Thank you for the advice!

I'm sory to hear that you feel faint sometimes! I always do what you mentioned when you feel faint. I tend to hold onto the nearest thing near me. I felt really faint yesterday again when I got out of the bath but thankfully, I managed to sit down and have a sugary drink before I had chance to faint.

I'm not sure when I will be admitted into hospital at the moment. I have been in hospital in London for 5 weeks undergoing intense physical therapy so know how hard it is. My PT's told me that when I get admitted, I will be able to go home on a night if I want unless I need any other treatments as the hospital is only about an hour away so hopefully that should help!!

When I was admitted into hospital in London, I took my cell phone and laptop and don't know what I would have done without it! It helped soo much to be able to keep in touch with my friends and family and come here for support whenever I needed it.

Thanks again for the advice!

Alison,

There are some references on fainting and CRPS. Here are two, but I am sure there are many more:

http://books.google.com/books?id=hcz...esult&resnum=5



http://74.125.155.132/search?q=cache...&ct=clnk&gl=us

Ali, I was just wondering if u are on cymbalta, i had a bad reaction, to something this last weekend and my blood pressure was 220/110?? Just wondering because I have felt like fainting or passing out myself??

Thanks. I'm not on any medications at the moment other than Ketamine when I am in a really bad pain flare as none of the meds that I tried really helped me so I know the fainting isn't from the meds.

I am still feeling dizzy, especially when I go from sitting to standing. I will hopefully have an appt with my PTs next week so will hopefully be able to discuss things further with them then.

I'm sorry you had to deal with the high Blood Pressure also! I hope you are feeling better now!

I was so relieved to read this. I was recently diagnosed with RSD (Im only 7-1/2 weeks along).
I have had 2 near fainting spells. The first time I thought I was just dehydrated or something. That was before I knew I had RSD. After the 2nd one within the same week, I knew this was something more than just being dehydrated. I have fainted before in my life and I know what it feels like. This was a little different in 1) I never actually fainted...just felt like I was going to faint for an hour or so. 2) I never got the cold sweat like I have when I fainted before. 3) this really caught my attention when you said this...I felt too weak to even speak.

The person I was with was trying to talk to me and it was if I couldn't respond to them. It felt like it took all the energy I had to mumble one word. I too was very pale. I felt very weak and like I had to lay down immediately. Even laying for 10min doesnt rid the feeling. I felt this way for about an hour and was out of it for the rest of the day. I was extremly tired for the test of the day and felt sorta disoriented. I was driving home about an hour after one episode and was taking wrong turns when i know the way home. I know this HAS to be a result of my RSD since I have never had this kind of fainting spells in my life before.

The other times I have fainted in my life (pre-RSD) there was always a reason....dentist breaking a drill bit off in my gums), watching my dads nurse poke his hand with a needle for 30 minutes trying to hit a vein. These recent episodes were not brought on by any unusual circumstances. I read on wikapedia's description of RSD that it mentions that RSD patients infrequently have fainting spells.

I have also read that it happens more with people that have lower extremity RSD vs upper. I would really like to know more about fainting with RSD. I am worried about when it may occur next and hopefully not while I am out driving or something. I would like to know what can bring on these episodes. If anyone has any more info on this, it would be greatly appreciated. I told my nuerologist and she says its not related, I know it is.


QUOTE=ali12;512804]Hi guys,

I'm not sure if I posted about this before and can't seem to find any posts on it so thought I would repost.

I just wondered whether any of you have actually fainted because of your RSD?

On Monday, I was getting ready to go to school and got out of the bath tub and after about 5 minutes or so, I started feeling very dizzy. I went outside to try and get a bit of fresh air and my mum saw me and said that I looked really pale and told me to sit down. I was that dizzy that I didn't really know what was happening, I could hear my mum talk to me but couldn't move and it was too much of an effort to try and talk back to her.

I somehow managed to sit down and for a few seconds, everything went blank so I must have passed out for a little bit.

