that is why it is black labled.. this happend 5 yrs ago..

so i will not black lable use anything due to the fact that you have no idea what will happen to you becuase of the off lable use..

thanks for the insight michael

I found this article on Paula today, I'm confused, however. If she has RSD is she now in remission or does she have another treatment to control her pain? To me, the article gives the impression somewhat that it is the meds that are the problem not RSD. If she "spent at least part of the last decade relying on painkillers and Chinese medicine to quietly combat her injury-induced chronic debilitating pain" then what is she relying on now?

http://www.nypost.com/seven/05052009...ula_167637.htm

I stopped reading about Paula Abdul alltogether. Please!

I'd much rather read about Cynthia Toussaint, at least she is a perfect role model in the fight for RSD awareness.

It is a Paula thread, after all.

That's my opinion on her. That's all. What's so confusing about that?

Is there a ignore feature in preferences?

What???

This is what you get for expressing an opinion and for not wanting anything to do with Paula Abdul as an RSD patient. I think she totally misrepresents the condition and is a bad role model. That's all. I much prefer Cynthia Toussaint with everything she's been through and all she has done and still does for RSD patients.

That's all I said.

What is going on???

Many of those articles have a spin on them, so the whole story doesn't come out.
Plus she had many other injuries that could have been causing her pain besides the RSD if indeed that was what she had/has..



**She's a celebrity and people will talk about her.
It isn't worth getting upset with fellow members over. **