[ali12]

Hi everyone,

I hope all is OK with you all! I just wondered whether anyone has problems with their knee clicking and hurting a lot, especially when you bend it even for a short period of time?

For the past few weeks now, my knee has been hurting a LOT and it feels like something is 'moving' inside it when I bend it (sort of like theres something lose in my knee that moves a lot).

My PT's have been using a splint in PT to try and get my leg into a normal position as it is currently rotated out to the side and I think that could be making things a little worse as my knee has been hurting a lot more since I started using it. The PT's bend my leg up in the air so i'm not sure whether that has made things worse and allowed the muscles to strain or something.

I'm not sure when my next PT session is as my PT is currently on berevment leave but I know if I mention it to her, she will probably say that it is just RSD and not do anything about it.

My nanan got me some anti-inflamitary cream to rub into my knee and it helps a little but my knee is still really painful.

If anyone has any experience with this, I would greatly appreciate your input!

Thanks in advance!

[GalenaFaolan]

If I keep my knees bent too long, it makes me hurt more. As for things moving in there, it's done that for the past 25 years now. LOL It could be related to the splint and pt though. When my knee did it, I had x-rays and found out I didn't have any muscle behind my kneecap like "normal" and it caused my knees to pop out of place all the time. Maybe the doc will do some x-rays to make sure nothing is floating around or have some other damage going on.

Hugs,

Karen

[AintSoBad]

Ali,
I'm No Doctor, but it sounds a bit like 'water on the knee'.
I think your mum is right about the anti inflammatory, although, you might want to try an aspirin.
Until you talk to your doc...!

Hope you feel better dear one!

Your friend, Pete

[Dubious]

Originally Posted by ali12

Hi everyone,

I hope all is OK with you all! I just wondered whether anyone has problems with their knee clicking and hurting a lot, especially when you bend it even for a short period of time?

For the past few weeks now, my knee has been hurting a LOT and it feels like something is 'moving' inside it when I bend it (sort of like theres something lose in my knee that moves a lot).

My PT's have been using a splint in PT to try and get my leg into a normal position as it is currently rotated out to the side and I think that could be making things a little worse as my knee has been hurting a lot more since I started using it. The PT's bend my leg up in the air so i'm not sure whether that has made things worse and allowed the muscles to strain or something.

I'm not sure when my next PT session is as my PT is currently on berevment leave but I know if I mention it to her, she will probably say that it is just RSD and not do anything about it.

My nanan got me some anti-inflamitary cream to rub into my knee and it helps a little but my knee is still really painful.

If anyone has any experience with this, I would greatly appreciate your input!

Thanks in advance!

Yes, I have. It's called patello-femoral syndrome, or in older venacular, chondromalacia patellae. The hallmark is pain and clicking behind the kneecap, worse with stairs and increasing pain of the same while enduring prolonged sitting. Of course, you need to have it properly orthopedically diagnosed with appropriate treatment regime directed. Assuming that is the case, direct approaches include various PT and exercise modalities directed at the knee, anti-inflammatory medications and possibly prescription orthotics if you are a heavy over-pronator (especially with a large Q angle) which would cause a medial subluxation of the kneecap, worsening over time, when you walk. Unless it is a last resort, stay away from anyone who recommends lateral release surgery.

[Dubious]

Originally Posted by Dubious

Yes, I have. It's called patello-femoral syndrome, or in older venacular, chondromalacia patellae. The hallmark is pain and clicking behind the kneecap, worse with stairs and increasing pain of the same while enduring prolonged sitting. Of course, you need to have it properly orthopedically diagnosed with appropriate treatment regime directed. Assuming that is the case, direct approaches include various PT and exercise modalities directed at the knee, anti-inflammatory medications and possibly prescription orthotics if you are a heavy over-pronator (especially with a large Q angle) which would cause a medial subluxation of the kneecap, worsening over time, when you walk. Unless it is a last resort, stay away from anyone who recommends lateral release surgery.

Oh, one last thought, meniscal tear and extremely unlikely ligamentous disruption would be on the list of doubtful possibilities considering your age, but could easily be ruled out with MRI! I hope you can explore those, with socialized medicine and all....

[AintSoBad]

Yep,
That's almost exactly what I was 'tinkin'....
An aleve, or three a day.
Until you see more doctors.

Thanks, Duboius!!

Pete

Asb

[ali12]

Thank you all for your input - both me and my mum really appreciate it!

