It's a common tale, some catastrophe happens and then everything seems impossible. It's okay to feel sorry about how life changes, but it doesn't mean we can't have achievable goals. I laughed when "The Bucket List" movie came out because I set up a Dream list after I came home from the hospital. I've not accomplished everything on the list; but I've made a an indent in the Dream List and in fact have even added to the list. Some of the goals have been life time dreams that I may not achieve, but it gives me something to strive towards. Some goals may need input from the medical field, but I believe in miracles so no matter what I may make those goals. Because things can change so fast, its made it more important to not just stuff the list away in a drawer but to keep in where I see it to keep the dreams alive and to judge how far I've come in order to make the dreams a realisty. So don't stop dreaming, hoping.

Hi Jennelle,
Thank you for sharing your pain and deepest desire-having a child. It's tough having all of this thrown on you so fast. We all were so shocked at each of our diagnosis I'm sure, and then even more when we found out what RSD and then even more when it spread etc.
This is a wonderful group of dear RSDers who really care and want to be there for one another in all of our trials-sharing whatever we know that might help. There are several Moms on here that had children while having RSD. It seems many of them went into remission while pregnant. You could ask the specific question and I know you'll have response or go back to older messages and read about different ones. I'm sure some might PM you and share phone numbers where you could talk in person. (on the phone)
Jennelle, you were injured on the job- you paid for WC insurance. They don't have a right to delay your treatment and compromise a possible remission. ''you get to pick one limb" Have you thought of hiring an attorney that specializes in WC cases. You have a right to life long medical care and compensation. This is a progressive disorder, with no cure. The treatment and medications are expensive. The unknown future of further possible complication is unknown. My daughter is a court reporter dealing with these type of cases dailey, including RSD. I never know any names or details, she never knows who cases turn out because she does pretrial depositions. But I know from my mothers early death and our medical malpractice case, it's good to get a very good attorney(usually from out of town-larger city) where the attorneys don't play golf together. There are others on the forum that are going thru this that know more about it.
I was married 12 years when we settled down to have a family. I was 31 and have never regretted for a minute the miracle of birth. She was breech and had c-section-no family to help-mom had already died at 46 and dad was ill and only lived a year after she was born. I do regret not having more children. 17 years later got RSD. But I'm grateful for the years we had together with good health. Because my daughter and I were so close, this has been extremely hard on her. We played ten nis nearly every day, snow skiied water skiied aerobics, traveled. Everything just came to a screeching halt. This is so hard on the marriage mates and families. I know counseling has really helped me. It's been 1 3 years now and full body.
Hope you get a knowledgeable DR. that you are confident in. My Dr. for the past 5 years has been wonderful. I attribute my emotional health mental stability and physical health to his knowledge. He is a Neurologist, Psychiatrist and Pharmacologist. I'm mobile because of him. He is building a clinic with HBOT and I'm going to try HBOT. My dailey jerks electric jolts, spasms have stopped thru medication and then we gradually went off after 4 years and have only had a couple episodes. Swimming has really helped me keep mobile. We live in Arizona which is better than Oregon for me. Got in RSD in Oregon day after surgery.
Please know we all care what you are going thru. READ READ READ and knowledge is power. It's wonderful you have found us, and you are right everyone on here cares and truly understand what we go thru. Hope you get some answers. Have you had physical therapy massage therapy. I was freed from totally both shoulders being frozen from RSD to full use from therapy and swimming. One hand is crippled, Have you gone thru desensitization? Will be thinking of you. Please let us know how you are. Hugs,loretta:)

new docs
 

the pain clinic is supposed to be the ones in the know with the latest treatments so we will see. I have been putting it off but just got a date to meet with a lawyer. thanks for your concern!
Jennelle

You're welcome. I've have so many episodes of total despair since getting sick! For the most part, the people on this board, my husband, my PT and a few of my friends have helped keep me sane. And, of course, my dear sweet little dog who faithfully walks with me at least 3 or so miles every day. It's just so crazy!! I can SO sympathize with you.

My problem for well over a year was that no one believed in my pain, and two of the "supposed" best docs in RI messed me up with a debridement surgery, aggressive PT, repeated icing, and over 30 trigger poing injections. I think I probably had RSD for at least a year before I was diagnosed. I was in so much pain it's amazing that I didn't lose my mind.

My doctors in Boston told me last Monday that they were going to submit my case to a pain clinic where ketamine is administered. But today is Thursday and I haven't heard anything yet, so I'm getting nervous that perhaps they aren't going to accept me. I started taking methodone a week ago for pain. It works really well, but I am so stupid on it! I definately can't take it forever and continue to work. If I could get the ketamine I could wean myself off of ALL my meds. How cool would that be?

Take care, Sandy

P. S. If you read some of the old posts here you'll see where it's reported that for some pregnancy puts their RSD into remission.