Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 04-29-2009, 08:57 AM #11
Rita's Avatar
Rita Rita is offline
Junior Member
 
Join Date: Aug 2008
Location: the Blue Grass State
Posts: 73
15 yr Member
Rita Rita is offline
Junior Member
Rita's Avatar
 
Join Date: Aug 2008
Location: the Blue Grass State
Posts: 73
15 yr Member
Default

Quote:
Originally Posted by bassman View Post
Welcome to the forum.

I have an implanted SCS, and the generator/battery is in my hip - just above where the back pocket would be on a pair of jeans. It is installed very shallow. In fact, it sticks out and it feels like I am sitting on a fat wallet. (I wish! ).

I use the Lidoderm patches to (1) lessen the pain form the skin stretching and the scar and (2) to act as padding so I don't accidentally bump the SCS generator.

For this purpose it works pretty well. I would not say I am pain-free, but it is much better than just being bare.

Mike
Mike,
Apparently, you guys need more cush in the tush. lol Reed has the same problem, and he has constant pain ( just annoying pain) where his battery is. He has lidoderm patches too, for that purpose. I never even thought about it for the padding!

Also, to the person (geesh my memory is crap) who asked about the size.. I don't know how big a pace maker is, but my fiance' has a Boston Scientific SCS and his battery is about the size of a half-dollar I would guess. This is from judging the size of the lump on his rear.
__________________

.
Rita
.
Rita is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
gardengrl (04-29-2009)

advertisement
Old 04-29-2009, 09:34 AM #12
gardengrl's Avatar
gardengrl gardengrl is offline
Member
 
Join Date: Feb 2009
Location: Carolina's
Posts: 208
15 yr Member
gardengrl gardengrl is offline
Member
gardengrl's Avatar
 
Join Date: Feb 2009
Location: Carolina's
Posts: 208
15 yr Member
Default pain relief

Quote:
Originally Posted by dreambeliever128 View Post
welcome to the forum.

I have had blocks and they helped me but a lot of people get no relief from them.

As far as the patches. I have been using them for about 4 years and I love them. You can use 3 at a time and I do see relief even for my pelvic area when I put it on my left thigh area.

Anything that helps us is a blessing.

Ada

Hi Everyone, I'm new to this forum. I normally hang out in the brain injury forums & Alzhiemers...I have CRSD 2....& I care for my mom who has Alzh,Schiz,& LBD....

My Pain Clinic Doc. just Dx me w/this CRSD 2...although i have had it since my accident 9 yrs. ago. So the pain is NOT new.

Moms illness has really taken most of my time so my 3x a week PT has been reduced to once a week if I am lucky! So I find myself in much more pain these days...& like you all, looking for ways to deal.

I have been getting Cortisone injections..usually 4-5 in dif. locations, every other month....They help Sometimes. Someone had mentioned Botox for Pain relief? Has anyone tried this yet?

Currently my pain control involves a TENS unit or Two...Vicodan 3x daily, which I hate...Cortisone injections, PT that gives me a good variety of Laser treatments, Ultra sound heat, Massage, Strenghtening exercise, Heat & Ice packs, and Mylfasia Release.......

I have Not tried the pain patches yet. Are they prescription?

I have Many Pain issues, too many to descibe....just as many of you are dealing with. I know as of yet there is no "magic bullet"...but ANY relief would be so nice......Any idea's or suggestions are very welcomed...Thanks

And also, Please excuse typo's as my brain is backwards & spellcheck won't work for me
gardengrl is offline   Reply With QuoteReply With Quote
Old 04-29-2009, 09:40 AM #13
dreambeliever128's Avatar
dreambeliever128 dreambeliever128 is offline
Magnate
 
Join Date: Nov 2006
Posts: 2,088
15 yr Member
dreambeliever128 dreambeliever128 is offline
Magnate
dreambeliever128's Avatar
 
Join Date: Nov 2006
Posts: 2,088
15 yr Member
Default Hi Gardengirl,

The Lidoderm patches are prescription.

Some people can't use them but I get a lot of relief with mine.

Sorry to hear you are going through so much.

Hang around you will learn a lot and meet a lot of good people.

