AJ, I also wanted to welcome you to this loving and caring group! Even if you are newly diagnosed,we are all overwhelmed at most times with this misunderstood dx! I have had RSD for about 7 years now. Which started from a simple surgery. I had an operation for billaterl hammertoe's. The surgeon cut thru the nerve on my small L toe. Now I am full body RSD. Like everyone else said ask as much as you can and read alot! I was just in the hospital for a major flair up for about 3 weeks. I also cannot believe how many Dr's and nurses did not even know what RSD was! I actually was so sick of trying to tell every one about it I fianally told them to put in there cumputer(What is RSD?)So,yes you are right this is so misunderstood! Well hang in there ad remember we are all here for you! Breezy55