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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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04-24-2009, 12:21 AM | #1 | |||
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did anyone see her on nightline thursday night!!!!????
http://abcnews.go.com/Video/playerIndex?id=7409173 what is your opionin ... i am to upset to post about it right now carrie
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hope this finds all in less pain . rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,, please check out our website to help bring awareness to RSD! . |
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"Thanks for this!" says: | kimmie (05-07-2009) |
04-24-2009, 12:58 AM | #2 | |||
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My hubby and I watched the show;Paula was moving all over the place. My hubby said,"Hey, isn't she suppose to have RSD?" I said that is what Paula Abdul has told the world. Hubby said,"She must be Faking the Disorder, or You Are!"..in a playful manner. Maybe she is in remission??? The video that is posted doesn't name RSD as her medical issue. I don't know what to think about that video...denial of pain medication,hmmmmm???
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. A Positive Attitude Will Assist Me Toward An Active Life, Once Again . WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009. |
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"Thanks for this!" says: | kimmie (05-07-2009) |
04-24-2009, 01:32 AM | #3 | |||
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Yeah...I watched it. That is one reason I decided to pop on here (haven't been on here in ages....I am an old "oldie" that pops out of woodwork every now and again), to see if anyone else had, and what they thought about it.
Paula Abdul is really ticks me off. I was SOO hoping that they wouldn't mention her "RSD" that she is supposed to have...but I'll be danged if Cynthia McFaddden didn't! I was surprised that not only did she say "RSD", but she also said the whole "Reflex Sympathetic Dystrophy", AND that it was a severely painful nerve condition that causes chronic pain (didn't put that in quotes, as I can't remember her exact wording...but it was bascially that). that was a good thing...what was bad is the old footage of the Freaked Out Paula that they kept showing. Her being all weird, acting stoned out of her mind...or drunk as crap, and wildly gesculating all over the place. I don't know about your all, but I certainly DO NOT gesculate like that when I am hurting super bad. I look more like a decrepid 99 year old lady when pain levels are as bad as what Paula was trying to say hers where/are. What gets me is that Paula lied. She actually stumbled over at least one of her lies too. I caught it....don't know how many other folks did. She sat there and said over and over again that she had "never. Never EVER" been drunk. That she doesn't drink ( think that she even said that she had NEVER EVER even had a drink..which I DO NOT believe at all!!)....and had NEVER EVER been drunk. A little bit later in the interiew, she again was denying drinking and being drunk, and she ALMOST said "I don't like how it makes me feel" (being drunk, that is)...but caught herself. Uh huh. How can you know what something feels like, and if you like it or not, if you have never experienced the feeling? Liar. We had lots of conversations abot Paula when she first came out saying she had RSD after she was acting so very freaky...and when she made the cover or People. It seems to me that this is just more of the same; something to use as an excuse to pin her weird behavior on, without a thought as to what such claims do to the Chronic Pain Community. I guess that we ALL are supposed to act like Whack Jobs, just because we hurt...and hurt badly? That it makes us look like we are on a two day stoned out buzz? Or week long drunk? I mean..she emphatically says that she takes NO PAIN MEDICATION AT ALL..so we cant even just say "Oh..it mush be her meds. Maybe they changed her dose or something" (which has happned to me, when my pain meds got changed, or the dosage upped, and I wasn't used to it. Although, I have to say, the few times that I have had something make me feel at all weird or not like my normal self stopped that med and we tried something else that worked better). I have had (and still have) enough troubles getting folks to understand my pain..without them thinking that I might go off acting like a nut at any time, just because I have RSD. ARGH!!! Thanks again, Paula! Sheesh. Oh....her doc told Cynthia that she not only suffers from RSD, but 4 other "chronic pain conditions, any one of which would sideline anyone else. He aplauds Paulas strenght". Whatever. Hope everyone has a good weekend. ((hugs)) Jose
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"Be Excellent to each other." ~Bill S. Preston, Esq. & Ted "Theodore" Logan "It is our choices that show what we truly are, far more than our abilities." ~Albus Dumbledore |
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"Thanks for this!" says: | kimmie (05-07-2009) |
04-24-2009, 07:28 AM | #4 | ||
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Quote:
Sheeesh. Mike |
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"Thanks for this!" says: | kimmie (05-07-2009) |
04-24-2009, 07:48 AM | #5 | |||
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Jose, first off, I want to say hi to you. I think of you often. I am glad to see you posting again.
