Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-24-2009, 12:16 PM #1
dmarie dmarie is offline
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Default So glad to have found this site.

I guess I did this backwards and should have introduced myself first. I asked a couple of questions and I'm very grateful for the response, realized I should introduce myself too.

I live in Washington State and have had RSD for almost 4 years now. I developed RSD from a routine blood draw, venipuncture RSD. It's in my right arm, shoulder, neck and face, but moving to my left arm. I'm on permanent disability, and just trying to stay positive. I wish I would have found this website years ago, I just can't get over how amazing it is that so many people with RSD have come together and help each other. Plus it's nice to relate to another RSD'er. The couple people I've chatted with have been so kind and I look forward to getting to know others. Thank you sooo much.
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"Thanks for this!" says:
AintSoBad (05-24-2009), CRPSbe (05-26-2009), Dew58 (05-25-2009), loretta (05-27-2009), Mslday (05-25-2009)

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Old 05-25-2009, 08:37 AM #2
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Smile nice to meet you

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A Positive Attitude Will Assist Me Toward An Active Life, Once Again
.

WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
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Old 05-25-2009, 07:34 PM #3
RSDLynnie RSDLynnie is offline
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Default I'm relatively new...

I'm relatively new to the site also and the best thing is the feeling of not being alone and that someone really understands how chrontic, acutee pain affects us as a total person. When I broke my leg almost 5 years ago, totally non-weight bearing and alone mybrokeleg.com was a life-line and inf act was where I first heard about RSD. I feel like I now have another life-line and no longer alone in the struggle. I lived in Seattle for 5 years and I know you have to be looking forward to the next several months before the wet season sets in again. I rember the bumper stickers: "People in Seattle don't tan, just rust" and "Seattle rain festval, Sept 1 to June 1." I'm now in South Carolina and feel bad that I complain that it's raining here -- especially after the horrible drought we've had the last 4 years. Love Seattle but not sure I could deal with the increased pain the rain causes. Bravo to you!! Lynnie "ONE MOMENT CAN CHANGE EVERYTHING!"

Last edited by RSDLynnie; 05-25-2009 at 07:37 PM. Reason: mis-spelling/words
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Old 05-26-2009, 12:21 AM #4
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sorry that i missed your entrance have been off a couple days
welcome to the group. i have had RSd for 11 yrs i was 16 when i got RSD and was from car accident . i hope that you have as many pain free days as possible and jump right in we dont bite .. well sometimes we do LOL

carrie
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hope this finds all in less pain
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rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,,




please check out our website to help bring awareness to RSD!


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Old 05-26-2009, 05:40 AM #5
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Welcome to the forum!
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All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Old 05-26-2009, 05:52 AM #6
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Welcome and I am sorry about your pain and rsd. This is such a warm and educated community. Like a little family. If you want or anyone else want anothers email buddy I am here too. Hang in there and try to hold on to hope for better times
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Old 05-27-2009, 03:20 AM #7
loretta loretta is offline
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Quote:
Originally Posted by dmarie View Post
I guess I did this backwards and should have introduced myself first. I asked a couple of questions and I'm very grateful for the response, realized I should introduce myself too.

I live in Washington State and have had RSD for almost 4 years now. I developed RSD from a routine blood draw, venipuncture RSD. It's in my right arm, shoulder, neck and face, but moving to my left arm. I'm on permanent disability, and just trying to stay positive. I wish I would have found this website years ago, I just can't get over how amazing it is that so many people with RSD have come together and help each other. Plus it's nice to relate to another RSD'er. The couple people I've chatted with have been so kind and I look forward to getting to know others. Thank you sooo much.
Hi dmarie, It's OK honest, most of have entered the group in various ways. We are so glad to have you. I was thinking of you last Thursday when I had my blood draw. I asked for a butterfly needle (smaller-used for children) and the senior nurse. was scared, partly because of your story and I had already know of others getting RSD from blood draw.
It is comforting isn't it to know and be known by others who truly understand what most people, including doctors have never heard of and have difficulting relating to what we go thru. They still love us, but find it difficult to understand.
Take care, and hugs, loretta
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