Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 06-12-2009, 11:08 AM #1
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Heart I'm Leaving on a Jet Plane....7/09/09

I have been doing much better since the change of cocktail meds. The instant Ultram 50mg x2 every 6 hrs plus other meds is providing relief for me.

The weather here is humid, and a cold and/or allergies are causing a problem for my hubby.Ron is very congested, and I have Vicks'd his chest, mustache, and bottoms of his feet,then I placed soft socks on his feet.
Ron ask me ,"Why, the Vicks on my Feet?"
I really don't know other than my Mom did it for me when I was really congested,LOL! It worked for me. It feels good that I am able to take care of him, for a change.



(RON)

It rains lightly, then stops...I know that if I did not have the change in my meds that I still would be dealing with the outrageous pain. I am resting, and not taking any chances to be stressed out;however,

I'm Leaving on a Jet Plane....7/09/09

I have been catching up with my sleep, and just getting my strength built up to board an airplane heading to my sister's (Wanda), home. Wanda's cancer surgery is set for 7/13/09. I will be in route to AZ on 7/9/09,alone this time. Hubby has to stay here, take care of the homestead and has jobs lined up in his business.

My sister will be in the hospital at least 5 days after the surgery, and 5-6 weeks home,also. I am still trying to figure out how long I should stay in AZ. 2 weeks...4 weeks..6 weeks???

It was different when hubby went with me in 5/09. Hubby was always near me in case I did have a pain flare..this time I will be on my own. Sure, sis' family will be there, but they will be focusing on my sis.

I will not worry about it, now. I hope you are all having good days and nights.


Dew
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WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
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Old 06-12-2009, 12:15 PM #2
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I'm glad the new meds are working for breakthru. We need our sleep. Without it, We can turn to very nasty people. (at least I can). You are so sweet to be going back to take care of your sister again. She is very lucky to have you. With your strength to help her thru, she will do well. We all need someone like you by our side. Love the pic of Ron....I'm with you. vicks is always used. I love it. the other thing that I have had great luck with, and in fact the dr recommends, is Muccinex, both oral and the nose spray. In fact, dh went to the dr and the dr said to use the Muccinex nose spray and another RX that he ordered up. It might work for him.

Hugs
Mary
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Old 06-12-2009, 12:24 PM #3
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If it were me going to Arizona the first thing I would do is talk to my doc and if he says it is up to you then I would base it on how I feel while I am there. If I would get to feeling to bad I would come home but if it would be bearable I would stay for a little while longer. That is just a suggestion from me. You can take it or leave it. It is completely up to you because you know how you feel no one else is in your body so they can't say how you feel. Just make sure you keep contact with your hubby.
Take care and have a safe trip when you do go.

Sincerely,
Tracy
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Old 06-12-2009, 02:50 PM #4
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Dew, i'm SO glad to hear that the breakthrough medications are helping you and that you are finally getting some sleep!! I agree with what the others said about the not sleeping issue affecting our moods, I haven't been sleeping well lately and seem to get very aggitated easily. I hope the meds continue working for you!!

You are so caring to go and see your sister again and hope her through her upcoming operation! She is very lucky to have you and i'm sure she is really proud of you for doing this for her with everything else you have going off in your life right now - not many other people would do the same unfortunately!!

I hope everything goes well with the plane journey. We flew from England to Vegas in March and it was really tough on me and I was in a bad flare whilst away but we still got to have some fun! I'd speak to your doctor about what you can do to prevent any pain flares during the flight and see if you need anything to help with any swelling. My doctor increased my pain meds and also suggested using flight socks (I couldn't use them though as they aggrivate my leg too much).

Take care of yourself and send your sister our love!
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Old 06-13-2009, 05:18 AM #5
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Hi Dew,
So glad the new med is making you more comfortable and getting rest. Sorry Ron is feeling not so well, he is really going to miss your loving care while you are here. I want you to know I'm thinking of you and Wanda and her family. I would very much like to meet you in person and Wanda a few days after her surgery. I know the first few days no one feels much like visitors other than family of course. Take care of yourself and if I can do anything while you are here in AZ, please let me know. Your friend, loretta hugs
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Old 06-13-2009, 01:27 PM #6
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I too hope you have a safe flight. I will be traveling too in a few weeks. For me I have done more traveling with rsd then I did before. I go in a wheelchair through the airport but once on the plane I make sure to get up during the flight to not cramp and I try to get an isle seat so I am more aware of others.I am sorry about your sister. That is so hard and you seem like such a kind person and I hope better times ahead for you and your family
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