Hi Loretta,
 

I have one of those horseshoe shaped pillows and it doesn't help.

When I get this VNS out of me, that will help a little, I can't lay on my left side because it will stick out. It's square, about the shape of a poptart only thicker.

Then I have TOS and CFS so that isn't helping with my sleep.

Carrie, I have to lay on my right side or back and 2 out of 4 choices don't work for me. I can't lay on my stomach, it messes with my stomach issues.

Sounds like we should all just have some all night parties and forget the sleep altogether.

Ada

yea that sounds like fun.. for sure. because i barely do that period LOL and i know alot of us would pay to sleep for hrs at a time .. heck i know i would ..

carrie

As Shakespeare wrote "To sleep, perchance to dream...ay, there's the rub"

Always have had trouble falling asleep but then would sleep like a rock...house 2 doors down burned to the ground and I slept through all the fire truck sirens and noise. But since RSD it's gotten worse. If, like today, I have meetings throughout the lunch hours and never get my 1 hour nap, I get over tired and may not sleep until the morning even taking an extra Lunesta. Most of the time it's the pain that keeps me from going to sleep and waking up throughout the night. Get the shakes when I get up in the morning but not sure which medicine is causing it and it goes away once I'm fully up and awake.

One Moment Can Change Everything!

When I was first diagnosed with "probable RSD" from repeat right rototar cuff repair surgeries last June and sent to a PM doc, he started a series of trigger point injections. Over a period of a couple months he repeatedly injected my upper back, cervical spine, SCM muscles and the back of my head. The injections consisted mainly of steroids and marcaine. With the onset of winter, my RSD spread into all those areas, and as a result I suffer from terrible headaches and can't lay down on my head except on the sides with my face smashed into a cervical pillow (not good if you are trying to avoid wrinkes!). So trying to sleep REALLY sucks.

I take percocet and Ambien CR and Soma when I go to bed. I wake up often. I average maybe 6 hrs a night, but I do get perhaps 7-8 hrs total sometimes. On a low pain weekend day (few and far between anymore) I used to sleep 12 hours.

Sandy

As you all wrote sleep?? What is that... I dont sleep at night at all and can sleep during the day for 4 to 5 hours but no nearly enough sleep... i have always been a person who needs me sleep lol... Reccently my doc gave me a product called Walora FAST2SLEEP... it is purley herbs...melatonin,piper methystictum and huperzia serrarate... I know i slept those wrong sorry... but it works like a charm and maybe talk to your doctor or i am sure you can get it online?

The first time I complained of insomnia my doc prescribed tizanidine. I hadn't even noticed that I have a very fine high frequency tremor that kept me awake. I also take seroquel which helps sleep.

sleep
 

Hi Pete,

I really don't sleep at night. I do take klonopin 1mg at night, but it doesn't do much good. The one I have noticed since being dxed with RSD is that I sweat a lot especially at night(which I find very annoying). I also have a hard time find a comfortable position to sleep in. Pete have you tried Melatonin. Good luck:hug:

Kate

Just looked on internet...correct company name is Waiora. How long have you been taking? Have you notice effect lessening over time?

Sleep
 

Hi Pete,

I wanted to comment on something is one of your other posts. When I can sleep, If I sleep in the same position to long I notice my left leg is always really stiff and hard to move. My RSD is in my left foot. What can I do to avoid having such bad stiffness? What do you do? Also I have noticed for a few weeks my left hand will cramp and be stiff and hurt, and spasm. Do you think this is a sign that the RSD has moved to my left hand? Have a nice day Pete:hug::hug::)

Kate

No i havent noticed any reduction of effects over time.... about 3 months... they work pretty well... Maybe it will help you.. Sorry about the spelling it was late and couldnt remember exactly...

Jacquelina