Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-07-2009, 02:47 PM #41
AintSoBad AintSoBad is offline
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SCourcier,
That trick of cooling the neck and under/behind the ears, is it!
I'm gonna go buy one of those (dark blue, filled with putty that don't get hard) ice packs that chiropractors use. (I had half dozen of them, but wifey wouldn't let me near ANY of my disability aids). They're really great, keep them in the freezer, and they stay soft(ish).

Also, about the neck and ears, as I've mentioned before, when I finally do get dry after a shower or bath, (which is an entire new bundle of joy), I spray neck/ behind ears with anti perspirant. It helps for a while. (Until i sweat out and wipe it off)...

I was up and down with the A/C last nite, until I'm just moving today @ 3.00pm (which has been going on all week, with this weather).
I sometimes think that the A/C triggers the sweating, and I like to have a blanket on. Then the "draft" comes into play, I don't like that.


The pain reminds me I'm alive.

Pete
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Old 05-07-2009, 03:26 PM #42
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Quote:
Originally Posted by SBOWLING View Post
Ada,

Did Methadon help, why are you going off? My doctor wants me to try it. My husband and son are paramedics and my daughter in law is an RN in a level one trama ER. The three of them went crazy on me and said no way should I try. They have worked on people who weren't drug addicts that overdosed on it. My doctor explained how time sensative it is between doses. I read up on it and for now have passed. I thought it might be something I could come back to in the future.
Sorry, I know this off topic for this thread.
Thanks,
Sherrie
I also fought going on Methadone for a number of years based on similar concerns and fear of the stigma as well.

After being on methadone for several years now I beleive that for me it was a mistake to refuse these meds as my pain - though more severe - is much better managed then it ever was back then.

The doctors repeatedly told me that methadone had a much longer impact on pain in the body and that has proven to be true. The ability to maintain a constant level of morphine/opiates in the blood stream turns the overall pain volume down and in turn makes the break through spikes less severe.

Before it was like being a yo-yo. This not only meant that my pain levels were being allowed to shoot up, but so was my blood pressure and everything else. Ultimately I noticed that this cycling from being in extreme pain to being partially out of it was driving a wedge between me and my family because it was so chaotic that I switched over and it has been easier to manage.

The other side of this same coin however, and my personal opinion for why there may be a higher OD rate, is that you may not be able to tell when you have taken a dose. Therefore, if you are relying on memory you can get in trouble so I would strongly encourage the use of a pill dispenser/planner.

It is different for everyone though so go with what you feel.
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Old 05-07-2009, 04:12 PM #43
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I agree.
I've been on methadone since 1990-91. (Wife raised a stink, didn't want to be married to a drug addict, her gf worked at a drug rehab. She left, only to date some real drug abusers, and abuse herself). So, to hell with others opinions, it's Your body, Your pain.

I was told to think of it as blood pressure medication. I'll take the same dose every day, probably for the rest of my life.
It's been close to 20 years now for me. Another accident, I got raised from 15 mg / day to 100 mg / day.
Now, I'm at 50-60mg / day. Along with some other meds in the cocktail.

I hope you see the
ChronicPainConnection.com
article released in email today.
I'm sure it's on their site too.
An excellent article about "nerve pain" and another one on methadone.

Methadone overdoses are very low in reality.
It comes from people being not knowledgeable and abusive.

Hope this helps, hope you get some relief.

pete
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Old 05-14-2009, 02:29 AM #44
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Default Sweating, Cymbalta & RSD

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Originally Posted by SunshineGirl View Post
What do u all think is the reason I have been sweating like a crazy person?? Just ringing wet, and it is embarresing> Is it the Cymbalta or Rsd, because I have had a hysterectomy for 15 years so I know it's not that.. Any advie??
Ringing wet sweating is a side effect of Cymbalta. I know from personal experience, having suffered silently from it until it became intolerable. I described it to my doctor and he immediately told me of the properties in Cymbalta that caused it. I stopped taking Cymbalta and it stopped within two hours. Describe your ringing wet sweating at your next appointment and ask your doctor if Cymbalta could be the cause.

