Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 06-21-2009, 03:02 PM #11
gabbycakes gabbycakes is offline
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Hi Kilikina,

Michael is correct in stating that it is not the RSD but the narcotic medication, especially the morphine based such as Opana, Avinza etc. I have also been told that in addition to the narcotic medication ketamine does change the PH in your system. So , I have been precribed a special type of tooth paste that attacks tooth decay and I use a water pik type of toothbrush and brush many times during the day especially after eating.

I never had teeth problems prior to this disease, in fact I never even had a cavity until I was 25 and then I only had 2 until this disease attacked me at 41....From then on I have had 2 or 3 root canals 2 teeth extracted and a lot of pain in my mouth. Since I have taken the steps to take care of my teeth better I do see a improvement in the pain, no cavities etc. So, to sum up you just have to really take care of your teeth on a daily basis.

Good Luck

Gabbycakes




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Originally Posted by kilikina View Post
Hi All,
I'm sure this has been discussed before but I can't find the thread. I was just informed that I need a root canal and crown for the second time in two months. My teeth tend to feel achy but that's about it. What are the connections between RSD and dental problems/concerns? is "RSD of the mouth" possible? Thanks for any and all help.
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Old 06-21-2009, 09:53 PM #12
kilikina kilikina is offline
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Quote:
Originally Posted by gabbycakes View Post
Hi Kilikina,

Michael is correct in stating that it is not the RSD but the narcotic medication, especially the morphine based such as Opana, Avinza etc. I have also been told that in addition to the narcotic medication ketamine does change the PH in your system. So , I have been precribed a special type of tooth paste that attacks tooth decay and I use a water pik type of toothbrush and brush many times during the day especially after eating.

I never had teeth problems prior to this disease, in fact I never even had a cavity until I was 25 and then I only had 2 until this disease attacked me at 41....From then on I have had 2 or 3 root canals 2 teeth extracted and a lot of pain in my mouth. Since I have taken the steps to take care of my teeth better I do see a improvement in the pain, no cavities etc. So, to sum up you just have to really take care of your teeth on a daily basis.

Good Luck

Gabbycakes
I figured that the meds were contributing to my dental problems, I didn't know which. Of course the med that work best for me is extended release morphine, oh lucky me.Thanks for the info on special toothpaste to use. Is it prevident? If not can you tell me what so when I go back to my regular dentist after the root canal I can get a script for it. Having RSD is bad enough but adding dental problems is just adding insult to injury. I so appreciate the help, advice and warm thoughts from everyone. That is what makes everything seem better.
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Old 06-22-2009, 09:53 AM #13
gabbycakes gabbycakes is offline
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Kikikina,

The name of the toothpaste I use is called "Denta 5000 Plus" put out by Rising. Hope this helps.

Gabbycakes



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Originally Posted by kilikina View Post
I figured that the meds were contributing to my dental problems, I didn't know which. Of course the med that work best for me is extended release morphine, oh lucky me.Thanks for the info on special toothpaste to use. Is it prevident? If not can you tell me what so when I go back to my regular dentist after the root canal I can get a script for it. Having RSD is bad enough but adding dental problems is just adding insult to injury. I so appreciate the help, advice and warm thoughts from everyone. That is what makes everything seem better.
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Old 06-22-2009, 10:42 AM #14
kilikina kilikina is offline
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Quote:
Originally Posted by gabbycakes View Post
Kikikina,

The name of the toothpaste I use is called "Denta 5000 Plus" put out by Rising. Hope this helps.

Gabbycakes
Thanks Gabbycakes. I'm on my way to the dentist in 10 minutes.
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Old 06-27-2009, 07:33 AM #15
ALASKA MIKE ALASKA MIKE is offline
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i just had a filling done and was scared to death that my crps would spread. i think i got worked up for nothing cuz everything is fine. i got the cavity from a change in my mouth from crps or maybe the meds i am on which cause severe dry mouth. the dentist wanted to try something new with me. it was nitrous gas, he said you should feel like nothing matters, most people love this feeling so i said what if i dont, he said we will turn it down and change over to 100 percent oxygen and the efect only lasts 2 minutes once you say you want off of it so i agreed to try it. i hated it. it made me feel like i took too many pain killers(overdose) so they turned it off. the rest of the appointment went fine.

i have to wear a nti for grinding teeth at night. this is common for people who are in cronic pain(grinding teeth that is)....mouth guards are too big for me(personal choice).

it also helps with head aches, i have noticed less if i wear the nti.
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Old 06-27-2009, 04:30 PM #16
kilikina kilikina is offline
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Quote:
Originally Posted by ALASKA MIKE View Post
i just had a filling done and was scared to death that my crps would spread. i think i got worked up for nothing cuz everything is fine. i got the cavity from a change in my mouth from crps or maybe the meds i am on which cause severe dry mouth. the dentist wanted to try something new with me. it was nitrous gas, he said you should feel like nothing matters, most people love this feeling so i said what if i dont, he said we will turn it down and change over to 100 percent oxygen and the efect only lasts 2 minutes once you say you want off of it so i agreed to try it. i hated it. it made me feel like i took too many pain killers(overdose) so they turned it off. the rest of the appointment went fine.

i have to wear a nti for grinding teeth at ni
ght. this is common for people who are in cronic pain(grinding teeth that is)....mouth guards are too big for me(personal choice).

it also helps with head aches, i have noticed less if i wear the nti.
I know what a mouth guard is but what is an NTI?
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Old 06-27-2009, 11:36 PM #17
ALASKA MIKE ALASKA MIKE is offline
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if you google "nti dental", you should get an idea. they can be expensive depending where you live and you have to get the tiny case to keep the nti in or your dogs might eat it. sometimes insurance covers the first one but not if your pet destroys it. i have an upper nti, it fits on my 2 front teeth only which allows me to talk andbe understood for the most part. the 2 links below are using lower nti's in the pics. it will be up to your dentist which will be best for you.


http://www.nti-tss.ca/pages/whatisit.html

http://www.headacheprevention.com/

my dentist told me that a lot of people with cronic pain clench or grind and most of the time dont even know they are doing it. a nti reprograms the jaw/your byte to not do this anymore by creating a small space of your back teeth. the only teeth that touch are your very front teeth.

good luck,

mike










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I know what a mouth guard is but what is an NTI?
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Old 07-03-2009, 12:21 PM #18
bobber bobber is offline
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ya gotta floss and brush daily,,we dont need a invite for infection,,,,with everything going on with the rsd and other afflictions its hard to must up the energy to do all the required body upkeep,,but its a must do,,,,if you let your teeth go a couple of days ,,they will bleed when you brush themmm,,it has to be a daily chore
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