Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-22-2009, 02:39 PM #1
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Unhappy Doctors...cant live with and cant live without them (sigh)

Hi all!! Sorry I havent been around lately, things have been upside down at my house now for over 3 months. It all started when the hot water line broke under the house, and boy has it been a roller coaster ride with all the different contractors, insurance adjuster, and inconvenience of it all.

Hopefully today will be the last of it after the painter leaves this afternoon

Today I had a run in with another doctor....jeesh! I have been going everyday for a stretch on the IDD therapy machine, and it has been making my hip hurt. It occurred to me that it could be hurting me more than I know because I have osteopenia in that hip, and RSD in the hip and leg.

So I asked the good doctor if this machine could be dangerous for me to use. When I said I have osteopenia he looked at me in disbelief, and asked "how do you know you have osteopenia?". What a stupid question, and I wanted to give him a sarcastic answer, but told him that the scan I had showed it. Then he says "how do you know it was the right test?" So then he makes me explain every detail so he will believe I am not fabricating the whole thing. I get so tired of these doctors acting like im some kind of nincompoop.

Then he says after I finish the 10 more treatments he will have another scan done. I kinda got short with him and said that would be a little late to find out of these treatments are doing damage, and why dont you believe me when I say it is hurting me???

Then he goes into a lecture on reducing the pain meds because I have had 10 treatments so far, and should be getting better not worse. Then I tell him I would like to know what damage has been done if any before I go for more of these spine stretching treatments, and what in the world does reducing the pain meds have to do with this conversation? He isnt even the doctor that is prescribing my meds anyways

That is when he started insinuating that im a drug seeking addict.
I mentioned that the back isnt the only thing I have wrong, I also have RSD and that is what caused the osteopenia. Then he says "who says you have RSD?". That is when I about lost it, wanted to bang my cane across his thick skull. But instead just thanked him and left.

My back is jacked up pretty bad, and this treatment is the option I took instead of back surgery. In my mind the injured back is enough of a problem for anything he might prescribe never mind the RSD. If your bad enough for surgery it should say something to this moron about any pain I might be in.

Now I am in a quandry in what direction to go in, and am leaning towards never steppiing foot in that office again.

On a lighter note, I found a power chair lift that mounts inside of my van. It is wonderful!! The only draw back is that I lose the 3rd row seating, but I can live with that because of the freedom this lift is giving me. I am sooo stoked im ready for a road trip LOL.

Hope everyone is doing well, and now that my house is almost put back together I should be able to check in more often.
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Old 05-22-2009, 02:53 PM #2
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Default Hi Allen,

I'm glad to see you back.

As far as that Dr., I wouldn't step foot in his office again. If you know he is making you worse then it's so.

My PT tells me if I come home hurting from him working on me then we know not to do what he did to make it worse again. What he is doing is trying to figure out exactly is going on with me. He thinks my neck and thoracic spine is messed up but he's trying to work on everything else to calm down what he can to seperate the problems. It's working too.

As far as the back, could you look for a good Physical Therapist that will try and help with it?

Glad you are back.

Ada
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Old 05-22-2009, 03:02 PM #3
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Allen,
Glad your house is back together!
(I'm a Master plumber, so I know what that can be, Seeing it so many times).

But, I'm glad that you're close to deciding not to go back there, because, a third into your note, I came to that conclusion!
I hope you don't.

The silly fool, didn't even look at your records enough to see your total dx, and then, he's asking you? It sounded to me as if he's afraid of liability. I'm sure that's not what you're after, just some pain relief.
But, to insinuate you are drug seeking is LOW!

Who sent you to this fool?
If it was your doctor, I'd be on the phone with him/her!

After ten more treatments he'll have another scan done? I'd have said, "No ya won't!"
Seriously, who'd be the fool if you did go back there? You were a Gentleman, with the way you left. But now, you're "leaning" the right way, imho.

There are too many good PT's around. Caring people.
Obviously, this man is not one of those.

Maybe find a good Chiropractor!

I wish you the best!

Pete
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Old 05-22-2009, 04:48 PM #4
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Just my opinion but...... if you get the wrong "vibe" from this particular dr, then don't go back. Personally, from what you've told me about him/her I would not step foot in his/her office again. If you can, I'd find someone else.....

Hang in there !
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Old 05-22-2009, 06:18 PM #5
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Default hi there...



Congrats on your power chair lift
Congrats on getting your home back in order

I am sorry that you had that experience with the "lost" doctor. You know what the answer to your question is..look at your post. The answer is screaming at you.
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WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
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Old 05-22-2009, 06:35 PM #6
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Good to see ya again Allen!

I vote with everyone else for not going within 10 miles of that "doctor" again!! What an (insert some bad words here)!! LOL

Glad your house is finally getting back to/is now normal again. What a thing to have happen. Hopefully nothing that bad will happen ever again. :-)

Hugs,

Karen
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Old 05-23-2009, 06:33 AM #7
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Didn't he ask before you started this spinal work what was wrong and why you had the cane? Maybe that's why he became difficult as these are probably things he needed to know beforehand, like the RSD and the osteopenia.
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Work related (car) accident September 21, 1995, consequences:
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- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Old 05-23-2009, 06:47 AM #8
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I am sorry I know how bad doctor apts are in addition to being in pain. From the million docs I have seen what I feel is key and hard is to have open communication and a game plan with options. I know it can be hard to start over but if I were you since you are not happy I would for sure go for another opinion. This doctor does not sound like he has a lot of knowledge with what is going on with you and I wonder if that is why he questioned. Sometimes I think if a doc does not know instead of saying that he turns it around on the patient. Hang in there and I hope you feel better. On a side note I would encourage you to keep up with your bone density tests. I had osteopenia to start and now have osteoporosis.
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Old 05-23-2009, 02:33 PM #9
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Well I made an impromptu appointment with my primary care doc, with whom I have an excellent relationship with thank goodness. After I told him about this guy he told me a horror story about this doctor and his wife.

They thought his wife had MS, and was seeing this doctor to find out. This guy ran all the tests and told them there was no MS, but his wife kept getting worse. So they went to another doctor, and when her medical files were transferred over they found out it was positive for MS!!

So she lost a year of potential treatment screwing around with this idiot! He said he was livid over this, and I dont blame him. He did give me the name of a chiro to see.

Knowing what I know now makes sense on why this doctor was a complete jerk.....he just cant help it LOL!

Here is a pic of the lift in action, man it gives sooo much freedom!!!! The only draw back I can find is the rattling it does LOL. I am used to the quiet ride, so it will take a while for me to get used to these new sounds in the car. At least I hope I can get used to them lol.

Hope you all are having a fine Memorial day weekend
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Old 05-23-2009, 10:00 PM #10
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hey allen glad to see you around again.

on the back surgery note my husband had to have fusion of L5-s1 in oct o7 and since then he has had horrible pain .. if you can believe this he is having to go to my pain management doc in july because his neurosurgeon told him what do you want me to do !! and no other spine specialist here in town would see him because there wasnt anything surgeical that they could do they said. never mind you that they havent seen him.. as he says if he didnt have to of had it he never would of!!


im glad that the house is getting back together ..

im sorry that the doc was a you know what . !! ihate those docs they think they know it all and they dont know diddly

hang in there buddy

carrie
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