Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 09-14-2006, 11:12 PM #1
Cake Cake is offline
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Join Date: Sep 2006
Location: Australia
Posts: 148
15 yr Member
Cake Cake is offline
Member
 
Join Date: Sep 2006
Location: Australia
Posts: 148
15 yr Member
Default Kate's Here, exactly where I need to be

I've missed you all!

I've been having a really rough time since my ketamine infusion. I can't remember whether I told you before braintalk buggered up, but my ketamine infusion didn't work at all, and in fact caused my liver to stuff up and they had to stop the infusion. My ALT levels were going too high (upto 138 for those that know anything about it, under 50 is normal)

But since then my pain has got out of control. My rsd in my leg has spread, instead of being contained from ankle to just above my knee, it now goes from toes to hip, and my arm and hand are hurting in ways they haven't hurt in about 2 years. Its scary getting new pain in new areas, and old symptoms come back that I haven't had to deal with for so long. It's very unmanaged right now.

I did start back on the meds I was on before my infusions, but they don't agree with me anymore, so now I'm just on 25mg baclofen and thats it, just taking endone when I need one or two. I see my specialist on the 21st, which couldn't come soon enough.

On the bright side, my little girl is an angel! She's 3 months old now and is a TOTAL mummy's girl! She's sitting on my lap right now! I'll post a new pic soon, gotta take some new ones of her today.

I'll go read up and see how you've all been. Hopefully everyone else will find us soon too.

x Kate
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