Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 05-04-2009, 02:28 AM #1
wildberry2277 wildberry2277 is offline
Member
 
Join Date: Jul 2007
Location: Minnesota
Posts: 129
15 yr Member
wildberry2277 wildberry2277 is offline
Member
 
Join Date: Jul 2007
Location: Minnesota
Posts: 129
15 yr Member
Chat Sweating thing...

I know the sweating thing has been brought up many times but i have a question has anyone found away to hide this from others.. For instance i was wearing white dress paints today and i sweated through the things and it was rather embarrassing... I dont even want to go out in public because of the sweating... Its so embarrassing... if anyone has any suggestions on how to hide this embarrassing part of our condtions i am open to it...

Thanks Jacquelina
__________________
Jacquelina
.
wildberry2277 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dew58 (05-04-2009)

advertisement
Old 05-04-2009, 08:40 AM #2
daniella daniella is offline
Magnate
 
Join Date: May 2007
Posts: 2,998
15 yr Member
daniella daniella is offline
Magnate
 
Join Date: May 2007
Posts: 2,998
15 yr Member
Default

I don't have the sweating issue as of now and am not comparing my moms problem but thought it may help with direction of what could help. I know my mom who does not have RSD but I am thinking it was from menapause used to sweat under arms where it would leave marks and she found these shields at a langerie store so I wonder if they have similar for other body areas if you find parts sweat more then others. Also what about different materials or weights. I know for me on my legs where my RSD I can only tolerate certain textures and weight to it. I go around feeling all the items in the store to see if it is even a possible.
daniella is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dew58 (05-12-2009)
Old 05-04-2009, 09:13 PM #3
angelrsd's Avatar
angelrsd angelrsd is offline
Member
 
Join Date: Dec 2008
Location: murfreesboro tn
Posts: 500
15 yr Member
angelrsd angelrsd is offline
Member
angelrsd's Avatar
 
Join Date: Dec 2008
Location: murfreesboro tn
Posts: 500
15 yr Member
Default

ok i have this and the only thing that i can do is wear darker colored clothing . and i dont wear as much lighter colored things anymore i also use degree prescription strength deordent i also work and interact with customers at our business and its horrible. drives me insane to say the least. this is all i have done for this.. i know some have had medical treatments for it like the botox and abliation .. but im not even there yet for that ...

carrie
__________________
hope this finds all in less pain
.



rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,,




please check out our website to help bring awareness to RSD!


.
angelrsd is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dew58 (05-12-2009)
Old 05-04-2009, 10:12 PM #4
AintSoBad AintSoBad is offline
In Remembrance
 
Join Date: Mar 2009
Location: Eastern PA.
Posts: 1,143
15 yr Member
AintSoBad AintSoBad is offline
In Remembrance
 
Join Date: Mar 2009
Location: Eastern PA.
Posts: 1,143
15 yr Member
Default

There's a clothing maker called "Patagonia". (California)

patagonia.com

They make something called "Capeline" (sp) undergarments.
Check them out!
They're now actually made from recycled soda (plastic) bottles.

This guy, wears NO COTTON on me torso!
T shirts are too loose, they absorb perspiration, and then you get a chill, which starts the perspiration cycle all over and over and ....

Capilene is different.
It's Plastic.
Yea, plastic t shirts, cool huh?
Any perspiration is "wicked" away!
They are super comfortable, and come in at least four different weights. From silk, to HD.
These have been my life savers since the early 80's!

(Now, Jockey, and some others you might find at Macy's, etc. are making nylon or plastic too),
But, what you pay Patagonia for, is a garment that will last at least 10X longer than ANY cotton garment!
That's a bargain.
They fit tight. No "Air" gets in and through to start the "chill" again.

I just cannot say enough about these garments.

If I had to give up everything, except one, Patagonia Capilene, would be the LAST thing I gave up!
Comfort wise,
and,
my middle name used to be
Captain Comfort.
Now,
It's Colonel Comfort!
Hah!

I''ve even bought Patagonia "jackets and such, not underwear" on eBay!
Yep.

It ALWAYS get stolen from me too!
Dam!
That and my favorite Outlaws CD's!

Oh well, I hope someone is enjoying it all....

Seriously now.
Check it out for yourself.
They have all weights of t shirts and heavy undershirts for super cold weather.
Breifs.
Socks.

And, their entire catalogue is full of "cool" stuff.
I used ta be able to just buy whatever I wanted.
Then, someone started giving my cool "patagonia" stuff away to her kids.....
Oh well,
Not going there now!

This is truly good stuff folks.
Try one on!

