[SBOWLING]

Hello,

I have full body RSD and I have been having random stabbings that aren't burning but very very cold. It's like ice water being poured on my spine and the feeling flows out like ice water would do. Sometimes, the feeling is followed by breathtaking pain that only last for a few minuets and then passes.

I see my doctor next week. I did ask my chiro (the nerve expert). He said he has never had that complaint. He thinks it's related to the RSD and that I was out of alignment in that area of my spine.

Thanks,
Sherrie

[CRPSbe]

For me the burning sensation turned into an always ice-cold, heavy ice burn type of feeling / pain when I hit the final stage of RSD. My limbs went permanently cold too.

Only when I have flares does some heat and burning come back into the limbs, mostly the knee area... not a good sensation either.

[SandyRI]

I used to burn but now I'm mostly COLD, too. Especially my hands, arms, legs and feet. I haven't had sensations in my spine, though. Does a heating pad or an electric blanket help? Or how about a hot tub? I still get the burning once in a while, but not like I used to. I usually wear gloves and socks to bed and cover up with 3 or 4 blankets.

I hope you can find some relief - good luck. Sandy

[AintSoBad]

Hiya Sherrie, and All others,
I haven't done this for a while, since my wife has control of my home right now, but used to wake up in the morning, and have a nice warm bath (I'm a plumber and put myself in a whirlpool), drink a cup of tea, and over heat my body.
Then, get out and wear a long heavy terry robe.
That was before my second accident, which started all this over the top sweating nonsense. Of course, I'd take my first (much smaller dose of methadone) too. That worked well for me. Then.

Now (after the second accident) all bets are off with the sweating, I hafto finish any bath/shower with a cool shower, just so I can dry off, or even close.

Sherrie,
these stabbing/shooting sensations, I get them too. Although not so often down my spine, anymore.
Did the chiro adjustment seem to help?
I hope you get some relief from that. It's gotta be a torture for sure.

I hope everyone gets a pain free hour or so today!

Pete
asb

[GalenaFaolan]

Ah, the cold water feeling! I know that one! I know lots of people who've felt it too. It is rsd causing it though for this one, I can't begin to explain why. I've never seen it mentioned in any research I've done all these years.

Mine happens in my left heel. It's when I step down I feel as if I've just stepped into a puddle of ice cold water. The funny part is every time this happens, I look all over the floor looking for the puddle of water I just stepped in and there's nothing there!! I realize a beat or 2 too late it's that cold water thing again. LOL So far that's the only part I've ever experienced it in.

Hugs,

Karen

[RSDLynnie]

Know the feeling well or something similar...feels like ice cubes are inside my legs and are melting. Bizarre. Certainly never felt anything like this before the RSD.
Lynnie - ONE MOMENT CAN CHANGE EVERYTHING!

[daniella]

I can relate to the cold. My foot/ankle often feels like it is in snow and almost that dethaw feeling after.It can be set off on a cold day or even in an air conditioned area that is super cold. This on top of the pain. For me baths help though sometimes I still remain cold foot after or it comes back. I can't tolerate heating pads or anything on it but we are all different. The doctor I said that many meds and treatment can help with the circulation but of course it is finding the right one which as of now is a hard battle