Ada
dreambeliever128 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
gardengrl (04-29-2009)
Old 04-29-2009, 08:50 PM #14
baseballfan baseballfan is offline
Junior Member
 
Join Date: Mar 2009
Location: California
Posts: 94
15 yr Member
baseballfan baseballfan is offline
Junior Member
 
Join Date: Mar 2009
Location: California
Posts: 94
15 yr Member
Default RSD Questions

Quote:
Originally Posted by dreambeliever128 View Post
welcome to the forum.

I have had blocks and they helped me but a lot of people get no relief from them.

As far as the patches. I have been using them for about 4 years and I love them. You can use 3 at a time and I do see relief even for my pelvic area when I put it on my left thigh area.

Anything that helps us is a blessing.

Ada
Hi dreambeliever128,

Thanks glad to know the blocks helped you. And glad you get relief from the patches,

kate
baseballfan is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
gardengrl (04-30-2009)
Old 04-29-2009, 08:55 PM #15
baseballfan baseballfan is offline
Junior Member
 
Join Date: Mar 2009
Location: California
Posts: 94
15 yr Member
baseballfan baseballfan is offline
Junior Member
 
Join Date: Mar 2009
Location: California
Posts: 94
15 yr Member
Default Thanks

Quote:
Originally Posted by daniella View Post
Hi. We are all different but I can not tolerate these. A light touch to my rsd area hurts. These increased my pain. I do know many get relief so again it is what works for you and sometimes that may change I have found. Everyone just like the patches get different relief and for different amounts of time with blocks. Are you trying any other meds too? Welcome to the boards too and I am sorry you are facing this too
Hi Daneilla,

Thanks for answering my post. To answer you question I do take 300 mg lyrica a day, lidoderm patches, klonopin 1 mg a day, percocet 5mg 1 4 times a day, and robaxin 750 2 times a day, and other drugs for other med conditions.

Kate
baseballfan is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
gardengrl (04-30-2009)
Old 04-29-2009, 08:59 PM #16
baseballfan baseballfan is offline
Junior Member
 
Join Date: Mar 2009
Location: California
Posts: 94
15 yr Member
baseballfan baseballfan is offline
Junior Member
 
Join Date: Mar 2009
Location: California
Posts: 94
15 yr Member
Default Thanks

Quote:
Originally Posted by michelles View Post
for me the blocks did help but for only a couple days and i only got any where from 40-60% relief the doc said then that was a success. as for the patches i use them and they work great, i have rsd in my foot and it would hurt so bad to remove it that i cant wear them on my foot but i do use them for my neck and back. good luck on your block... take care michelle
Hi Michelle,

Glad you got some relief from the blocks even though it was a couple of days. I wear my lidoderm patches at night on my foot and usually if and when I can get to sleep they fall off when I am a sleep. Thanks for the good luck on the block will keep you posted on how it goes.

Kate
baseballfan is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
gardengrl (04-30-2009)
Old 04-29-2009, 09:01 PM #17
baseballfan baseballfan is offline
Junior Member
 
Join Date: Mar 2009
Location: California
Posts: 94
15 yr Member
baseballfan baseballfan is offline
Junior Member
 
Join Date: Mar 2009
Location: California
Posts: 94
15 yr Member
Default Hello

Quote:
Originally Posted by bunnehead View Post
From my experience, the blocks are important because they work to reset the recycling pain signal and the patches are good for relief for a short period of time. I use the patches sometimes on my lower back and it does help some. Hope that was helpful.
Hi Bunnehead,

Thanks for the info about the blocks. Glad the patches help your lower back.

Kate
baseballfan is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
gardengrl (04-30-2009)
Old 04-29-2009, 09:07 PM #18
baseballfan baseballfan is offline
Junior Member
 
Join Date: Mar 2009
Location: California
Posts: 94
15 yr Member
baseballfan baseballfan is offline
Junior Member
 
Join Date: Mar 2009
Location: California
Posts: 94
15 yr Member
Default Hello

[QUOTE=Dew58;502256]I have not had any blocks..I know they are coming,though I am in the same place per your question. The thought of needles I have to give blood at my PM appts., hurts for 2 weeks afterward.

