Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 06-19-2009, 10:06 PM #1
bobber bobber is offline
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Default Prednisone

i havent heard from many of you about the use of prednisone,,,,Have you all tryed it , didnt like it ,,or shouldnt use it,,,my neuro has me on it ,supposed to shock the system and help deal with the discoloration of my legs,,,would appreciate some feedback from you all, i didnt see it in anyones regimine...
thanks ,,,bobber
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Old 06-20-2009, 02:11 AM #2
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Hi Bobber,
I've had RSD for 13 years and have never been on it. Iknow RA and Lupus are some autoimmune disorders the Drs. put this drug on their schedule. It's a steroid I believe, having some side effects. Maybe some others have some information. Hope the best for you. loretta
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Old 06-20-2009, 07:30 AM #3
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Hi. I know you have been asking me about PN and RSD and also a trapped nerve. Now for me I have PN and RSD and some of the treatments are the same and some are not. Now I have a friend who has auto immune and PN and she is on prednisone and has found it very helpful. Don't quote me but I think it helps with her inflammation. If you are dealing with a few dx then you may have to do different types of treatment then if you were to be just dealing with rsd if that makes sense. I am not sure how extensive your diagnostic testing has been but I think it is really key if possible and for me a lot is unknown but to know what is actually going on in your body. I know the first year of this I was more a guess to them and if I would of done procedure or treatment based on that I think I would be in a worse point. Meds are different I think but I mean invasive wise.
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Old 06-20-2009, 09:15 AM #4
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Bobber,
Remember,
We're still "Test Dumbies", lots of these docs want to see what might work.
Who better to study on?

S/He's doing nothing illegal, or immoral.
They're Trying.....
So, if it works, good, but if it doesn't, SPEAK UP!

yer friend,
Pete
Asb
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Old 06-20-2009, 10:02 AM #5
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I was on prednisone for a reaction to a medication that caused tinnitus, not for my RSD.

My doctor prescribed it with much caution because of my history of RSD. RSD causes de-mineralization of the bones and I now have osteoporosis in my left foot. Prednisone is known to cause osteoporosis with long term use so it was not seen as an appropriate drug option for me.

Check out wikipedia for more information on this drug http://en.wikipedia.org/wiki/Prednisone

I would proceed with caution with this one if I were you.

MsL
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Old 06-22-2009, 08:33 AM #6
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Just dont stay on it long; it can thin the bone density. It can cause adrenal gland to go to sleep and if youre on it long enough the adrenal gland in some cases doesnt awaken.
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Old 06-22-2009, 08:46 AM #7
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I am on Prednisone for Rheumatoid Arthritis. I helped the swelling in my RA-affected fingers, but I did not see any improvement in any of my RSD-affected areas. It is kind of hard to separate the symptoms and treatments, though.

Many people describe a huge appetite and bloating with prednisone, but I never got that.

Mike
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Old 06-22-2009, 11:04 PM #8
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well , the prednisone did kill the red dots and helped cam down my legs ,,but after a 3 week course on that med,ive been off of it for 3 days and the dots on my finger came back,,,,great,,,,,,,,,,,,,,,,,,,,,,,,,someone just wanna come over here with a # 9 iron and put me out of my misery? ,,,,,,,,,,,thanks bobber
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Old 06-23-2009, 06:55 AM #9
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I am sorry. Please hang in there. Can you call your doctor who rx this and tell him that it has returned? I was not aware of prednisone being such a short term thing but I am not that familiar with this either. Please stay safe.
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Old 06-23-2009, 08:38 AM #10
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I was placed on 2 treatments of this medication. It was suppose to help with the inflammation/swelling in my knee and quad of right leg. It did not appear to have any effect. This was BEFORE the CRPS was dx.

I know it is not to be used on a reg. basis in the strengths that I had been placed on because of the long term side effects/affects.

Hope you feel better soon
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WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
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