NeuroTalk Support Groups - Full recovery from RSD/ CRPS

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lisashea - Last Activity: 04-06-2008 04:32 PM

Quote:

Originally Posted by Jimking (Post 911995)

Liz, I'm very glad you are out of pain!! However, be extremely careful getting back on you feet again. Take it very easy because it could come roaring back at full force. I've read similar stories and the RSD came back because, it seems, the patient became hasty and pushed themselves and re-injured causing the pain to return.

Reading your story certainly gives hope that in this world there are doctors that know what they are doing right at the onset of this disease. They sound like a great team of doctors.

Thank you so much for your reply. It has been several years now and I am completely fine. I did run just after my first appointment with my surgeon and I made a rapid recovery from the fractures. I have even been doing heavy weight lifting for several years and training for triathlons. I have never had a slight tinge of the 'leg dipped in acid' pain that is CRPS. A full recovery is possible - you just have to believe that it is :)

I was told there is no cure but remission is a possibility especially in the early stages. Unfortunately for me I have not experienced remission. I am going on almost seven long years of this horrific disease. But I never give up hope.

You are correct RSD ME, there is no cure for RSD/CRPS. There is only remission. I was diagnosed more than 26 years ago and did experience remission early on, but it came back with a vengeance. I am now full-body :(

Quote:

Originally Posted by Nanc (Post 1251370)

That's the thing that terrifies me (full body). More than 19 years with right arm; 2 years with left. I hurt so bad it's ridiculous, but I feel for YOU. How on earth do you cope

Quote:

Originally Posted by ShaggyChic_1201 (Post 1251388)

That's the thing that terrifies me (full body). More than 19 years with right arm; 2 years with left. I hurt so bad it's ridiculous, but I feel for YOU. How on earth do you cope

Thanks. It is definitely a challenge as I have developed other conditions on top of my RSD. One thing that helps me more than anything is my husband. He helps keep me positive, most of the time, and keeps me going. I hope you can find some relief, very soon!!