Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 06-02-2009, 08:59 PM #1
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Heart Wonder if md's really believe in RSD?? Why?

Why is it so difficult to get pm doc and Gp together to discuss a game plan for my health?? It's not them missing work or getting a bad work record?
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Old 06-02-2009, 09:55 PM #2
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Quote:
Originally Posted by SunshineGirl View Post
Why is it so difficult to get pm doc and Gp together to discuss a game plan for my health?? It's not them missing work or getting a bad work record?
Pride, bias and ignorance!
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Old 06-02-2009, 09:57 PM #3
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Heart

They can't cure it..so they feel like failures...living in denial..ego.
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A Positive Attitude Will Assist Me Toward An Active Life, Once Again
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WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
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Old 06-02-2009, 10:39 PM #4
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Amen!!! Yes for 1 my gp is about 75 and my pm is about 30 and from India or somewhere!
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Old 06-03-2009, 10:00 AM #5
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Default Hi,

My opinion of PM Drs. is below the scale of 0. They most likely think since they are the ones suppose to deal with cronic pain, they have no reason to talk to PCP's.

I do think though you are right about it. My PCP talks to a lot of my Drs. that have helped me. My TOS Dr. worked with him to help get me better and others have to. The 5 PM Drs. were ignorant of RSD in my opinion. The U of C was the worst. To me learning hospitals are good for using people for guinea pigs.

You asked if they believe in RSD. I believe so, if not they are sure using it for a big money maker in pills and SCS's and Pain Pumps.

Ada
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Old 06-03-2009, 02:56 PM #6
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Originally Posted by dreambeliever128 View Post
My opinion of PM Drs. is below the scale of 0. They most likely think since they are the ones suppose to deal with cronic pain, they have no reason to talk to PCP's.

I do think though you are right about it. My PCP talks to a lot of my Drs. that have helped me. My TOS Dr. worked with him to help get me better and others have to. The 5 PM Drs. were ignorant of RSD in my opinion. The U of C was the worst. To me learning hospitals are good for using people for guinea pigs.

You asked if they believe in RSD. I believe so, if not they are sure using it for a big money maker in pills and SCS's and Pain Pumps.

Ada

Ada,

You're correct about learning hospitals.
You always see me "pushing University hospitals", but, ONLY for a diagnoses, and to get steered to conservative treatment.

This is not a disease that wants to be surgeried and pumped and have ribs out, etc. It needs to be studied a bit first.
Why?
Because, we're ALL different!

Our medical system in this country *america has become a "machine" for things like say, colon cancer.
Cut it out.
Chemo it.
Deal with it.

RSD on the other hand, is a toughy, because I've NEVER heard of anyone dying of it, directly.
And, it has no certain cure.

So, if you're a doctor, what do you do?
You must hunker down, and become a "Manager".

Did someone say "EGO"?

Haha!
Love it!


pete
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Old 06-05-2009, 02:25 PM #7
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Totally agree. That's why it's so important to find someone with patience and self-deprecation, in addition to full academic qualification in Pain Medicine.

And on the point of frustration over not being able to do anything, check out Dr. Schwartzman's latest article that was just linked to at http://neurotalk.psychcentral.com/thread88983.html

Mike
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Old 06-05-2009, 06:04 PM #8
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Pain Management is a big ticket money maker right now. Just my opinion. Gargatuan egos and big bank accounts.
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Old 06-05-2009, 07:01 PM #9
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Pain Management is a big ticket money maker right now. Just my opinion. Gargatuan egos and big bank accounts.
MsEliie, I so agree with you. I think my PCP gets angry with my PM. He got mad enough he took back control over my pain management & left him to deal with my SCS & thats about it. He doesnt listen to me. I think he just just likes to hear himself talk & sound smart sometimes. Too bad the last decision he made about me got overruled by not one but two of my doctors. So much for his Ego! lol!!!
Hugs, Denny
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Old 06-06-2009, 04:59 PM #10
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I always say I wish all the specialties I would see would do a team approach. Each one only looks at there area to refer out and never follow up. I often wonder why they go to school for so long and study everything when they never will go outside there box so to speak. I feel for myself with all my conditions and things that have krept up since the original rsd pain in the leg that for it to not be connected is just so odd but no doc connects the dots.
I think a good PM doc after I have seen many is one who is willing to work with you. It is not just one thing or the highway. Like I saw one pain doc who would only do a scs and when I said no he said he could not help me but there were so many lesser things I had not tried. What I feel is many doctors are afraid of things that they don't know about or don't have the quick fix for. The ego docs I often feel are the ones from the top hospitals. There in and out so quick as well. I even had one doctor say to me just because a place is known does not mean it is good. I have no idea but I hope you don't give up and if these people won't help you try to find someone who will. It is a long frustrating battle and in pain is even harder.
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