Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 06-20-2009, 04:32 PM #11
AintSoBad AintSoBad is offline
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Redrum....???



Do NOT spell it in reverse, or, you will become a fan of these sorts of movies......
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Old 06-22-2009, 07:51 AM #12
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Default red dots

I have tiny red dots that seem to look like (the beginning of) blisters or mosquito bites. Is this what other people have?
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Old 06-22-2009, 08:42 AM #13
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Quote:
Originally Posted by fewdalord View Post
I have tiny red dots that seem to look like (the beginning of) blisters or mosquito bites. Is this what other people have?
Yes, this is it.

You could also imagine a little non-quite-healed scab from a pin prick, multiplied by several times. I sometime have only a few (10 - 20) but some people have them by the hundreds. Along with the alarming look, they have a feeling like you want to scratch (although not quite "itchy") and as you can see, there are a variety of suggestions on how to deal with them. Personally, I like a deep moisturizing lotion like Eucerin.

Mike

Last edited by bassman; 06-22-2009 at 08:47 AM. Reason: Typo
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Old 06-22-2009, 10:06 AM #14
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Originally Posted by loretta View Post
Hi Bobber,
Besides the good information you have already received, I believe in the past 6-8 monrha there was some good info on red dots on this forum. I remember, because it was at the same time as I got a couple lesions with infection on the back of one leg. They took a long time to heal. Some of my red dots eventually turned into permanent browish-grayish raised moles. The itching was terrible I have full body RSD, so I had the Red Dots
in my scalp on down to my legs.
It's important to protect ourselves in the heat. So I put a high protective sun lotion on before going out. We live in Arizona. I have gotten rashes before from just being in the sun.
Take care, and really be careful to keep them from being infected. Take care, loretta
I don't know quite what to say, red dots everywhere...I myself haven't noticed anything resembling the effects described, just have what sorta remind me of heat rash, but that's not on my affected limb(leg) it's on the back of my arm on the same side though. Disconcerting. Have had many many more pimple looking things on my leg though, I just assumed it was the lack of hair and the remaining follicles getting clogged. Lord help us all, may this curse be found to be curable, reversible, and happen for a reason only He knows. God Bless. Smoke
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Old 06-22-2009, 10:12 AM #15
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Default redrum

That's an ok King piece, but I much prefer the stand. Just think, 99.9% of all people gone, and we find out that rsd confers immunity...no overpriced meds, drugstores open all the time, and the housing options are awesome...colorado sure is a nice place to live...just stay away from trashcan man, k?
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Old 06-22-2009, 11:13 PM #16
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well one way out of this mess is get you guys to throw a blanket party on me with a #9 iron,,itd be a mercy killing,,,, then throw a party in my behalf,,,the drs dont know squat,,,as long as you have money and insurance ,your a sick man,,,when that runs out your healed!,,,what a life. i just came off the steroids and the red dots came back,,they were gone while i was on the prdnisone,,,and my legs look alot better,, but my money is riding on the Lord jesus to heal us,,,
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Old 06-23-2009, 01:00 PM #17
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Default I hope Jesus does heal us

I have found only one thing that makes it not stop hurting, but the pain lessen. I walked all over the ****** place saturday and sunday, and lemme tell you, it hurt like **** sunday night. Took my meds, went to sleep, got up and had a fairly hard day at work,(monday) bending at the knees, lifting and moving heavy objects, had shooting needles and stuff, but...it hasn't been as bad, almost like the more I use it, within reason, the better it is. I've had it settle down enough to not need any painkillers twice in the past six years, and in both cases, I worked it until it was better.(worked it every other day) I was on painkillers while I was working it, mind you, so it wasn't horrid, but over a period of months, it slowly seemed to get better and better, and I took less and less of the pills. This time when it hit, it hit very much harder. I don't expect any remission like I had before, but I do expect that it will get better if I have sufficient painkillers to move my body in a normal manner. I don't expect most folks can really manage this type of 'treatment', as their pain levels are, from what I'm reading, above mine. It's either that or I'm on enough stuff that actually works to make it possible. Dunno. Oh, I also was on prednisone, percocet and soma when this first started, as we were treating a supposed sprain/strain. I found it to be a very good combo, however, I had some odd effects from the prednisone. Usually it only occurs in elderly patients, but I had sorta a psychotic episode, talking to a friend of mine at work, I had the intense almost uncontrollable desire to behead him. It really messed with my mind. I almost instantly realized it was from the prednisone, and over the next few days I tested it by taking a quarter pill, seeing the effect, etc. It was. I am a Christian, and beheading an innocent with a knife is NOT something Jesus would approve of, I am sure. Anyway, I should also say the reason I believe my pain levels aren't hateful and it hasn't spread is quite frankly, I'm poor, and have been. I couldn't take off work to let the leg sprain heal, had to pay bills, so I worked on percs and soma for the first 5 months of it, and pretty much have worked labor jobs ever since. I credit that to my mild symptoms, and intend to continue making sure I use it whether I want to or not. I'm soon to lose my best job ever and take advantage of retraining money to attend school for puters, I guess, but I know I either have to join a gym(yuck) or get a second job doing something manual labor-y. Maybe a stocker at walmart, that would be enough lifting and stuff, without being over the line. Anyways, I hope this helped you some, and keep your head up, it could be worse, what with cancer and leukemia, aids and hepatitis, we're not that bad off. At least there is some hope that a modern medical miracle will help us, when you're told you have 6-8 months to live, that's not a lot of time for a cure, ya know? Well, gotta go, God Bless, hope yer pain diminishes, and I certainly hope you find some usefulness in this post. Later, Smoke

Last edited by Chemar; 06-24-2009 at 09:29 PM. Reason: NT guidelines re language
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Old 06-23-2009, 02:55 PM #18
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We should always watch for is shingle as it can run hand in hand with RSD aparently, so it is always a good idea for us to get any painful lesions (dots, bumps, rashes, etc) checked out by our doctor.

I tend to think that the red dots that look like blood blisters are to do with the inflamation side of RSD, and the other rashy ones are to do with flare ups.
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Old 06-23-2009, 03:17 PM #19
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I've had the red dot thingies off and on for a few years... mostly on my legs... but more recently I've been getting them on my hands...

OUCH!!! they burn especially when they break open....

I've had them checked... tried anti viral medicines.. didn't work... was then chocked up to RSD.

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Old 06-23-2009, 08:26 PM #20
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Quote:
Originally Posted by Sandel View Post
We should always watch for is shingle as it can run hand in hand with RSD aparently, so it is always a good idea for us to get any painful lesions (dots, bumps, rashes, etc) checked out by our doctor.

I tend to think that the red dots that look like blood blisters are to do with the inflamation side of RSD, and the other rashy ones are to do with flare ups.
I agree with you 100%
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WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
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