Dubious - I just did a quick search on Google about the Patello-femoral Syndrome that you mentioned and I do seem to have a lot of the symptoms especially the knee pain and clicking that gets worse with exercise or prolonged sitting etc. I will bring it up to my PT's and see what they say and if they can get me an appointment with someone to try and find out what is wrong when I next see them. Sometimes my PT's just assume that everything is always RSD, even if it doesn't feel like it to me. I'm not sure whether they would do an MRI as they never seem to do them over here unless it is for real emergencies. Thank you for bringing this up and i'm sorry you have to deal with all of this!

I'm not sure when my next appointment with my PT's is but am definitiely going to mention the knee problems if it doesn't get any better soon as it can be really painful and stressful. I don't know if the splint is making things worse but I didn't have any knee issues until we started using the splint which is why we are wondering if that could be aggrivating things.

I missed school again today as I don't feel too good. I HATE missing time off school but my mum said I looked awful this morning when I got up so sent me back to bed. We have a meeting with my school in a few weeks to see if I can attend the school centre full time so hopefully that will go well! I'm counting down the weeks until we split up lol ... we have about another 6 weeks left and then have 7 weeks off!!

Thanks again everyone and i'll keep you all posted!

[daniella]

Hi I am sorry you are having a ruff time still again etc. I understand about not knowing if it is RSD or not RSD. I live in fear of something to turning into RSD where it does not go away but also in saying something is RSD and not getting it taken care of and it not being. I do know for me and wonder if you are putting more pressure on that area during PT to protect your most painful rsd areas. I know I do that and though I try not it is hard when in flare up. I am sorry about the mri and testing there too. I know in the US even it is hard sometimes for a doc to order one and how frustrating it is but I can't imagine out of the US. I hope you get some rest and I know you hate missing school but hopefully it will be just for a short time. Yeah for break right any happy things to look forward to? You guys get out late. Most kids are out her by the middle of the month if not already. Many thoughts

[dreambeliever128]

I have the clicking in my neck and shoulder and last week after PT had it in the back of my leg. It could be from the PT making something act up.

I do have injuries on my whole upper body though so I am thinking you might have something else going on besides RSD like the others said.

It's to bad you can't get more test done on you to find out what is going on.
After 10 years, I am finding out that I have neck injuries and thoracic spine injuries. It's took that long to get other things calmed down enough to get it diagnosed by my PT. I am getting ready to see a Neurosurgeon to have some xrays done to figure out what injuries I am dealing with.

You do need to ask your Dr. if you might have other injuries going on in your knee. It sickens me when these Drs. chalk everything up to RSD. Look at how many of us on here have other things going on such as Fibro, Arthritis, TOS and to many other things to mention.

Sorry you had to miss school today. I hope you do start feeling better soon.
Ada

[ali12]

Thank you Daniella and Ada for your input!!

My knee is hurting quite a lot again today. I have been sat with it bent on the bed and have noticed that after about 2 minutes or so, it starts hurting a lot and locks up. When I manage to straighten my leg, I get a deep aching pain that can take a few minutes to go and brings tears to my eyes. I have been told that I need to keep bending my knee for PT but it is getting pretty hard as it is way too painful sometimes! I'm going to ask my mum to rub some of the anti-inflamitary cream into my knee in a bit again to see if that eases the pain any and also take a Tramadol to see if that works. Tramadol doesn't help with my RSD pain but my mum said it might be worth taking one to see if it helps any.

Daniella - I totally know what you mean about it being hard to figure out what is RSD and what isn't! Most of the time, everything turns out to be from the RSD but the first time you don't go and get it checked, it will probably turn out to be something else that can be easily fixed - it's so annoying!!! I'm looking forward to when we split up from school to be able to relax a bit! I'm not sure what we have planned yet but me and my mum are going to see my grandad in Spain in August for a few days so that should be nice as I haven't seen them for a few months! Thanks again for your input!

Ada - So sorry to hear about all the injuries you have had to deal with!! I can't imagine how hard it must have been to deal with all of them for such a long time without getting a diagnosis! It's awful that so many doctors just let us suffer in lots of pain without getting any help! I'm Hypermobile so some of the joint clicking in my knee could be from that however I have never noticed it before. Me and my mum have also been wondering for a long time whether I could have something else going on as well as the RSD and have mentioned it to my PT's and all they say is that it is possible but they really can't tell until we get the RSD and Dystonia under control more which is really stressful!! They have mentioned that I could have some spinal issues as I sit very curved but wont really look into it until the RSD gets a little better. I'm not sure when my next appt is with my PTs but will definitiely speak to them and see if they can have a look at my knee and see if anything else is going on. Thanks for all the info!