I don't quite understand the situation with her. I have seen on two different shows where she says she don't have RSD and that was after the 2005 websites that others have put on here. Diana says she has seen where she has retracted the RSD. First she said that they could ask her Dr. about meds then she refused to let them ask the Drs. That tells me something there. I have never seen that woman when she didn't look drugged up. She said she's had 18 surgeries. I can't imagine having surgeries without taking some sort of pain meds until it gets better. Ada |
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"Thanks for this!" says: | kimmie (05-08-2009) |
04-24-2009, 07:51 AM | #6 | ||
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I was listening to the radio on the way to work this morning and the DJ was making fun of Paula and playing parts of the interview and not once was RSD mentioned. However, Joselita's post said it was mentioned by the interviewer. Having lived with a person with severe RSD for several years and learning over time the pain both physical and mental a person with RSD endures and the statement Paula made that she never takes pain meds struck me as very odd indeed. For 4 years my wife could not sleep more than 2-3 hours a night and went to work every morning because she took no meds except motrin and lost her mind and had a total collapse and is now disabled. She takes plenty of meds now and is more normal now than when she wasn't because her pain is being controlled much much better. Watching the clip of Paula, something is going on with her and she isn't being frank at all. Having not seen the full interview I wished she would have been more of a teacher in explaining this rare condition to the public and stayed on that course with the interviewer, she then would have come across in a much better light with the public.
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"Thanks for this!" says: | kimmie (05-08-2009) |
04-24-2009, 11:02 AM | #7 | ||
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Hey Carrie,
Thanks, for the link to the video. Don't waste energy on her. Her celebrity status keeps her in the spot light. We all know RSD is real and if anyone wants to question that it isn't it can be proved. It's beatiful in OH today 75 and sunny. I'm taking our golden retriever to have lunch with my daughter at the park. My pain and lack of energy tell me to stay put my mind is telling me I will be sorry if I don't keep moving. Here's hoping everyone has a pain and emotions under control kind of day. sherrie |
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04-24-2009, 06:14 PM | #8 | ||
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I remember seeing her on Larry King - may have been a couple years back. He asked her about her "condition" or something to that effect. She could not come up with Reflex Sympathetic Dystrophy. I forget what she said now, but it was something with the same first letters, but totally different words.
This is not what she said... as I forget... but lets say it was the equivalent to "Regional Symptom Disorder" I remember doing an actual double take at the TV. I taped the interview, as I was curious to see what if anything she had to say about her RSD, or lack of it. I played it back several times, not believing what I was hearing. What a joke. SO GLAD she is not a spokesperson for RSD. Sheesh. I remember I posted about it the next day on the old board. I thought at the time -- there has not been one day, not one minute -- that I have not remembered the words "Reflex Sympathetic Dystrophy" since I was diagnosed. How about you? After I saw that, I had no respect for her in relation to having RSD. I don't believe it. She may have pain from being a dancer - I don't deny that. But to not KNOW what RSD stands for if you have it? I just don't think that happens. RSD is life changing. It's way more than arthritis. Way more. If you have it, you remember what it's called. |
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04-24-2009, 06:26 PM | #9 | |||
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I don't believe for a minute she has rsd and never have. She really makes us all look bad and it ticked me off a lot to have rsd come up during the show in relation to her. I don't care who you are, you're not going to go out whooping it up and being that active with rsd. Especially rsd and no pain meds! Shoot, all of us who do take them can't be half as "active" as she is!!! I wrote to Nightline and only hope enough people do too so maybe they'll do a whole segment on it and get the truth of it out there. It would bring awareness and show what we really go through everyday. I have confidence if Nightline got enough letters they would do it. This isn't like trying to get Montel or Oprah to do something which I always thought was a joke anyway. They won't do anything to actually help out people.
Hugs, Karen
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Laugh until you cry, don't cry until you laugh. Living, loving and laughing with RSD for 14 years and counting. |
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04-24-2009, 10:09 PM | #10 | ||
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I haven't seen much on Paula talking about her condition, and she doesn't talk about RSD in this video. She did say she had been on nerve medication, and that alone can probably explain her loopy behavior. I know when I was taking high doses of Lyrica I was a loony. I teach college courses, and after my doc had increased my dose of Lyrica, I started slurring my words and stuff--I'm sure my students must have thought I was drunk. This med also made me suicidal and really kind of crazy--kind of how Paula looked. I wouldn't go near it again. Gabapentin never had that effect on me. This may not be a popular opinion, but I think some people are also good at hiding their pain. I don't think my students knew that I was hurting or what I was going through, and being active in my career helped take my mind off the pain. But then I would come home and crash. I don't know what Paula's going through, but after 15 surgeries there has to be some lingering pain (whether it's RSD or something else). There's probably a reason she's a judge on American Idol and no longer active in her singing career. I am so glad I don't need to live my life in a fish bowl. I can imagine the headlines they'd have about me!
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