Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-13-2009, 11:20 PM #1
baseballfan baseballfan is offline
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Angry RSD has spread

Hi All,

I have enjoyed reading all your posts and responses. This site and place has been really helpful to me. I was diagnoses with RSD in my left foot 4/8/09.
Saw my pain doc today 5/13/09 and the RSD has spread to my left hand and arm. Also really bummed, because I have to take my wedding ring and engagement ring off when the fingers on my hand aren't so swelled. All of you have a nice day.

Kate
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Old 05-13-2009, 11:46 PM #2
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kate

i am so sorry to hear that.. i also cant wear my wedding ring or for that fact any jewelry since rsd ...

hang in there hun

carrie
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hope this finds all in less pain
.



rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,,




please check out our website to help bring awareness to RSD!


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Old 06-02-2009, 04:54 AM #3
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Originally Posted by angelrsd View Post
kate

i am so sorry to hear that.. i also cant wear my wedding ring or for that fact any jewelry since rsd ...

hang in there hun

carrie

Hi carrie,

Thanks. Hope you feel better soon from your block.

Kate
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Old 05-13-2009, 11:58 PM #4
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Quote:
Originally Posted by baseballfan View Post
Hi All,

I have enjoyed reading all your posts and responses. This site and place has been really helpful to me. I was diagnoses with RSD in my left foot 4/8/09.
Saw my pain doc today 5/13/09 and the RSD has spread to my left hand and arm. Also really bummed, because I have to take my wedding ring and engagement ring off when the fingers on my hand aren't so swelled. All of you have a nice day.

Kate



Kate,
It's gonna be alright!
Are you still in love?
Did you or he fall in love, for to have rings?
My "guess" would be "No".

You can run your "ring" hand under cold water, or ice it, (see my other post just a bit earlier), and well, your jewelry will become something really "super special" to you.
It's up to You, to think of it in a positive way!
(I'd bet you find another way to wear it!)

You know Kate,
here I am.
Talking about your Jewelry.

Yet, I don't even know your Fiancé's name!?

Would you like to tell us all?
We'd All Be Honored!

(Maybe almost as much as seeing that jewelry?)


Pete
asb
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Old 06-02-2009, 04:57 AM #5
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Quote:
Originally Posted by AintSoBad View Post
Kate,
It's gonna be alright!
Are you still in love?
Did you or he fall in love, for to have rings?
My "guess" would be "No".

You can run your "ring" hand under cold water, or ice it, (see my other post just a bit earlier), and well, your jewelry will become something really "super special" to you.
It's up to You, to think of it in a positive way!
(I'd bet you find another way to wear it!)

You know Kate,
here I am.
Talking about your Jewelry.

Yet, I don't even know your Fiancé's name!?

Would you like to tell us all?
We'd All Be Honored!

(Maybe almost as much as seeing that jewelry?)


Pete
asb

Hi Pete,

Thanks for responding. My husbands name is Steve and we will be married for 8 years this Oct. 2009. I am going to take my rings and wear them around my neck on a chain.

Kate
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Old 05-14-2009, 12:21 AM #6
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Hi Kate,
I'm sorry you have had spread in your hand and arm. Are you in physical therapy?
It's really important to get treatment early, it's the best and usually the only time for possible remission. Does your Dr. have a plan for you? Our limbs can permanently lock up without treatment. So important to keep moving, massage therapy is also very good along with p.t. I've also used swimming as a way to keep from freezing up. I've had RSD 13 years now and full body. Only have left hand partially froze up like a claw. Am grateful I stayed with pt along with desensitizing my limbs. It took time to find a good RSD Dr, but so important.
I miss wearing my wedding rings too and other special rings.
If you live close to a large city, a RSD support group really can be a wealth of encouragement and information. We have guest speakers that are Drs. Pharmacists, etc and I've found a lot of coping skills here on the NT and local group. You can find location and phone number on the internet thru RSDSA by giving you zip code. Take care, loretta
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Old 06-02-2009, 05:00 AM #7
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Quote:
Originally Posted by loretta View Post
Hi Kate,
I'm sorry you have had spread in your hand and arm. Are you in physical therapy?
It's really important to get treatment early, it's the best and usually the only time for possible remission. Does your Dr. have a plan for you? Our limbs can permanently lock up without treatment. So important to keep moving, massage therapy is also very good along with p.t. I've also used swimming as a way to keep from freezing up. I've had RSD 13 years now and full body. Only have left hand partially froze up like a claw. Am grateful I stayed with pt along with desensitizing my limbs. It took time to find a good RSD Dr, but so important.
I miss wearing my wedding rings too and other special rings.
If you live close to a large city, a RSD support group really can be a wealth of encouragement and information. We have guest speakers that are Drs. Pharmacists, etc and I've found a lot of coping skills here on the NT and local group. You can find location and phone number on the internet thru RSDSA by giving you zip code. Take care, loretta
Hi Lorerta,