Pete
asb
AintSoBad is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dew58 (05-12-2009)
Old 05-05-2009, 12:39 AM #5
Jennelle Jennelle is offline
Member
 
Join Date: Mar 2009
Location: Washington
Posts: 100
15 yr Member
Jennelle Jennelle is offline
Member
 
Join Date: Mar 2009
Location: Washington
Posts: 100
15 yr Member
Default sweating

Where is your rsd is that why you sweat or is it the meds. I took a lot that made me almost have hot flashes! If it is the meds it might be time for a change, if it is the rsd I don't have many suggestions except to wear light weight clothes and maybe carry one of those hand held fans to sneak of to the bathroom and dry out a bit. I had to get up 3 times during a breakfast with my brother once because my meds made me sweat and go use cool water and dry off. Hope you do better soon!
positive thoughts your way!
Jennelle




Quote:
Originally Posted by wildberry2277 View Post
I know the sweating thing has been brought up many times but i have a question has anyone found away to hide this from others.. For instance i was wearing white dress paints today and i sweated through the things and it was rather embarrassing... I dont even want to go out in public because of the sweating... Its so embarrassing... if anyone has any suggestions on how to hide this embarrassing part of our condtions i am open to it...

Thanks Jacquelina
Jennelle is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dew58 (05-12-2009)
Old 05-09-2009, 08:10 PM #6
RSDLynnie RSDLynnie is offline
Junior Member
 
Join Date: Mar 2009
Location: Easley, SC
Posts: 38
15 yr Member
RSDLynnie RSDLynnie is offline
Junior Member
 
Join Date: Mar 2009
Location: Easley, SC
Posts: 38
15 yr Member
Default

I'm a fan of using a handheld fan. I'm too far beyond to get embarassed by what I need to do. So I carry a small fan my sister brought me back from China in my pocketbook and take it out when the flushes start at work; also bring a small lightweight down comforter to meetings and wrap my leg to keep it warm otherwise keep it in my office for my leg. I think if you can keep your head cool, the flushes don't seem to get out of control. I'm just put out because I stopped having hot flashes long before my accident, but then they came back with a vengence. Natural fabrics like cotton dry quicker and don't hold in the heat like synthetics. You've go my empathy and sorry I don't have a miracle cure.
Lynne "ONE MOMENT CAN CHANGE EVERYTHING!"
RSDLynnie is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dew58 (05-12-2009)
Old 05-09-2009, 08:26 PM #7
AintSoBad AintSoBad is offline
In Remembrance
 
Join Date: Mar 2009
Location: Eastern PA.
Posts: 1,143
15 yr Member
AintSoBad AintSoBad is offline
In Remembrance
 
Join Date: Mar 2009
Location: Eastern PA.
Posts: 1,143
15 yr Member
Default

I'm trying to Take Notice, of what Starts a Cold Sweat or, flash, or just a sweat?

I noticed yesterday, a friend came over, and in less than 5 minutes, I broke into a sweat.
Did I get a little jolt of adrenaline? (Maybe, just happy to see a friend?)

Spring time in the "Mud Atlantic" is atrocious.
Rain, Rain, Clouds... HUMIDITY!
The sun came out for a few moments these past couple days.

My A/C is running, with a ceiling fan.. too much draft. I can't keep them low enough.

As the profession I was in, I expanded the house I bought, and put in a new Central air system, just slightly "undersized", what that means, is that it "works hard" (but costs less), and works more on dehumidification, than just "blowing ice cold air".
Also, all of the vents are placed "strategically", so that no 'draft' will hit me, where I sit, or sleep (if I sleep)... Hah!

Then, a nice whirlpool bath.
I used to heat myself up in the AM, (wintertime), and cool down slowly. That was before I had this sweat issue. And, I never had it really until my second accident, which caused my TBI. But, I guess it really "ramped up" my rsd, too.
Sorry for rambling on....

My pain reminds me, I"m alive...

pete
asb
AintSoBad is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dew58 (05-12-2009)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Sweating Hope15 Peripheral Neuropathy 10 04-27-2009 07:47 PM
Drenched from Sweating lindkaye Multiple Sclerosis 9 03-18-2009 06:04 AM
ALS and Sweating JGilligan ALS 1 10-20-2008 05:28 AM
Sweating dreambeliever128 Reflex Sympathetic Dystrophy (RSD and CRPS) 14 10-11-2007 09:24 AM
Ruling may unlock key data on doctors...A Good Thing or a Bad Thing? Stitcher Parkinson's Disease 0 08-31-2007 06:54 PM


All times are GMT -5. The time now is 11:35 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.