Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 07-01-2009, 06:55 PM #11
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A Positive Attitude Will Assist Me Toward An Active Life, Once Again
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WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
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Old 07-01-2009, 09:14 PM #12
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hey pete
im married so its not really easier on me to worry about B.O..i still dont want to disrespect her either,,i love her dearly,,but being afflicted makes you tired and and with all my conditions ,its hard to stay up on my feet,,recent THR,,,im still on crutches and fighting rsd, its hard to take agood bath,,it takes so much energy out of you,,id rather work a 10 hour shift swinging a hammer .I feel your pain,,,but my wife is loving and wouldnt say anything to affened me anyway,and she is God fearing,but i gotta stay clean,,,i wouldnt throw in the towel about hooking back up,theres alot of good God fearing woman looking for a good man and vis-versa..any way,,,,my money still riding on the rsd making the armpit oder,,,,,,no joke,,,,,,,,gotta be,,,either way,,disael fuel is under 4 bucks a gallon now and you should get about 10 good burns out of a gallon ,,you said you wanted to get rid of the hair anyway,,and you do construction,,,so i know you got a torch laying in your garage,,,,,do the math,,,even deoderant cant mask the curse of the smell from rsd,,,LOL, ,,theres no other way of dealing with it other than muratic acid and that wouldnt be good so ,,,lets us know when your gonna do a burn and we will all swing by with some hotdogs,,,,,,and mashmellows,,,and have a baraque!,,,,bobber
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Old 07-02-2009, 11:36 AM #13
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Maybe some meds are the culprits?
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All the best, Marleen
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Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Old 07-02-2009, 01:30 PM #14
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Dew, you're sweet, Bobber, you're too funny,, and Marleen you're wise. You'er all cool!


I do think meds can be the culprits. This stuff is, afterall ALL poison, toxins.
And has had been said, our bodies have many ways of ridding itself of toxoins, one is through perspiration.

I generally have wore my hair long. That's gotta go!
I can't stand taking a shower, then, breaking a sweat, and I'm not feeling clean anymore!
I actually have a set of clothes to put on after I bathe, then shower cool, towel dry, then put on first set of cotton. to dry off further for an hour or so. Then, into my regular clothes. What a tiring routine!
When someone says they're coming over, it's like, OK, I'm gonna shower, just come on in....

Haircut soon.

Thanks for all the kind words....

Pete
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Old 07-03-2009, 12:50 AM #15
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Default hey pete

cymbalta takes the sex desire away from me,,,cant have that,,,it ok now that im of of it,,,man,,you use something to help you and something else happenes,,,,but i read the wodd of papaerwork that they stuff down in the prescription bag,,,looks like a news paper,,every time i get my medicine i kill a tree,,,,,dont worry about m,j case taking your meds,,it will be the tree huggers LOL,,,,,,,,either way the pain meds do it too,,dont know if it affects a womans sex desire or not,,,,but that what the group is for,,,,,,,and about you cutting your hair,,,,i did last yr,,,when i was young,,my hair was long wavy locks,,looked great,,didnt even have to comb it,,,what has happened??/ pigmentation left,,and it sticks out like bozo,,,,,wow,,,good ole golden yrs,,,,,,,,,,,old age isnt for sissys,,,,,,,,,,,,,,bobber
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Old 07-04-2009, 11:19 AM #16
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i use body spray alot alot of degree prescription deodorant. and use baby wipe..

carrie
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hope this finds all in less pain
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rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,,




please check out our website to help bring awareness to RSD!


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Old 07-04-2009, 11:22 AM #17
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Default "Stinky Folks",How do You deal? (very private)

From Breezy55: Pete, first of all I wanted to tell you that when I was dx with RSD and for the first 3 years of taking a shower it did hurt! I also had a tech,working with me. When I came out of the shower I would be yelling in pain! My skin was blue and white. The tech called this blancing? As far as this going on as soon as I was put on Topamax and my dosage went up,this pain went down. Also there is some kind of deoderent that is always on t.v. That you can get at the drug store,or by your Dr. I also agree with the others on this there are things like hormone issues,etc. Well that is all for now on this one. Hang in there! You will over come!
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