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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Heading to the RSD Walk in Manhatten

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Old 06-27-2009, 09:40 PM #1
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Default Heading to the RSD Walk in Manhatten
Heading to the walk in Manhattan tomorrow...Hope it is as good as last years and hope we raise some big money!!
I will let you all know how it goes,,,

Debbie
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Old 06-28-2009, 05:51 AM #2
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Grin
Have a great time
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WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
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Old 06-28-2009, 07:50 AM #3
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Awesome, have a great time!
Looking forward to hearing about it.
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** W/C injury...Diagnosed with CRPS w/ nerve damage in Apr '09, after a long 2 ½ yr battle with a knee injury. RSD has now spread to entire body.
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Old 06-28-2009, 11:15 AM #4
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have a great time and i think that its awesome that you are doin this for us

carrie
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hope this finds all in less pain
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rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,,




please check out our website to help bring awareness to RSD!


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Old 06-28-2009, 12:25 PM #5
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Good Luck with the walk tomorrow, Debbie - I will be thinking about you!

Thank you so much for doing this for all RSD'ers! Can't wait to hear how it goes!
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Old 06-29-2009, 11:44 AM #6
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Curious as to how it all went! How'd it go?
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All the best, Marleen
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Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Old 06-29-2009, 06:13 PM #7
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Default It went well
The walk was very nice...a little disappointing that Jim Broach couldn't make it. Met some nice people. A man was filming some RSDers talking about their disease..He makes documentary's and is hoping to air this on Discovery Health!

I am guessing there were about 200 of us there (just a guess)- There should be some pixs coming to the RSDSA website soon
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Old 06-30-2009, 11:03 AM #8
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I'm glad it went well. Looking forward to the pictures! Hope the documentary makes it to DH soon and that it'll help spread the word about RSD!
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All the best, Marleen
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Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Old 07-01-2009, 08:53 AM #9
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I am glad the walk went well. Awareness is the key for RSD/CRPS to be recognized as a real disease. Thank You for walking
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A Positive Attitude Will Assist Me Toward An Active Life, Once Again
.

WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
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