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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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09-24-2010, 04:13 AM | #1 | ||
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Senior Member
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Try using the private message feature, but I don't know if Denny is still actively posting here.
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. Gee, this looks like a great place to sit and have a picnic with my yummy bone ! |
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"Thanks for this!" says: | eevo61 (08-02-2014) |
08-02-2014, 12:02 AM | #2 | |||
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Hello everyone and welcome to those new members,hope we can help.
I'm curios about the STS machine you guys are talking about,is that similar to TENS units or even SCS, please can anyone respond me ,I had scs and tried tens units with some relief,scs gave me a chance to walk back in a normal shoe with some custom made inserts and ankle brace but I was able to wear shoe after almost two years of ankle another custom made ankle brace and orthopedic surgical shoe , is that different I wonder because I was recommended to add one more scs and I can't handle the surgery for sure this time. I hope you can help me on that. To MJL245 here is a link were you can find some handy information about rsd,hope you can navigate and get a journal to copy all links you get and go back every time you need,welcome and good luck ,Jesika www.rsdsa.org
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05-30-2009, 12:10 AM | #3 | ||
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Mike,
I've been a member of this board for a while and read it periodically, but haven't posted in years. However, I just so happened to be reading the board tonight and felt that I should respond to your question. I have used the Dynatron STS for 5 years and am doing excellent. It has been a hard journey for me, but now I am happy to report that I've only had one flare up this year and it lasted about a week. I can definitely tell a difference when I'm using the machine versus when I miss a day so I know it must have some physiological effects. I cannot really even attempt to explain how the machine works, but all I know is that it has changed my life. When I originally saw Dr. Rhodes, I was unable to attend school because of my RSD and now I am in college over 2000 miles away from home. Like any other treatment for RSD, each person is different so it's hard to know what treatments will work for which person. I definitely think it's well worth the money and the attempt especially if you believe it will work and are willing to stick with the treatment. The machine costs less than the combination of procedures I had before seeing Dr. Rhodes. I also know that he's made great improvements in his technology and treatment strategies since I first started and is very good at customizing the treatment for your symptoms. I think that's one of the things I really like about the Dynatron is that it has many different protocols that can be used for a variety of conditions and settings that can be customized to work best for your body. Dr. Rhodes has had success in treating many different conditions from Parkinson's to MS to diabetes. I would suggest watching the youtube videos he has on his website. Feel free to private message me or post if you have any more specific questions. |
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05-30-2009, 05:26 PM | #4 | ||
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Zebra,
thanks for taking the time to post here. right now my head is real foggy so i dont have any questions but when fogginess goes away i will either post or pm you. thanks again Mike Quote:
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"Thanks for this!" says: | eevo61 (08-01-2014) |
07-23-2014, 04:14 PM | #5 | ||
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Junior Member
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I used the sts dynatronic machine for about six months and unfortunately had no luck i would be willing to sell my machine at a Greatly reduced rate. I have seen this machines work wonders for many. But i do want to warn others it can make You worse. I would not rule out hbot i tried that as well but could not tolerate due to the air pressure. I cannot fly on a plane as well. I have seen it do wonders for swelling and wounds unfortunately i just couldnt tolerate it.
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"Thanks for this!" says: | ALASKA MIKE (07-23-2014), eevo61 (08-02-2014) |
07-23-2014, 06:42 PM | #6 | ||
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Quote:
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Hoping you feel better, ALASKA MIKE ARACHNOIDITIS,CRPStype2/CAUSALGIA since 2004 |
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"Thanks for this!" says: | eevo61 (08-02-2014) |
07-23-2014, 10:08 PM | #7 | ||
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Junior Member
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[QUOTE=ALASKA MIKE;515801]How many of you have read this book and what did you think of the info in the book? I found it very intersesting and a lot of info in this book explains stuff that most other crps/rsd books do not.
Have any of you used this STS machine made by Dynatronic? [ Hi Mike, i am asking for $2,650 for the machine. This includes machine that can work with two people with two different protocols at the same time. It has a charger unit cord system, electrodes, and RSD protocols. I tried about 3-4 treatments each day each an hour or two long everyday for approx. 6 months. At first it did help i had RSD full body including internal organs. I also have Gastroparesis, cyclic vomiting syndrome, and Rsd of the stomach among other things. Nothing had ever helped with my pain. 10 days into treatment my stomach pain went from a ten to a six. I had be forced feed for years due to the extreme abdominal pain caused by eating. After the ten days of treatment i told my mom drive to McDonald's i want an egg and cheese biscuit! Nothing had ever taken away my excruciating RSD pain let alone my RSD stomach pain. After three months my stomach pain came back with a vengeance. The second i started using the machine my sleep became non existent which is the opposite reaction of everyone else i met. my pain gradually got worse and i developed dystonia of the hands from where the leads were placed. I had never met anyone there in Texas who had such a bad reaction. But some had negative side affects. Some patients said it gets worse before it gets better but oh does it get better. A lot said they got their live back and it was a miracle. I just wish i could've been one of them. My pain never did return back to it was before the sts but it was only a matter of time before my rsd was going to spread and was already spreading before the sts machine. I did stopping using the machine and tried it a few weeks after that six months of sts use period. Then again a month later and a few months after that. Then randomly but it never helped after that. I just want to be truthful so you can make a good decision. I have seen many get better a small percentage of us got worse and the majority had success stories i hope you are one of them! |
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"Thanks for this!" says: | eevo61 (08-02-2014) |
08-01-2014, 03:38 PM | #8 | ||
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So sorry for the delayed response. My dad is in the hospital with heart problems again.
That looks like a great price for the sts machine. I will have to pass for now as I am about to try some new meds in my pain pump and I need to know if Im getting side affects from the meds. I know there are different versions of the sts. Is this the older version or newer machine? Its great that it made your stomach feel better for those short weeks. I have the same problem with my stomach. Im like you where you try something and if it does work, it only lasts for a short time. I hope you find something that helps you out down the road and Im sure somebody from here will want to try the sts machine out. Feel better, Mike [QUOTE=Rsdawareness123;1084527] Quote:
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Hoping you feel better, ALASKA MIKE ARACHNOIDITIS,CRPStype2/CAUSALGIA since 2004 |
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"Thanks for this!" says: | eevo61 (08-02-2014) |
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