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Hi Lisa,

Please - I would love to speak with you about this. My story sounds so similar to yours, except I'm not yet on the other side.

Can we speak via email? Phone?

My email is * sorry - no linking / email address for new members*

Please reach out.

Many thanks,
Jamie

lisashea - Last Activity: 04-06-2008 04:32 PM

I came down with RSD in June 1996 after surgery on my right thigh, and suffered the tortures we're all familiar with. In January 2010, I suddenly started losing my symptoms. It was rapid at first, but then slowed as the remission continued. Now I'm in about 90% remission; the only remaining symptom is that I get fatigued really easily.
My PMD was amazed! She said, smiling, "With your years of chronicity and your age, you have no right to be in remission!" She and I have been micro-analyzing what I was doing, taking, eating, etc., but still don't have a clue why this happened.
My RSD was centered in my right foot - actually in the tarsal joints - and I went through the usual series of epidural blocks, had an SCS installed (didn't help much), took lots of Neurontin, narcotics, muscle relaxants, etc. I never experienced any spreading, for which I'm way grateful. I really wish I could nail down what caused this, but no luck so far.
One factor, which my pain docs and I had a lot to do with the lack of spreading and maybe even the remission, is that I was a pretty successful runner/racer when the RSD hit. Since long distance runners developed very large veins in our legs and feet, it seems logical to infer that I didn't have as much vasoconstriction as most RSD folks do.
Since the remission, I've become a major advocate for RSD and chronic pain patients. I'm a Professor of Medicinal Chemistry, so I started researching RSD as soon as I knew I had it. *edit*
I'd be glad to answer any questions, except "How'd you do it"! I still don't know.
Howard

There's an old joke; doctor, doctor, it hurts when I do this. Doctor: Don't do that. This has been my approach from the beginning. I'm trying to discover all the things that hurt and not do them. I had about a 40% remission at one point but was reinjured on the job and it was twice as bad as where I started.

I was always quite athletic. One doctor was surprised at the size of the veins that feed the heart and an anesthesiologist almost jumped out of her shoes when my pulse got down in the 25 range and B/P not much higher. The doc asked me if I was an athlete and it was very difficult to answer; "used to be".

Did you pay attention to things like diet and exercise? Did you go through a lot of depression coming to accept the condition? Did you ever obsess on the condition or getting better?

I sure would want to hear from you too about this. I have RSD in left foot, ankle and calf. I so much want to be free of it. ginnie

Hi Ginnie & LARRY1135
Just thought I would let you know that *sage* has not logged in since 12/2006.....so i'm guessing it's unlikely you will get a response. You can tell when a person was last logged in by clicking on their name under their name you will see "last activity"

Sorry to be the bearer of bad news.
Abbie

Thanks Abbie I had already figured that out but wanted to make my comment just the same because it crossed my mind. I also noticed that Ness never followed up as well with the promise of more information as well. It is like sticking a carrot out there and we all want that carrot so bad.

I'm with the other poster who said that they could have taken to extra time to finish the post with details as it would not take that long after all they were already posting as it was. I need all the positive I can get and I know I'm not the only one.

I find it so hard to believe that not much progress has been made with this disease but, that is the hard truth. Seems like there would be something that could calm those nerves down. For those of you who have or had lived years with this I cannot imagine making it beyond a year. I feel like I am to weak to fight this battle. I also do not have a good support system to rely on such as family as they don't want to be bothered especially my mother she never wants to be bothered.

So, disappointing not to hear back from Sage. Hope nothing bad happened after her post.

Sage
Wonderful for you, that's amazing....
hope you stay well!!!