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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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12-21-2006, 01:19 AM | #1 | ||
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My husband has had RSD in both feet/legs for 4 yrs now. We have tried everything and now we are going to try Ketamine infusions. Have any of you tried that? Any info would be greatly appreciated.
Thanks in advance...........Patty |
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12-21-2006, 07:34 PM | #2 | ||
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Hi there and welcome!
I've had three ketamine infusions. The first one gave me 30 days of total pain relief , the second one gave me 10 months lowered pain levels- with hardly no pain for the first few months then averaging at 2-4/10 for the rest of the time. The third one didn't work. The first one was at the end of 2004, the last one was this past August. Mine were 7 day "lowdose" infusions, where I was awake and not in a coma state like the way they do it in Germany etc. But I'm in Melbourne, Australia, and they do ketamine infusions differently here than they do in America, so hopefully someone else can give you info on the protocol over there. (Sorry, I'm assuming you're in America, correct me if I'm wrong! ) x Kate
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RSD in right arm for 13 years, right leg for 8 years, left arm since May 2013, with full body symptoms and CNS. |
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12-21-2006, 09:29 PM | #3 | ||
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I had the 5 day inpatient infusion- It didnt work for me but I do know many people who have had temporary relief from it,,,You can contact me with any questions you may have
Debbie |
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12-21-2006, 11:18 PM | #4 | ||
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Thanks for your replys. We will be taking to our doctor next month about these treatments and have many questions. I think this forum is great idea and after the holidays I will be back to post some more. Thanks again.
Patty |
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12-23-2006, 06:10 AM | #5 | |||
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Hey
I havent had Ketamine IV - I take it low dose oral every day and it has helped me better than any other med. Happy Christmas!! and good luck Rosie xxx
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It's always darkest just before dawn... but smile and the world smiles with you, cry and you cry alone |
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12-23-2006, 09:05 PM | #6 | |||
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I know you had a question about Ketamine...
Mine worked while I had it in my system, but a few days after the infusion stopped I went right back to normal. This was about 3 years ago though, so treatments might have advanced by now here in the US. Wish I could help more! Heather |
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