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-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   Sleeping and meds? (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/94053-sleeping-meds.html)

gabbycakes 07-19-2009 06:07 PM

Hi Ant So Bad,

I had a similar situation with my adrenial glands, what I was told is that the narcotic medication I was taken affects you adrenial glands, especially if you are trying to cut down on medication or change medication. Hope this helped.

Gabbycakes


Quote:

Originally Posted by AintSoBad (Post 539333)
I have a "suspicion" about RSD.
I think it "turns on" our adrenal glands, inappropriately.

Sometimes, I lay down, (I only have a love seat to sleep on, but, it's OK, with the cpap) keeps me from tossin' around. anyway, soon as I lay down, my eyes just pop open!

It's as if I'm so "looking forward" to sleeping, that I get excited, and can't do it!

I think RSD plays tricks with many of our glands, and therefore we get as messed up as we do.
And, our poor doctors, really don't know what to do, except "treat the symptoms".

And, we're ALL Different!

But, over time, we all seem to get on a "cocktail" of some sort... for our "Array of Problems".

Just a few thoughts.

Pete


amb97 07-20-2009 08:47 AM

Quote:

Originally Posted by daniella (Post 538802)
I have like many of you a very big problem with sleep. I can go 2 without even a wink of sleep. Most nights I get at the most a few hours and it is very choppy. I have been out of bed since 3 am already. I can't take naps either. At night I take klonopin and serequel and then trazadone was added but nothing. My new psych said I could also try ativan but to start it without klonopin to see how I do. I am so frustrated and on edge. Anyone found a med that has helped them. Also my pain doc gave me zanaflex for at night but I have not tried it yet. Thanks

Please try Melatonin. It has helped me SOOOOO much. My body reacts strangely to most meds. While most people get drowsy on Neurontin, Cymbalta, Hydrocodone, Ultram, they all keep me awake. Melatonin has allowed me to sleep which makes life a lot better. It is the natural hormone that your body produces to induce sleep, so it is non-habit forming. You can buy it at any drugstore, but I prefer the pure form. I get 1 mg sublingual (dissolves under your tongue) tablets and use 4 to 6 tablets per night. I also take two Benadryl about an hour before bedtime, and the combination helps me fall asleep quickly and sleep well. I usually have to get up several times during the night to use the bathroom because I have Interstitial Cystitis (which my doctor said they are now considering RSD of the baldder), but if it were not for that, I would sleep great. I don't know if we are allowed to post links to business websites, but if you PM me, I will let you know where I get mine online. It's very inexpensive (about $7 for 120 tablets), and has made a huge differece for me. With all we deal with on a daily basis, we need our rest. I really hope this can help you. Good luck!!

daniella 07-20-2009 12:05 PM

Thanks. I am glad you found something to help. I have heard of others taking melatonin. I think I saw it at Whole Food in there supplement area. Maybe I will make a post on the vitamin/supp area about it. I am like that too with the other meds you stated. Like when I was put on klonopin they said watch out during the day but I did not feel drowsy. I did not think you were supposed to take Benedryl everynight. Just be careful. Thanks again.

Smoke_666 07-21-2009 09:24 AM

Soma
 
I am on soma along with other meds and have found it to be great for promoting sleep. I only ever take a half a pill at a time, but at night I take half and then wait maybe an hour and take another half. Depending on my pain level I might also take a half a perc as well. I sleep fairly well, as long as I don't have someone waking me up ninety times a night. Good luck to you all.

daniella 07-21-2009 10:39 AM

Thanks I will look that soma up. I was up allnight basically. I fell asleep in the very early evening after dinner but then talked to my friend in Ca for awhile cause she is 3 hours behind. it is bringing my mood down and also that I am in a pain flare up and homesick. This reminds me to make a melatonin post on the vitamin side. Thanks again

Dew58 07-23-2009 05:06 PM

I go days without sound sleep..this last time last 4 days. I am use to it. I have gone 7 days, and I was feeling as if I was going to faint at any moment. I was in a pain flare for those amt. of days.

My doc gave me Baclofen for spasms, and it also relaxes me. Not to the point of sleeping,though. I take 18 pills per day..I wish one helped me sleep..none do. I have taken Ambien, Abien CR, Melatonin, Cognitive Behavior Therapy...and none of them work for me. I go until I drop..do you?

If you find a a miracle pill/cure, please let me know,OK?

Thanks,
Dew:hug:

bobber 07-24-2009 10:35 PM

Hi Daniella
Our age has alot to do with our sleep pattern,,im 48 i sleep ok,,,my mom is 78 and only sleeps acouple of hours a nite,,i played sports with alot of older guys who were up at 4am ,,mom says she gets up at 3am,,i dont know how old you are ,but its something to factor in, also Klonopin is in the same familly as xanax,,thats what i use at times,,thats why your dr doesnt want you stacking them,,,the zanaflex is great ,,it made me really sleepy,,,its a muscle relaxant and by your dr;s advice can be stacked with an antidepreeant,,but check with him first,,thats what my dr had me on them,,ativan is a antidepressant to ,,so it makes sense not to stack atiavn with xanax,klonopin,, they are in the same familly,,you can only take one,,but they are stackable with a muscle relaxant,,but im no dr,,but thats what my dr.s are doing with me,,,good luck and i always try to stay away from late evening caffeine and daytime naps,,,,but it is frustrateing when you cant get a goodnites sleep,,,bobber,,,,P.S,,being on a ,exercise regime is a good way to sleep well at nite too,,,and Amber97 is correct too,,i like the use of the natural sleep aid Melatonin,it works really well with me,,,,,,,,

daniella 07-25-2009 07:12 AM

Dew I am sorry you relate and if I find something I will for sure let you and everyone know.
Bobber I have had this problem since my late teens. I am 31 almost now. This sleep issue was pre rsd and health. I had anxiety/depression/anorexia on and off for 14 years before this and that is a known to effect sleep. It runs in my family as well. My doc said I could take the zanaflex with any of the meds I am on but more as needed.
Thanks again. I just am lost at the moment in a pain flare up and lack of sleep plus my anxiety is more it seems. I just think the combination.

Smoke_666 07-25-2009 12:02 PM

Forgot something
 
Soma has aspirin in it, so if you have ulcers or a touchy stomach, might want to keep that in mind.

bruegger84 07-25-2009 11:13 PM

ive been on pretty much every sleep medicine out there, seroquel, ambien, lunesta, rozerem, melatonin, ativan, trazodone etc.

for me seroquel worked well, even at a measly 25mg. if i end up taking more i get some arrhthymias which pretty much suck.

melatonin was alright, trazodone gave me nightmares-when i took it without lexapro. now it's fine. i should get my doctor to prescribe zanaflex cause this nonrestorative sleep sucks. and there's always the tricyclics for sleep, i know this cause on the crazymeds forum everyone mention doxepin(sinequan) or amitryptline. these are good for sleep too.


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