Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 01-04-2007, 06:39 PM #71
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i'm hanging in there.... curious threw me a new rope and i managed to get a knot tied...

thank you to everyone...
abbie
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Old 01-04-2007, 06:58 PM #72
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Grin

hey...a knot is a very good thing!!! no slipping out of your hands this time!!
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Old 01-04-2007, 08:36 PM #73
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Default A new rope

with a knot in it!
That is some real good news!

((((((Abaskai))))))

Hang in there
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Old 01-05-2007, 11:42 AM #74
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Quote:
Originally Posted by Abasaki View Post
i'm hanging in there.... curious threw me a new rope and i managed to get a knot tied...

thank you to everyone...
abbie
WAHOOOO!!!!!!!!!!!!!!!!!!!!!!! Hey, Curious, got any more of that thar rope? Seems it works some magic, and we could all use a bit of that! How about sharing!!!

I'm so GLAD to hear some HOPE in your post, Abbie! YEAH!!!!!!!!!!!!!!
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right Side TOS Decompression Surgery 12/2005
RSD Exacerbated after surgery
Still have TOS on left side
RSD On right side, currently in hand, forearm (underside), shoulder, chest, to hollow of throat, and in left hand creeping up into left wrist
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Old 01-05-2007, 12:02 PM #75
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Has any of you ever tried this EFT stuff?

http://www.emofree.com/

I tried it for my RSI years ago {it helped} and just found the link again - it sounds kind of weird but it's has a free tryout that tells how you can do it for your self.
If you can't do the tapping a friend can tap for you.
I didn't do the chanting - just the tapping- and is still helped the RSI.

It might be something to add along with the rope LOL.
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Old 01-05-2007, 12:22 PM #76
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Default Abbie.

I have always described my depression as a well that I am in and when I started going to my PCP he told me the same thing you said. He told me that he would throw me a rope and said if I would hang on to one end he'd hang on to the other and wouldn't let go. That was 8 years ago and he's kept me hanging on.

I do think that's what we need with the depression and don't ever let anyone say that the depression causes the pain. 8 years ago I heard that many of times, mostly not from Drs. though, just other people that thought they had the answers.

The depression with RSD is even more overwelming I believe due to the horrible pain that comes with the RSD. Also don't never say you don't have the depression just because people think it causes the pain. You can have both, no doubt.

I always said I give new meaning to the words major depression. LOL I'm not embaresed to tell people I deal with major depression either. I learned through councelling that if you don't admit to a problem then you can't work on it or solve it.

I do hope you are able to start getting the help you need and don't give up.
It will come in time.

Thanks Curious for the offer, I won't say I won't ever take you up on it either. Here lately, I'm having an even harder time with my loss. I go to town and people start talking about Bill and I just start fighting back tears. I never knew how many people the man knew and they were all crazy about him. He was handome also but he never used that asset just his personality. I do have many friends to talk to but for some reason I just can't do it at this time.

Abbie, you hang in.

Ada
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Old 01-05-2007, 12:30 PM #77
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((((ada)))))

i went through that when my brother passed. it was hard face to face. it helped to have the support online. easier to walk away..wipe a tear..blow a nose...and nobody had to "see" my pain and grief.
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Old 01-05-2007, 02:03 PM #78
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for me it was my grandpa- the Judds had just came out with a hit song in 86 called "Grandpa".

every time it came on the radio for over a year I would start crying!
my grandpa was like a John Wayne hero type to me & my brothers - and a big guy too.
He was a dairy man and a farmer and made a good legacy for his family.
he was the only one who understood how nuts about horses I was- LOL
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Old 01-08-2007, 02:29 PM #79
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Red face All kinds of things help...you just have to find what works for you!

Hi, my name is Michael and I know the cousin of your pain, I see it every moment of the day. I just joined and this is my first post, but I'm not new to RSD. I've had it for seven + years.

I hope you have found some relief from all of the responses to your post. The ones that I read have a lot of love within them!

Aside from all of the meds that I take, there are several things that I do. Maybe one of them will help you.

First, and probably foremost is, I fight through the pain and stay as active as I can. I know, it ain't as easy as it is said, but getting out of that dark room as often as you can will help in so many ways. You will suddenly find yourself concentrating on something other than the pain. You will be doing things that keep that part of you that is "painted with fire" and crushed, mobile. Try to the best of your ability accomplish a task everyday. And the next day, try to do just a little more. Four years ago, it took me close to a year to get out of a wheelchair that I used sometimes and the carts at the stores by making a little progress one day at a time. I still use a cane for balance but I now walk where I go. So please try to do something that will keep you interested.

I still have days that I spend in my room with the shades drawn as most all of us with RSD do. I spend most of my day in the house in the shortest boxers I have found...that's it. My RSD is systemic, resulting from a spinal cord injury in 1999. Another tool I learned early on but didn't use it as I should have is visual imagry. I just started by going to my dark room, relaxing, taking several deep breaths and then think about my favoite place, kyaking in the mangroves in the Florida Keys. If you are not familiar with this psychological method of pain relief, give it a try. After doing it a while you will be able to do it wherever you are, whenever you need it.

Well, I hope this will help you. Something we all have to remember is that we will NEVER be pain free until there is a cure for RSD (I don't like CRPS as my pain is not regional). So, don't be discouraged if you can't reach that goal. When I'm having a 2 or 3 pain level day, I say to myself: I can live with that!

Sincerely.

Michael C

Last edited by Michael C; 01-08-2007 at 02:34 PM. Reason: notice some misspelling
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Old 01-08-2007, 02:37 PM #80
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Red face All kinds of things help...you just have to find what works for you!

Hi, my name is Michael and I know he cousin of your pain, I see it every moment of the day. I just joined and this is my first post, but I'm not new to RSD. I've had it for seven + years.

I hope you have found some relief from all of the responses to your post. The ones that I read have a lot of love within them!

Aside from all of the meds that I take, there are several things that I do. Maybe one of them will help you.

First, and probably formost is, I fight through the pain and stay as active as I can. I know, it ain't as easy as it is said, but getting out of that dark room as often as you can will help in so many ways. You will suddenly find yourself concentrating on something other than the pain. You will be doing things that keep that part of you that is "painted with fire" and crushed, mobile. Try to the best of your ability accomplish a task everyday. And the next day, try to do just a little more. Four years ago, it took me close to a year to get out of a wheelchair that I used sometimes and the carts at the stores by making a little progress one day at a time. I still use a cane for balance but I now walk where I go. So please try to do something that will keep you interested.

I still have days that I spend in my room with the shades drawn as most all of us with RSD do. I spend most of my day in the house in the shortest boxers I have found...that's it. My RSD is systemic, resulting from a spinal cord injury in 1999. Another tool I learned early on but didn't use it as I should have is visual imagry. I just started by going to my dark room, relaxing, taking several deep breaths and then think about my favoite place, kyaking in the mangroves in the Florida Keys. If you are not familiar with this psychological method of pain relief, give it a try. After doing it a while you will be able to do it wherever you are, whenever you need it.

Well, I hope this will help you. Something we all have to remember is that we will NEVER be pain free until there is a cure for RSD (I don't like CRPS as my pain is not regional). So, don't be discouraged if you can't reach that goal. When I'm having a 2 or 3 pain level day, I say to myself: I can live with that!

Sincerely.

Michael C
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