Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 06-06-2009, 10:09 PM #8
SBOWLING SBOWLING is offline
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SBOWLING SBOWLING is offline
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Quote:
Originally Posted by fmichael View Post
Don't agree that there's a correlation between ego and top universities/hospitals. I've been to a lot of places, including Cedars Sinai, U.S.C. and a neurologist at UCLA here in LA, the Mayo Clinic in Rochester MN, Drexel Univ. College of Medicine in Philadelphia and Johns Hopkins.

Currently, my P.M. is a blessed man who is the chief of Pain Medicine at U.S.C., triple boarded (psychiatry, anesthesiology and pain medicine) and an utterly compassionate human being,

On the other hand, the most egoic man I ever met in my life is a PM doc who left UCLA to set up his own shop; my surmise from what I was told about billing shortly after he left UCLA is that he did so, at least in part, so that he could make more money by refusing to accept insurance reimbursement.

As to the Mayo Clinic and Hopkins, you've got all types. I really think it's a matter of the individual doctor/department. Of course growing up in Rochester, I may have I bias towards the Mayo Clinic, but I have seen wild variations in personality through the years in one department (psychiatry: some adopt ) while I have found others to be consistently aloof (neurology and unfortunately the Division of Pain Medicine), while receiving utterly compassionate care in other departments, including pulmonology, cardiology, and hematology/oncology.

And finally, I doubt that you would find that there are many patients of Robert J. Schwartzman who would give him bad marks for bedside manners. That said, his operation isn't really set up to provide continuing care to those who don't respond to the experimental treatments he has running, but I don't see that as a matter of ego, just efficiency. (Unlike the PM just out of UCLA who declared that I didn't have RSD - about 14 months after I first became ill, and 2 or 3 months after the blocks stopped working at another hospital. because I didn't respond to HIS block.)

Mike
Hello Mike

I love to visit in CA.

Dr S in Philly does have good bedside manners. His only option for treatment is ketamine because that's what his research program is funded for. His knowledge in CRPS is vast. I failed with the ketamine (full body RSD for me). However, he is alway availiable for questions from me or my doctors. He has become a source of knowledge that can translate to managed care (in a way).

Like you I have been to some of the best clinics in North America and I have seen my share of doctors. Some just don't have or want to take the time to get involved with something so complex. I use to hate the term complex, I have grown accustom to it over the years. Some want it to be something they can treat so they treat for anything but CRPS.
We ride an emotional roller coaster with this condition and sometimes the emotions are flared by the frustration over doctors.

Take care,
Sherrie
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AintSoBad (06-07-2009), Dew58 (06-10-2009), fmichael (06-08-2009), SandyRI (06-07-2009)
 


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