No I am not in any pt. I am waiting for the insurance company to approve a sympathetic nerve block. Yes I live by a large city and my psych doc gave me a list of RSD groups that meet in my area. thanks

Kate
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Old 05-14-2009, 12:30 AM #8
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Heart sympathize

I can totally sympathize it seems that lately I have nothing but spreads...started in left arm then right now legs....I too have to take off my ring and it is like a slap in the face at times because you feel like something is always missing....note to self find a safe place you ALWAYS put it in I have had some scares. I know that spreads can be disheartening and also depressing. I felt like I just mastered my arm when bam...spread. I feel for you and hope that you can get help with it soon. Make sure to start your desensitization routine and pt/ot asap. The sooner the better. I put compression bandages on as soon as I know I spread and it desensitizes me so well the only place I am hypersensitive is where they don't cover. It hurts a lot at first for a couple weeks and then I found it gave me freedom...to wear clothes I want...to have someone touch my arm...still can't have them pat me but light touch doesn't send me through the roof. Know that you are cared for....everyone who has spread feels for you i am sure. There is still hope....it takes adjustment but it will happen if you try.
lots of love and positive thoughts your way,
Jennelle



Quote:
Originally Posted by baseballfan View Post
Hi All,

I have enjoyed reading all your posts and responses. This site and place has been really helpful to me. I was diagnoses with RSD in my left foot 4/8/09.
Saw my pain doc today 5/13/09 and the RSD has spread to my left hand and arm. Also really bummed, because I have to take my wedding ring and engagement ring off when the fingers on my hand aren't so swelled. All of you have a nice day.

Kate
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Dew58 (05-14-2009)
Old 06-02-2009, 05:02 AM #9
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Quote:
Originally Posted by Jennelle View Post
I can totally sympathize it seems that lately I have nothing but spreads...started in left arm then right now legs....I too have to take off my ring and it is like a slap in the face at times because you feel like something is always missing....note to self find a safe place you ALWAYS put it in I have had some scares. I know that spreads can be disheartening and also depressing. I felt like I just mastered my arm when bam...spread. I feel for you and hope that you can get help with it soon. Make sure to start your desensitization routine and pt/ot asap. The sooner the better. I put compression bandages on as soon as I know I spread and it desensitizes me so well the only place I am hypersensitive is where they don't cover. It hurts a lot at first for a couple weeks and then I found it gave me freedom...to wear clothes I want...to have someone touch my arm...still can't have them pat me but light touch doesn't send me through the roof. Know that you are cared for....everyone who has spread feels for you i am sure. There is still hope....it takes adjustment but it will happen if you try.
lots of love and positive thoughts your way,
Jennelle
Hi Jenelle,

Thanks for understanding. We all have this going for us faith, hope, and love.

Kate
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Old 05-14-2009, 12:34 AM #10
Jennelle Jennelle is offline
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Heart one more tip

I have seen many people in my profession who can't wear their rings all the time wear it on a chain around their neck. You could still have it on. Plus I don't know how your foot is but i only swell with flares...you may still be able to wear it at times.
Jennelle

Quote:
Originally Posted by baseballfan View Post
Hi All,

I have enjoyed reading all your posts and responses. This site and place has been really helpful to me. I was diagnoses with RSD in my left foot 4/8/09.
Saw my pain doc today 5/13/09 and the RSD has spread to my left hand and arm. Also really bummed, because I have to take my wedding ring and engagement ring off when the fingers on my hand aren't so swelled. All of you have a nice day.

Kate
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