FAQ/Help |
Calendar |
Search |
Today's Posts |
![]() |
|
Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
Reply |
|
Thread Tools | Display Modes |
![]() |
#1 | ||
|
|||
Member
|
http://www.rsds.org/3/pdf/Modified%2...ster-RSDSA.pdf
INTRODUCTION Complex regional pain syndromes (CRPS), formerly referred to as reflex sympathetic dystrophy and causalgia, are neuropathic pain states that continue to be therapeutic challenges.1 Although these syndromes were described decades ago, their epidemiology has not been well studied. The incidence, prevalence and natural history of this syndrome as well as the profile of patients suffering from the disease is uncertain. Knowledge of the demographic distribution, e.g., age, gender, race, and occupation, is based on small sample sizes.2,3 Moreover, the clinical approach to a patient suspected to have CRPS is complicated by a lack of precision of diagnostic criteria and minimal evidencebased information on treatment options. INTRODUCTION Complex regional pain syndromes (CRPS), formerly referred to as reflex sympathetic dystrophy and causalgia, are neuropathic pain states that continue to be therapeutic challenges.1 Although these syndromes were described decades ago, their epidemiology has not been well studied. The incidence, prevalence and natural history of this syndrome as well as the profile of patients suffering from the disease is uncertain. Knowledge of the demographic distribution, e.g., age, gender, race, and occupation, is based on small sample sizes.2,3 Moreover, the clinical approach to a patient suspected to have CRPS is complicated by a lack of precision of diagnostic criteria and minimal evidencebased information on treatment options. METHODS Subjects diagnosed to have CRPS by their treating physicians provided information through a questionnaire posted at the Reflex Sympathetic Dystrophy Syndrome Association of America (RSDSA) website. CRPS patients were invited to participate in the survey, hosted for 6 months from October 2004 to February 2005 (www.rsdsa.org). Reminders were sent through e-mail to members of RSDSA encouraging individuals to participate in the study. The 75-question survey was guided by gaps in the epidemiology of CRPS and a list of e-queries to the RSDSA website during 2 prior years. METHODS Subjects diagnosed to have CRPS by their treating physicians provided information through a questionnaire posted at the Reflex Sympathetic Dystrophy Syndrome Association of America (RSDSA) website. CRPS patients were invited to participate in the survey, hosted for 6 months from October 2004 to February 2005 (www.rsdsa.org). Reminders were sent through e-mail to members of RSDSA encouraging individuals to participate in the study. The 75-question survey was guided by gaps in the epidemiology of CRPS and a list of e-queries to the RSDSA website during 2 prior years. Diagnosis/Treatment/Employment Physicians making the initial diagnosis Orthopedic surgeons 32% Pain specialists 19% Diagnosis made based on Clinical examination 45.7% X-rays 34.7% Bone scan 35.4% MRI 35.3% Sympathetic nerve blocks 46.4% Pain descriptors at the disease onset Burning 83% Sensitive to touch 80%, Sharp 69% Shooting 57% Aching 56% Common drugs used to treat pain NSAIDs 63% Gabapentin 47%, Hydrocodone 45% Oxycodone 39%, Cox-2 Inhibitors 38% Tramadol 37% Morphine 29% Interventional therapies- Nerve blocks 68% Spinal cord stimulation 5% Sympathectomy 6% Physical therapy 76% Counseling 37% Work Work-related Injury 41% Workmens Compensation 30.4% Pain interfered with work 93% Present employment status Disabled 60% Full-time employed 16% Part-time employed 6% Diagnosis/Treatment/Employment Physicians making the initial diagnosis Orthopedic surgeons 32% Pain specialists 19% Diagnosis made based on Clinical examination 45.7% X-rays 34.7% Bone scan 35.4% MRI 35.3% Sympathetic nerve blocks 46.4% Pain descriptors at the disease onset Burning 83% Sensitive to touch 80%, Sharp 69% Shooting 57% Aching 56% Common drugs used to treat pain NSAIDs 63% Gabapentin 47%, Hydrocodone 45% Oxycodone 39%, Cox-2 Inhibitors 38% Tramadol 37% Morphine 29% Interventional therapies- Nerve blocks 68% Spinal cord stimulation 5% Sympathectomy 6% Physical therapy 76% Counseling 37% Work Work-related Injury 41% Workmens Compensation 30.4% Pain interfered with work 93% Present employment status Disabled 60% Full-time employed 16% Part-time employed 6% Demographics of study patients N = 1359 Supported by a grant from RSDSA Supported by a grant from RSDSA Hx of remission 21.3% Currently in remission 18.3% Course of disease California 9.3% Pennsylvania 8.6% Florida 7.9% Main regions ( states) Read more on the site... Hope |
||
![]() |
![]() |
![]() |
#2 | |||
|
||||
Senior Member
|
Dear Hope -
Thank you for posting this. It was my understanding that the primary thrust of RSD work at Johns Hopkins was through their pain medicine program within the Department of Anesthesiology and this seems to bear that out. Mind you, this is interesting information, especially some of the data regarding disability. But, if you put it another way, it doesn't seem like Johns Hopkins is a place where they are doing much heavy lifting right now in terms of actual research on the underlying causes and non-palliative treatment of this illness, outside of Dr. Ursula Wesselmann's work on female pelvic pain issues. I had put in a much longer response to your post, concerning my recent inability to get a neuro-immunological workup for RSD at Johns Hopkins, when I realized that it was duplicative of threads I put up just a few weeks ago, see, e.g. http://neurotalk.psychcentral.com/sh...=Johns+Hopkins. One pertainent point I forgotten to mention earlier was that I was indeed offered of referral to their pain management group, but that we agreed that there would be little point in doing that if I was already under the care of a board certified anesthesiologist, and happy with the care that I was receiving in that regard, which I am. (Nice to have these search functions available on the web-page so that a memory challenged individual such myself can occasionally avoid making a complete fool of said-same-self.) Mike p.s. And compliments to Jim Broatch for his participation in the study as well. Last edited by fmichael; 12-12-2006 at 02:05 AM. |
|||
![]() |
![]() |
Reply |
|
|
![]() |
||||
Thread | Forum | |||
a long way to go to come back without any testing, my trip to Johns Hopkins | Reflex Sympathetic Dystrophy (RSD and CRPS) | |||
Teriflunomide: results of an open-label 144-week extension study | Multiple Sclerosis | |||
Positive Results of Phase 3 Study of Fampridine-SR on walking | Multiple Sclerosis | |||
Can a vitamin alleviate MS? Interesting study | Multiple Sclerosis |