Hey girl, congratulations on your sucess and that you are pain free. I hope you don't mind if I ask you a couple of questions. You said your still not sure if you actually had RSD. I was wondering if the pain was the major symptom- or if you had other probelms as well. I had very severe rsd that has spread from my right oleg, to the left, and the left hand. The only thing is I have other major symptoms- it is not just objctive pain. My legs change color so much you might as well be watching an art show, they swell, especially my right one, in strange patterns, and I have dystonia, autonomic problems- and deformities in my limb. It is only my opinion- but I believe that real real rsd will come along with othber symptoms as well. I feel like if you didn't experience any other symptoms besides just pain- it should be questionable whether you had actual rsd or not. I am glad you are doing well and pain free. That's a miracle and a blessing. What other problems and complications did you have from it at the time?

ps. My background is in kinesiology and nutrition and I worked in the health in fitness industry in patient recovery for years before getting rsd, so suprisingly I am very knowledgable and informed about anatomy, physiology and health in general despite my condition- in fact I think that is why I've been able to deal with it so well.

Hello there,

I think that RSD/CRPS comes in so many shapes and sizes it is very hard to establish whether you really have it or not if depending on having the whole gamut of symptoms.
I have a friend whose only symptom is pain, she has NO colour changes now, no deformity, no dystonia---just pain.
When she was diagnosed however she did have swelling, sweating and colour changes. Her diagnosis was made on the strength of that.

Unfortunately a forum for people with RSD/CRPS is not going to be the place where there will be much response from people whom have got better.
They have no need to visit sites like this and often feel it is the last place they want to go.
This makes it very hard to establish the true statistics. I trust the members of my medical team to tell me the truth about their successes and have lost contact with many people who attended my pain group who have got better.
Cheers and luck
Tayla

Thanks for the well wishes.

Yes, I had all the autonomic problems - almost everything on the checklist except for swelling. In fact, the initial ankle sprain never caused much swelling at all.

The explaination was that the nerve entrapment cause my entire nervous system to become hyperactive. This caused a rippling effect of neurological symptoms throughout my body - the same symptoms as RSD. In fact, lightning storms would make my body go into twitches and jolts! It was very painful to experience and I looked bizarre.

I too am very medical and this explaination does make alot of sense - it is logical. My entire system was thrown out of balance.

Hope,
Lisa