Well tomorrow am I have the iv lidocaine infusion at the hospital. I am so nervous because for me in addition to RSD and peripheral neuropathy I have some undx issues though I have been to basically every specialty and diagnostic test. My eye condition is in such a horrible vicodin pain state and I have been back to the neuro for it with no answers and went ot my 10th eye specialist. The floaters/eye pressure and pain is so severe and this has progressed over the past year plus. The treatment tomorrow is for the legs where the rsd and pn is not the eyes. I really hope I get some leg relief I will take even a notch off pain level but I hope to have my goal one day soon not thinking from this but to walk through a whole mall. I will take just sitting in comfort or doing small things too.In 2 years I have not felt normal legs. I always have some degree of pain and sometimes as many know it becomes insane or sometimes I am able to do more things but still limited. I just feel like I have a weird body and respond so odd to things this is my concern. I will let you guys know how it goes tomorrow. If I find a miracle treatment or if it is a waste. I just prey nothing happens cause at this point with so much going on I really feel like I am not going to be able to handle it. My mom who is my biggest support through this and has done so much for me are on different pages right now and we are fighting so that is adding to stress/anxiety. Try to be hopeful and calm though.Easier said then done.Thanks for listening

Good luck...I'll be thinking of you. I hope you get some relief.

Good luck with the infusion!
Let us know what happened!

Hello Daniella,

Take it easy today and don't get too worked up about the what if's. My mom use to tell me don't borrow trouble. The anxiety isn't good for any pain issues, it is a pain agrivator.

My daughter and I go through times when we just don't connect and we seem to argue too much. Your mom loves you and is concerned and may feel helpless. It' not you she is angry with it's the health issues you face that have her concerned. When you deal with chronic health issues it puts pressure not only on you but those who love you.

Take some time today and do something for you. Stay away from the negative things today. Watch or read something funny and laugh till it hurts. If the weather is nice where you are sit outside. Listen to some music that you like. Ask God for his peace that passes all understanding.

I wish you the best of luck PM me if you have any questions or just need to talk.
Take care of you,
Sherrie

Hello Daniella,

Good luck with your infusion, try not to worry about it...It is a very easy procedure. Initially you should just feel a bit dizzy, hear some rushing sounds in your ears and your lips may feel a bit numb. I usually sleep through my infusions and all those side effects wear off as soon as the infusion is finished. I do have a little bit of gas for a day or so after but no other issues. It takes my pain levels way down and I'm able to function much better for a couple of weeks after the infusion.

I'm thinking about you and hope it all goes well for you.

MsL (currently in Switzerland)

First thank you for your thoughts. I really appreciate it. Second I am an idiot so we went this morning and my apt is tomorrow the 6th. I was up most of the night worring and already am apprehensive about this. So tomorrow we go back. They tried to get me into today as the schedule people are so sweet at the hospital but they can only do 1 a day and they already had someone there. So I will let you guys know tomorrow or the next depending how I feel. I am super concerned right now about my vision and that pain with combo of my leg is draining me.
Side notes Sbowling I tried to use some coping skills yesterday but was limited in how I felt but at least tried. I know my mom wants the best for me and I feel bad and was not exactly pleasant this morning again. I just feel very trapped in pain and being controlled I guess though of course she is doing everything in her power for me and what will help me. Just feel some things right now should be up to me not her and also I don't like the fact about being told how to cope mentally through this and not just from her but others.
MslDay thank you for sharing your experience. It helps when I hear others have been through this and benefited. I hope you continue to do well
Thanks to everyone else too I appreciate it