I have used the Lidoderm patch and the Flector pain patches. Flector is a lot more expensive, as it has a stronger dose of pain killer. I find relief in both patches. I have not been able to wear either one the 12 hrs. that script indicates. I can take about 4 hrs. at one time.

I have noticed that the Lidoderm patch stays in place better than the Flector patch. The flector patch is thicker in form.

Welcome to the forum.

Dew[/QUOTE

Hi Dew,

I have had blocks in the past for other probs with my back. they are not that bad, they usually give you a local and some anesthesia and you don't even feel it when the doc gives the block. You just have to have someone drive you home, ice the spot where the doc gave you the block and pray it helps/works. I have had 8 blocks over the past 6 years and have not had good luck with them, but that is me and everybody is different. I have never had a sympathetic block and when I do get it, I hope/pray it helps me. thanks Dew

Kate
baseballfan is offline   Reply With QuoteReply With Quote
Old 04-29-2009, 09:10 PM #19
baseballfan baseballfan is offline
Junior Member
 
Join Date: Mar 2009
Location: California
Posts: 94
15 yr Member
baseballfan baseballfan is offline
Junior Member
 
Join Date: Mar 2009
Location: California
Posts: 94
15 yr Member
Default Hello

Quote:
Originally Posted by bassman View Post
Welcome to the forum.

I have an implanted SCS, and the generator/battery is in my hip - just above where the back pocket would be on a pair of jeans. It is installed very shallow. In fact, it sticks out and it feels like I am sitting on a fat wallet. (I wish! ).

I use the Lidoderm patches to (1) lessen the pain form the skin stretching and the scar and (2) to act as padding so I don't accidentally bump the SCS generator.

For this purpose it works pretty well. I would not say I am pain-free, but it is much better than just being bare.

Mike
Hi Mike,

Thanks for the welcome. Mike does the scs help you? My pain doc is talking about trying the scs for my pain in Dec 09 after it has been a year from my 3 back surg and 3 back fusion. glad the lidoderm patches help you for your scs. I hope/pray that we all can be pain free one day. mike

Kate
baseballfan is offline   Reply With QuoteReply With Quote
Old 04-29-2009, 09:14 PM #20
baseballfan baseballfan is offline
Junior Member
 
Join Date: Mar 2009
Location: California
Posts: 94
15 yr Member
baseballfan baseballfan is offline
Junior Member
 
Join Date: Mar 2009
Location: California
Posts: 94
15 yr Member
Default Hello

Quote:
Originally Posted by AintSoBad View Post
I wouldn't want to be without these patches.
I cut them into 2" strips.
Put them across my neck, and low back.
I re-wet them, with warm water sometimes, sometimes before i put them on. It gets the meds flowing faster. And, they stick better.

Sometimes, I cut them longways, and put them down my forearm, while I type, or around my wrist. For the forearm TOS Carpel tunnel pain.
Life Savers!
If I go food shopping and hafto lift, or walk, my low back. On my neck, they'll actually prevent the tightness that causes headaches, and pain down the arm.
And, as I've said.

Don't underestimate Lidocaine or Flector patches.

Ironically, I've NEVER used an entire patch, all in one spot.

Pete
asb

Hi asb,

I always wondered if I could cut lidoderm patches and how they would work cut. That is also very interesting about wetting a lidoderm patch to get the med in your system faster and that they stick better wet. I will have to try this some time in the future. Thanks for the info asb.

Kate
baseballfan is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Lidoderm Patches on PERIPHERAL NEUROPATHY SITE olecyn Thoracic Outlet Syndrome 17 02-20-2009 08:18 AM
lidoderm patches aussiemom Peripheral Neuropathy 14 03-18-2008 06:05 PM
Do you use Lidoderm patches for your RSD/ CRPS? Please tell me about your experience! InHisHands Reflex Sympathetic Dystrophy (RSD and CRPS) 22 01-25-2007 03:24 PM
Any Suggestions on how to keep Lidoderm patches attached... dawn3063 Thoracic Outlet Syndrome 9 11-10-2006 07:53 PM
Any Suggestions on how to keep Lidoderm patches attached... dawn3063 Spinal Disorders & Back Pain 7 11-05-2006 09:08 PM


All times are GMT -5. The time now is 06:29 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.