I just started noticing all the ear infections I have gotten over the last year or so and It seems like it takes alot longer to get over infections than it did 2 years ago orso.. Really weird!!

Hi SunshineGirl,
I believe a lot of us believe our autoimmune systems are compromised. Thus, infections, we get easily, and they last longer. I have started a compaign for building my immune system. I take a lot of anti-oxidant foods and vitamins. I get red dots and they get in the outer part of ear. face, What does your Dr. say? I just went to see my Dr. and had a good appointment. I've been able to cut back on my pain meds and anti-anxiety med, because of a new sleeping aid. My Dr. is just finishing a 200 person study.
He was thrilleed with my progress since starting this new sleep aid 5 weeks ago. Because I get restorative sleep, My sympathetic nervous system is calmer, don't need as many pain meds. I used to go out of the house maybe once or twice a month, Now I am getting out every week about 5 times.
Try and get good sleep, eat fruits and vegetables. Take vitamins. Ask your Dr. how you can build yourself up. Take care, loretta

Yes I will ask what to do to build myself up.with my doctor... Everything seems so strange to me and I don't even feel like the same person anymore.. What kind of sleep medicine are u taking? If u don't mind me asking.. I am just now changes to a younger gp and he is reviewing all my records and trying to decide where to send me to next besides just a pm doctor. My last gp doc was about 80 years old, so he definitely wasn't up to date with rsd.. thanks again Loretta.

Hi sunshinegirl,,Ditto on what loretta said,,i couldnt have said it better,,rsd does mess with the immune and i see a correlation between rsd and autoimmune,,,when i eat right and exercise and take vitamins,,i need less meds,,but the flareups do errupt,,something about evening time for me,,,thats when i get them the worst,,im still under a year with mine and its still spreading,,im hoping it tapers off ,,they say right about after the 1st year it will level out,,i know it continues to spread after the 1st year,,but maybe not so agressive,,except after a surgery without a continuous block,,,,but managing rsd with antioxins and healthy eating ,exercises and lifestyle is in my opion the way to go,,prayer will heal us,,my hope is in the Lord,,,,,,,,,,,,,,bobber

Hi SunshineGirl and everyone,
I don't mind. I was on Ambien Cr. It stopped working and I didn't go to sleep till 5-6 am for weeks=Lack of sleep was really doing a number on me. I knew my Dr. was doing a drug study on Seroquel. This is a drug for bi-polar and or schezophrenia spelled wrong.
But my Dr. was doing the study on a reduced amont for a sleep aid. 200 people were in the study. He is about to write the report. So I don't feel comfortable revealing much more. I have been on low dose seroquel for 5 weeks now. And I'm getting restorative sleep-so side effects. I've reduced vicodin from 6 pills a day to 3 per day. My anti-anxiety med-Lorazepam went from 6mg. a day to 2 mg. I feel like I just got my life back. I going to the grocery store, errands, Took my daughter and son in law to lunch Sunday. Cleaning the house. My energy level is coming back. I'm happy again. I saw my Dr. today and he was so happy for me. He left it totally up to me how to reduce pain meds. and the Lorazepam. I thanked him for trusting me. He said I know you well enough that you wouldn't be on the street selling the stuff. We had such a good visit. It's been 5 years now. When I get our business in better shape, I'm going to start the HBOT treatments. He just finished both clinics and they have a. HBOT in both of them. He said the results are amazing on his patients. I don't mean to be secretative, if you want detailed information on the drug use, I'll call him about giving his same to your DR. But he did tell me today, he's ready to write the report, and then it will be public.
He explained getting the restorative sleep, lessens the rsd pain, other conditions pain level go down like, ms, fibromyalgia, I think he said autism. But I am very grateful I agreed to trying it. I was really lossing it, emotional, crying a lot.
I'm glad you got a younger Dr. Let me know if I can help in any way. Take care, loretta

Been going through a rough spot lately, I think I got at most an hour and a half of uninterrupted sleep last evening, and I can sure tell it now. Considering telling my lady she needs to sleep in the other room or something, and I hate the very idea. Be curious as to any side effects of the seroquil.

I am on serequel 300mg and my psych was going to increase it to 400 but then there is a chance for blood sugar issues so it needs to be monitored. I don't sleep but it has helped with my anxiety which is still bad but nothing compared and I also think it is helped level my moods.
On the ear issue I had 2 ear infections through this and then also I still have on and off but at what time it was more severe extreme pain in my ear and pressure. Since an ear issue was ruled out I had an mri of my ear and brain again. Nothing. I do feel that with rsd we are more prone to things like this as since rsd I have eye issues,skin,etc and never had that before.