Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 07-16-2014, 01:49 AM #91
Jomar's Avatar
Jomar Jomar is offline
Co-Administrator
Community Support Team
 
Join Date: Aug 2006
Posts: 27,721
15 yr Member
Jomar Jomar is offline
Co-Administrator
Community Support Team
Jomar's Avatar
 
Join Date: Aug 2006
Posts: 27,721
15 yr Member
Default

lisashea - Last Activity: 04-06-2008 04:32 PM
__________________
Search NT -
.
Jomar is offline   Reply With QuoteReply With Quote

advertisement
Old 09-16-2017, 09:08 AM #92
Happyme Happyme is offline
New Member
 
Join Date: Sep 2012
Posts: 2
10 yr Member
Happyme Happyme is offline
New Member
 
Join Date: Sep 2012
Posts: 2
10 yr Member
Default

Quote:
Originally Posted by Jimking View Post
Liz, I'm very glad you are out of pain!! However, be extremely careful getting back on you feet again. Take it very easy because it could come roaring back at full force. I've read similar stories and the RSD came back because, it seems, the patient became hasty and pushed themselves and re-injured causing the pain to return.

Reading your story certainly gives hope that in this world there are doctors that know what they are doing right at the onset of this disease. They sound like a great team of doctors.

Thank you so much for your reply. It has been several years now and I am completely fine. I did run just after my first appointment with my surgeon and I made a rapid recovery from the fractures. I have even been doing heavy weight lifting for several years and training for triathlons. I have never had a slight tinge of the 'leg dipped in acid' pain that is CRPS. A full recovery is possible - you just have to believe that it is
Happyme is offline   Reply With QuoteReply With Quote
Old 09-17-2017, 11:02 AM #93
RSD ME RSD ME is offline
Senior Member
 
Join Date: Sep 2013
Posts: 1,500
10 yr Member
RSD ME RSD ME is offline
Senior Member
 
Join Date: Sep 2013
Posts: 1,500
10 yr Member
Default

I was told there is no cure but remission is a possibility especially in the early stages. Unfortunately for me I have not experienced remission. I am going on almost seven long years of this horrific disease. But I never give up hope.
__________________
RSD ME
.
RSD ME is offline   Reply With QuoteReply With Quote
Old 09-20-2017, 09:43 AM #94
Nanc's Avatar
Nanc Nanc is offline
Member
 
Join Date: Jan 2011
Location: VA
Posts: 975
10 yr Member
Nanc Nanc is offline
Member
Nanc's Avatar
 
Join Date: Jan 2011
Location: VA
Posts: 975
10 yr Member
Default

You are correct RSD ME, there is no cure for RSD/CRPS. There is only remission. I was diagnosed more than 26 years ago and did experience remission early on, but it came back with a vengeance. I am now full-body
Nanc is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
full_moons_of_hope (07-06-2019)
Old 09-20-2017, 02:54 PM #95
ShaggyChic_1201's Avatar
ShaggyChic_1201 ShaggyChic_1201 is offline
Junior Member
 
Join Date: Sep 2014
Location: Midwest, USA
Posts: 86
10 yr Member
ShaggyChic_1201 ShaggyChic_1201 is offline
Junior Member
ShaggyChic_1201's Avatar
 
Join Date: Sep 2014
Location: Midwest, USA
Posts: 86
10 yr Member
Default

Quote:
Originally Posted by Nanc View Post
You are correct RSD ME, there is no cure for RSD/CRPS. There is only remission. I was diagnosed more than 26 years ago and did experience remission early on, but it came back with a vengeance. I am now full-body
That's the thing that terrifies me (full body). More than 19 years with right arm; 2 years with left. I hurt so bad it's ridiculous, but I feel for YOU. How on earth do you cope
ShaggyChic_1201 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Nanc (09-21-2017)
Old 09-21-2017, 03:58 PM #96
Nanc's Avatar
Nanc Nanc is offline
Member
 
Join Date: Jan 2011
Location: VA
Posts: 975
10 yr Member
Nanc Nanc is offline
Member
Nanc's Avatar
 
Join Date: Jan 2011
Location: VA
Posts: 975
10 yr Member
Default

Quote:
Originally Posted by ShaggyChic_1201 View Post
That's the thing that terrifies me (full body). More than 19 years with right arm; 2 years with left. I hurt so bad it's ridiculous, but I feel for YOU. How on earth do you cope
Thanks. It is definitely a challenge as I have developed other conditions on top of my RSD. One thing that helps me more than anything is my husband. He helps keep me positive, most of the time, and keeps me going. I hope you can find some relief, very soon!!
Nanc is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
full_moons_of_hope (07-06-2019)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Full-time carers for mum BobbyB ALS 0 12-06-2006 08:45 PM
new article--possible role of inflammation in CRPS Annie Poo Reflex Sympathetic Dystrophy (RSD and CRPS) 1 11-29-2006 11:29 PM
new article--incidence of CRPS Annie Poo Reflex Sympathetic Dystrophy (RSD and CRPS) 0 11-27-2006 07:47 AM
OT Full Faith protection orders Pennsylvaina (PFA) DiMarie Bipolar Disorder 2 10-27-2006 09:56 AM


All times are GMT -5. The time now is 06:27 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.