Hi Daniella,

I'm so sorry that your family don't understand RSD either. Family can be so cruel sometimes! :hug: I honestly don't know what I would do without my mums support - she has always been there for me through everything and always believed in me. I'm glad you have your mum also. We have tried everything to get my family to understand RSD but they wont. My dad wont even come to hospital appointments with me to stop my mum getting so stressed!!! I missed school again today as I don't feel well and my mum had to text my dad to tell him not to start complaining at me as it was obvious I didn't feel well as he usually comes out with some sarcastic comment about why I haven't been or says "it cant be that bad"!!!!!! My mum is always having arguments with him about his attitude but he never listens and just says it is our fault!! RSD really affects everyone, not just the sufferer. I used to be really close to my dad but now he hardly speaks to me and I guess I could never really forgive him for not being there for me when I needed him the most. I hope you are able to get your family issues sorted out as I know how horrible it is and how the stress doesn't help at all!!

I'm sorry you have other issues also other than the RSD. I have quite a few illnesses other than RSD including Hypermobility Syndrome, Rheumatoid Athritis, Dystonia, Myoclonius and some postural issues. My PTs also believe that I could have some other issues with my back but can't really diagnose those until we get the RSD more under control. Most of my other illnesses are as a result of RSD but have been told that I had Athritis before I was diagnosed with RSD though no one is sure why I developed it so young as no one else in the family really has Athritis at such a young age like me.

I have started taking my Tramadols again today as the pain as been really bad and I haven't been sleeping. My PT's said I could start taking them again to see if they helped any so I hope they do.

My mum called the doctors today and we can't get an appointment to see my GP until the 29th as she is really busy. She is really nice though so hopefully she will help - I just wish we didn't have to wait so long but at least if we don't get any answers from my PTs, I have a back up plan!

Thanks again for caring and posting. I hope you are doing better and i'll keep you posted!

Hi Ali,
 

My posture is very bad also. My PT just gave me some exercises to do to keep myself straight. I think we feel less pain sometimes when we are in what we call a comfortable position but it's not really what's best for us. Now they want me to go into Voc Rehab. I am going to wait for awhile though.

My Grandson of 14 just got diagnosed with Arthritis in both knees. It surprised me that someone that young could have it. He still went to football camp for a week. I was just thinking you could have Arthritis also starting in your knees.

Hope you are feeling better. I hadn't been on much lately due to depression but wanted to say hi to you.

Ada

Thank you Ada! I hope you are feeling better now!:hug:

I have always had postural issues which is why I think my PT's are wondering if I could have any back issues that aren't RSD related. They have told us that they wont be able to do any tests to find out though until we get the RSD more under control. My postural issues have got worse since I developed RSD and I have a real hard time sitting upright. My PT's are always giving me exercises to try and help but they don't seem to have that much impact.

I'm sorry to hear that your grandson suffers from Athritis also! I was diagnosed with Rheumatoid Athritis at the same time as I was diagnosed with RSD when I was 12 - it surprised us also that someone so young could get it. We have been thinking that the knee pain could be athritis related also with how painful my joints are and how they click. I was sat on the computer chair earlier with my leg slightly bent and all of a sudden, it let out the biggest crack and was extremely painful!

I hope you're having a good day and feeling better!:hug: I have been down with the depression also so if you ever want to talk, I am here for you!

I am glad you were given tramadol and I hope you get relief. I wonder if you can call everyday to see if your GP gets a cancelation. That is what I have done and I have gotten in way early. Just a thought. I know for me I never know if my other conditions are from the rsd or seperate. That is why at any new health problem I get a lot of anxiety as well. As for family I am lucky to with my mom as she is my hope and I am so glad you have your mom. Nothing like a moms love to make you feel like everything will be ok you know. I try to focus on that when the other family and friends either don't understand or I almost feel cruel. You are an amazing young lady and I hope both your parent see that. You are so helpful on this board through your own struggles and I wish for better times ahead

hey ali
ive had 3 knee surgerys in 04,,,useually clicking is a torn meniscus[ thelining bewteen the bones that seperates them,,very common surgery to repair,,,see your favorite orthepedic dr,, its not life threatning but its a pain,,,braces for temp releif are ok,,but its worth getting fixed right,,ive had it done 3 times with the contact sports i played,,,my o nly concern for you id the spread of rsd,,,,,keep us posted,,,yourm in our prayers,bobber