NeuroTalk Support Groups - RSD and Your "Emotional State"

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - RSD and Your "Emotional State" (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/93290-rsd-emotional.html)

Njsteve,
the best way to get help is go to your congressman or women. When i applied for ssd i got right away with there help.

Sue k

I sent an email to my congressman detailing my situation and asking for help. We shall see what happens.

Quote:

Originally Posted by mrsD (Post 536463)

Some people react to high folate amounts with emotional lability.

Deplin has a pretty high dose per tablet. 7.5mg.
Also high dose folate may severely mask low B12 levels.

I'd get a B12 serum level done...if it is below 500 I'd get B12 to go along with that folate. This is very important, because if you are low in B12 you can sustain neuro damage. Did your doctor test your B12 levels? Do you know what they were?

well, cannot take Deplin any longer - took it 12 days & i began having seizures..... interacts w/my seizure meds! so.... back 2 10mg Lexapro and was prescribed Ativan 4 "impending" seizures.....:)

Quote:

Originally Posted by sue k (Post 540190)

This is so hard for me to write. As i read all of your posts, its me. I've had rsd for 10 yrs now and I can't stand myself. I think about how I used to cook holiday dinners, make homemade cookies for my kids. I always said when I had grandkids I would do the same just like my grandmother. Now I'am luckey if I can make supper. I try to hide the crying and anger. Always a ''HAPPY FACE'' but its a lie. My husband is good to me, but he won't talk about the rsd and how I feel. I know its because he is so afraid of what may come next. I feel so bad for all of you. It makes me even sadder to know other people are facing this monster.

Sue K

so sorry 4 ur pain...... i know how u feel. have 3 grands! i'm now a no-cook Nana - can't lift, stand long, etc. i, too, have a wonderful hubby, but we do talk, even if i cry! this site is a life-saver. thks 2 all of u!! U hang in there! prayers 4 all......;)

Quote:

Originally Posted by loretta (Post 538268)

Hi Nancy and Welcome,
Besides seeing my psychiatrist once a month, the last 5 years, I'm taking a lot of vitamins anti-oxidants etc. I've seen a female Dr. that does bio=identical hormones and does all the tests. I'm 61 I have full body 13 years. I have spells of crying still, it's rough to loose your health. I use meditation, prayer, reading, music, keeping in touch with friends, scented candles, hand and feet waxing, epson salt baths, essential oils, massage therapy, swimming keeps me mobile and feels good. visualization, bio-feedback,
Basically any kind of distraction, my soft furry cat, I'm grateful for being where I am, my health seems to be getting better, not worse. I have a brilliant Dr. I going to try hyper baric oxygen chamber in his new clinic.
Before you settle with WC you might talk to others that have gotten lifetime medical care, and put in certain treatments that are not normally covered by insurance, but work really well for RSD patients. Take care, loretta

how do i find out about my state offering lifetime medical care? thks!:)

I am not sure about this type of thing Nancy but I would think if you ask your doctor they may be able to give you direction. I would think every state is different as well. I have never heard of lifetime care. Loretta do you have this for rsd? Wait is this the name of the coverage or do you mean life time. Sorry clueless? Just thought with rsd there could be a time where you would be able to work etc.

Hi Nancy,
I am in California and I believe with a WC case you can have life-time medical care once the case settles. You might consider calling a WC attorney for a phone consultation..
But it is best to secure a WC attorney to work with you and to protect you...
I wish my accident had never happened, but since it did, I wish I didn't have to deal with Worker's Comp...I have to beg for authorizations...
Thus far, they have been somewhat reasonable....but it is a battle...

Take care,
hope4thebest