The inability of ones' body to regulate temperature and cause you to overheat and cause perspiration, however, is caused by RSD. That is a side effect of the disease for which there is no treatment other than to wear clothing of natural fibers and have lots of patience. I actually installed a separate thermostat for the air conditioner in our bedroom to reduce our bills and address my RSD caused overheating. But at least I am happy to report I am no longer experiencing ringing wet sweating now that I am not taking Cymbalta.

Hope you feel better!
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Old 05-23-2009, 09:15 PM #45
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Default sweating and rsd

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Originally Posted by SBOWLING View Post
IMO it's the RSD. I went off Cymbalta last November and I sweat something terrible. When I asked my doctors they say RSD. Some people complain of freezing with RSD I get hot and sweat (mine is fullbody RSD). I do worse with my pain and symptoms in the summer. I live in OH we some nice warm days last weekend and early in the week. My body was red like a sunburn only I hadn't been in the sun the heat alone lights a fire to my body. I like the winter it keeps my body temperture down.
As one of my doctors and I like to joke it's my crazy short circuited nervous system.
Take care,
Sherrie
Hi Sherrie,

What part of Ohio are you from? I'm from Cincinnati, Ohio. We live in a bad spot for RSD! In the Summer, and days like today the humidity is really awful. In the Winter it gets really cold, and the cold affects my pain the worst. In between, the barometric pressure goes up and down all the time. There is a saying in Cincinnati, if you don't like the weather, wait 10 minutes and it will change. On to the real topic(sweating), I sweat the same way,it just pours off me. I got my hair cut so short it looks like I'm joining the Army, but I don't think they would take 50 yr. old out of shape and over weight men with RSD and Failed Back Surgery symptoms. I've never been a person that sweats a lot until I was diagnosed with RSD. I try and stay in the shade when I'm outside, and when I'm in the car the A.C. is cranked. We don't have central air, just overhead fans and window units, but they work, and keep us comfortable for now. I almost forgot, I feel like I'm Granny, from the Beverly Hillbillies. I can always tell when it's going to rain or snow by my body. My RSD really flares, and I ache all over. Who needs a Weather Man when us with RSD can tell when it's going to rain.

Blessings,

jmac51

Last edited by jmac51; 05-24-2009 at 07:35 PM. Reason: mood
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Old 06-24-2009, 10:05 AM #46
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I sweat so much. All of my friends say it is from the hydrocodone. I am so tired of them saying it.
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Old 06-24-2009, 04:10 PM #47
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Talk about sweating,,,try taking cymbalta and prednisone,,,,my bed is a lake and it looks like the potomic river is on my back,,,,,,,,,,,,,,,,,,,,,ive been off bith meds for 4 days,,,,,,,,,,,,,sweating is gone,,,,,i told my wife i thought i was having medipause !!!!!!!! sleeping ontop the covers in my underwear with the aircondition on high,in a pool of sweat!!!!!!!!!!!!!!LOL,,,,,,,,,bobber
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Old 06-24-2009, 04:17 PM #48
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did you stop taking this ? the reason i ask is because my mother was put on this for something else. and is having the same issues with the sweating. so i know that it isnt just the RSD that its just the meds. so maybe its both of them for you PM me and let me know

carrie
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hope this finds all in less pain
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rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,,




please check out our website to help bring awareness to RSD!


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Old 06-24-2009, 05:16 PM #49
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cymalta and prednisone cause severe sweating,,,read the paperwork that they stuff into the prescription bag{looks like a newspaper,LOL} both are major side effects,, alot people dont read them thru,,,but i do,,im sensitive to alot of meds,,,,hydrocodone{vicodin} and oxycodone{percocet} dont cause sweating,,,,bobber,,,,,,,,,,,ive been off both cymbalya and prednisone for 4 days now and no sweating at all,,,,,,diffenitly tthe meds
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Old 07-06-2009, 06:39 PM #50
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Default Good to know

I just read all of your responses. I was at a belated wedding reception yesterday and couldn't figure out why the only other person, besides me, was sweating was a pregnant woman.....no; I am not pregnant!! Ha I have been on Cymbalta, Lyrica, neurontin, morphine, darvocet, percocet, etc. and am allergic to all of them. Anyone been on meloxycam (sp?)? That is the next one they want me to try after I have a capsular release of my pip joints in my rt. hand. Thanks and have a good one. Suz
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