The dizziness lasted for about half an hour and I had to have lots of drinks to try and start feeling better. My mum thought that it was maybe caused by having the bath water too hot but it was pretty cool.

I have been feeling dizzy for the past few days now but have felt dizzy before all of this started to happen. I am OK some of the time and then I just get really dizzy and need to sit down.

I hate my PT session today but couldn't really mention it as the leading PT wasn't there. Her father-in-law passed away suddenly today. I feel really bad for her as she lost her mum and dad at Christmas and now this. I was working with another PT and the Neuro PT who was really nice. They tried putting my leg into the splint again and got me walking a few steps with it on - that hurt a lot!!!

They are still wanting to admit me into hospital to do the inpatient PT. I'm not sure when that will be but they are going to try and arrange it pretty quickly. They want me to try some intense PT before going down the route of Botox which makes a lot of sense to me. They also want to try and get my postural issues sorted as I seem to slouch a lot - the PTs said that my muscles in my back are really big compared to what they should be as I haven't used them that much for a while.

Any feedback on the dizziness and RSD would be greatly appreciated!

Thanks in advance![/QUOTE]

i have been dealing with this since Feb. or March. It sound a little different, most times I am unconscious and can't be roused by anything (and I've heard they have really tried). It has happened a few times at a doc's appointment. Once I coded at a neuro appt. my heart rate has dropped as low as 17, but usually when it happens, it is around 30. One doc wants to try a pacemaker, but I'm waiting to get another opinion on that. I do start feeling just "not right"- it's hard to explain what feels wrong, but approximately 2 hours later, I am unconscious. It happened again last night, it seems to be. Once every 7-10 days. Sometimes I will have it 2 days in a row.

I have a tilt table test, as well as many other tests, and they can't duplicate it with any of the tests. When I know it's going to happen, I get some Gatorade or
Powerade, and get to a bed or couch. I have fallen several times following these episodes, and usually the following AM, my blood pressure is really low. I'm not sure if it is related to my RSD or not. My RSD is usually only the injured leg, but often times it is also the uninjured leg as well.

I also get very pale before it happens and have been sent to the hospital several times because of it. The emergency docs always think it's an overdose, so they always test for that- always comes up negative, and I get sent to the ICU. None of my docs have come up with a reason for it. I think most times it's unnecessary to go to the hospital, if I just stay in a safe place sitting or lying down, it eventually ends.

I do have an implanted device that I can activate when my heart rate gets low and it automatically detects anything under 30 and asystolic events. I have had several asystoles where my heart stops completely for 4-10 seconds. My neurologist was useless, and when I coded in his office, I found out that he never bothered checking on me and referred me to someone else in his office.

I hope everyone who is dealing with this is getting checked out by a doc and is doing ok. The original post was several years ago, so I hope things have improved for the original poster (sorry I forgot the name of the original poster) but if you read this, I hope things have improved as well.

Wow...that's very scary. My heart rate jumps around a lot...but in my case it usually gets very HIGH...not low. But then again...they've never taken my HR when I had a fainting episode...so who knows?

I am appalled at how useless your neuro was when you coded in his office. Sounds like my pain specialist when my heart rate was 162 in his office and I was in a lot of pain. He just looked at me and my boyfriend's mom and said he doesn't deal with things like elevated heart rate and if it was that bad I should go to the ER. SERIOUSLY?! My HR was high because of the elevated pain and my RSD...which are things he DOES treat...or so I thought anyway. That was my last appointment with him...I could not stand seeing a doctor who cared so little about my health when that's what his JOB is. UGH! I hope you get much better treatment in the future from your neuro (or that you switched).

I have many fainting spells to where iam walking and then I just fall flat on my back, the doctors didnt know why. Then they found out I wasnt getting enough oxygeon to my brain, I was then diagnosed with sarcoidosis in the lung and liver so they are like tumors in the lungs and liver. With it in the liver it was keeping my oxygeon low so now I have an oxygeon tank. But I get dizzy spells to but no one knows the answer to that.