NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   Mass Email to Oprah for RSD Awareness (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/91439-mass-email-oprah-rsd-awareness.html)

Abbie 07-01-2009 11:12 PM

Dr. Oz
 
Dr. Oz is on Twitter:
http://twitter.com/droz

Facebook
http://www.facebook.com/droz

MySpace
http://www.myspace.com/droz

I haven't found a snail mail address for Dr. Oz YET.... Maybe he can be contacted at one or all of the above?!?!? (I have NEVER used one of this formats so I don't know how they work...)

:)
Just trying to help spread the RSD news....

Breezy55 07-02-2009 10:00 AM

Mass E-mail To Oprah for RSD Awareness
 
From Breezy55: It is a good idea,however remember when Paula Abdu (Sp?) on Amenican Idiol had RSD? It was all over the place. Yes I do think there are many places that we can send our e-mail's to. That were listed aboved my link.I wish that Oprah would respond to people with RSD! She talks about everything else. Like being over weight,cancer,diabetes,bulimia,etc.So many people just do not know how many of us have RSD all over the place! This is our main problem. Dr Oz might be a good place to start,but not when he is with Oprah! Not sure what else to do or say? Breezy55 RSD Full Body both sides. For 7 years now. Chroic IBS, L,Breast Cancer (beat! YEA!),HEPC From 25 years of being a nurse,Neddle stick (now in remission) :grouphug:

Christine L Ortega 07-06-2009 11:27 PM

Oprah Mission Follow-Up
 
To all my fellow RSD sufferers...DO NOT GIVE UP HOPE! That's what this is about. So what if you got a rejection letter, does that mean you never try again? I'm ready to knock out hinges until I can kick that door down or any other door down to RSD Awareness World Wide. And yes, emailing "The Doctors" is a wonderful idea...perhaps that will be the next mission. I will not stop, I will keep trying...I plan to fight fight fight!!!!!!

*edit*

go to Oprah click on "contact us" at bottom of page and that will take you to the email section.

Here's an idea of what to write to Oprah, if you choose to write your story, keep it short and inspirational. Oprah likes to make examples of people who make a difference, are hopeful and empower others.

RSD Awareness: I have RSD, I have chosen to be courageous and stand up against this disease. I am on a mission with thousands of others to fight for awareness. Early diganosis is crucial for possible remission or to maintain pain and to keep it from spreading. Millions are affected. Most people are misdiagnosed and find out they have RSD once it's too late. It doesn't discriminate and affects both genders and people of all ages, worldwide. Oprah, be our beacon of hope and tell the world about RSD. Please join my mission: Go to Face Book and search on "A Plea to Oprah for RSD"

Sandel 07-07-2009 08:59 PM

Way to go Christine Ortaga!
 
Woman is facing chronic disease by creating awareness
Sets up Facebook account; wants emails sent to 'The Oprah Winfrey Show' on July 8
BY JENNIFER AMATO Staff Writer

http://examiner.gmnews.com/news/2009..._page/032.html

~~
Anyone who wishes to help is asked to log on to Oprah's website, www.Oprah.com, on July 8 and at the bottom of the page click on "Contact Us," join the website, and then click on "Send us your show suggestions" to send a general email using the title "A Plea for RSD Awareness."


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