Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 07-08-2009, 05:57 PM #1
tannie tannie is offline
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Default rds and gabapentin

Hello all
Is anyone else taking gabapentin? just wondered how others are getting on with it because i haven't seen any improvement i was told they would happen really quickly and no luck. i am working my way up slowly to my max dose which will be 1800mg,but i have suffered with really nasty side affects. anyone else having these issues or better experience than me
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Old 07-08-2009, 06:06 PM #2
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Don't suffer with horrible side effects, it just may not be the med best for you.
many have to try quite a few combos before finding what works best for them.

I did a quick whole forum search for you to look thru other posts about it-
hope he link works for you-
http://neurotalk.psychcentral.com/se...ery=gabapentin
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Old 07-09-2009, 10:07 PM #3
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Smile RSD & gabapentin

Quote:
Originally Posted by tannie View Post
Hello all
Is anyone else taking gabapentin? just wondered how others are getting on with it because i haven't seen any improvement i was told they would happen really quickly and no luck. i am working my way up slowly to my max dose which will be 1800mg,but i have suffered with really nasty side affects. anyone else having these issues or better experience than me
i'm taking 1500mg of gabapentin - 2 increase 2 1800 asap. have built up this dosage for months! didn't think it was helping....but i went a couple of days w/o it! whew! broke my left wrist in april 08. came out of cast w/RSD! i see a PM dr, psychologist, OT, orthoped. - AND a neurologist for epilepsy, too!! so i have multiple issues. take lots of meds....been off work over yr. but GOD is good. i have good days & not so good! also have dupuytrens in injured hand & have developed new contractures! hang in there....
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Old 07-10-2009, 09:19 AM #4
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Quote:
Originally Posted by tannie View Post
Hello all
Is anyone else taking gabapentin? just wondered how others are getting on with it because i haven't seen any improvement i was told they would happen really quickly and no luck. i am working my way up slowly to my max dose which will be 1800mg,but i have suffered with really nasty side affects. anyone else having these issues or better experience than me
I am currently taking 3600mg a day!!!! I have a SCS a year now and every time I try to cut back-the sensitivity comes back with a vengence. I took quite awhile to "get used to it" and am trying to cut back again.
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Old 07-11-2009, 12:05 AM #5
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Hi Tannie and everyone,
I was on it for several years 3200mg. I didn't like the 'feeling' of being snowed. Switched to Lyrica and felt I did better with Lyrica as far as burning nerve pain. I gain 60 lbs over the time I was on this med. But it stopped the electric jolts thru by body that I had dailey and the jerks, spasms. I asked my Dr. if I could go off it and we very gradually went off. I lost 30 lbs and on my 2nd set of losing 30 more lbs. I feel much better, and have only had a couple of minor jerks. I feel my overall health is better now. sleeping better, mentally adjusted to having this disorder, eating healthy , swimming, and just generally better. I've been under a very good Drs. care for the last 5 years.
But, like was mentioned, we all react to meds differently. If I were to have those violent electric jolts go thru my brain, I would go back on Lyrica- basically the same drug as gab. you are on.
Welcome everyone to Neurotalk. It's a wonderful support group and always encouraging and learn new things for a large caring family. Take care, loretta
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Old 07-11-2009, 12:26 AM #6
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I've been taking Neurontin for my seizures and RSD for around 2 1/2 yrs now. I've been on anywhere from 600 mg to 1800 mg and am currently on 1200 mg.

You don't mention what specific side effects your having, but some side effects can be dose related and can be helped by adjusting the dose and/or timing of it. For example, I take my highest dose at night to minimize the fogginess and sleepiness it can cause.

Another important thing to remember is, like most of the anti seizure meds, you aren't going to be able to see results overnight--- it can take a few weeks to even begin to see results.

Good Luck and I hope it helps you !
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