I have had rsd for 7 yrs now and it took docs 3 yrs to even figure out that is what I had. Now that I have it almost all docs want to rid me like a piece of trash because I have a lawsuit and they don't want to be part of that so of coarse they want to take the easy way out. All docs I have seen have all told me that it cannot spread so I sit hear with my dominent hand which it started in all the way up to my neck, my right hand all the way up to my neck, my lower legs and feet all in pain and weakness but no dx. The docs think it is all in my head and that it can't be rsd cause rsd can't spread. My legs are so weak I need a crutch made special due to me not being able to put weight on my hands to give me stability cause of me falling due to the weakness. Just wonderful huh? I hate it that the docs won't dx it. I already have a feeling it is rsd but they won't say it cause they don't think that rsd can spread. That just sucks.

Sincerely,
Tracy

Tracy,
It totally sux.

I hate to say, but I don't think you've found the right doctors yet.

A 'Good doctor' will have your best interests at heart, and put them first.
His loyalty will be to you.

Keep looking.

A Good doctor, will be happy to testify for you. (They get paid for that, you know, your lawyer pays them, from your settlement).
This is why I always push University Hospitals, find the "chief of neurology". His C.V. is thick (Curriculum Vitae). That's his "experience",
and the docs with the "biggest" get believed the most. They make ins. companies cry.

Not to worry, these things take time.
As I'm living proof.
I didn't write what I did to brag.
But, to give some hope to folks like you!
It can be done!
It's a difficult job. But, You Must Do It!
What's the option?
Crying?

Yes, we all Cry.
Then, come to a point where we can't Cry No More, and pull ourselves together, and get at it!
Keep Prayin', and find the right doctor(s).

Read along in this place, it's full of "clues"!

I wish you the best! :hug:

Pete
Asb