Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 06-17-2009, 10:42 PM #11
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Default Well, that is good news, sorta...


I have a rather less severe case than I read of a lot of you having, and it makes me feel blessed. With that in mind, it is somewhat good news to hear it gets gradually worse. I was bloody concerned it would go wild and just drop kick my ***. Thanks for posting the link, it informed me of the situation going forward, and now I have some answers. Thank you again. Later, Smoke
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Old 06-18-2009, 02:03 AM #12
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Quote:
Originally Posted by Mslday View Post
Schwartzman's redefinition has caught me a bit off guard, perhaps I've been the ostrich with my head in the sand denying the inevitable but I feel a little depressed by this definition. I realize now that there is little hope to stop it in it's tracks before it takes over the rest of my body.

MsL
Hi there. And I beg to offer a different perspective. Unless I'm misreading it, the article stands for the proposition that after the 1 year mark, we may get gradually worse, but most people don't have dramatically negative changes, and may even have partial positive responses to therapies, as I did with Zometa:
. . . the majority demonstrated only moderate increases [in symptoms] with disease duration.
Chin up, please

Mike
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Old 06-18-2009, 10:17 AM #13
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Question

MsL...

Do you want me to put this thread up there for you in the Useful websites sticky? I'll take care of that if you wish.

That way this thread can be found more easily and referenced.
I agree with you that it would be good idea.
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Old 06-18-2009, 04:38 PM #14
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Quote:
Originally Posted by fmichael View Post
Hi there. And I beg to offer a different perspective. Unless I'm misreading it, the article stands for the proposition that after the 1 year mark, we may get gradually worse, but most people don't have dramatically negative changes, and may even have partial positive responses to therapies, as I did with Zometa:
. . . the majority demonstrated only moderate increases [in symptoms] with disease duration.
Chin up, please

Mike
Thanks Mike...I completely missed that and I guess I needed a nudge. I've been under a considerable amount of stress lately as I'm trying to sell our house and I had to put my cat down last week as he became very ill suddenly. It's all taking it's toll on me and my RSD seems to be intensifying along the entire left side of my body. I can't take most of the drugs so I'm left with few options. Thank god I can take some oxycodone as needed. I know I need to do something to lessen my stress but it's hard right now.

Thanks for the group hug!

Mrs D, Thanks for your offer to help with the link, I will do it, I was just a little stunned yesterday as I didn't realize what you were suggesting.

Warm regards to all

MsL

Last edited by Chemar; 06-30-2009 at 11:19 PM. Reason: member requested edit
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Old 06-18-2009, 07:06 PM #15
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Wink

I thought you could word it better than I could! That is the only reason I suggested you do it. I don't have RSD and the history you all do. So I think one of you could do it better than I.

You know, write a little intro before putting this link in there
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