[bobber]

HEY Cindi
I like that w.va logo..im originally from martinsburg thats my home town as a young man,,,id like them to one day see their colleage basketball team win the championship,,they always get into the finals,,,,,,,,,God bless you,,,,bobber

[SandyRI]

Originally Posted by cindi1965

Hi, I am new to the board, but was diagnosed with RSD last year after having a severe staph infection. I am sooo glad I found this forum because it makes me feel like I ma not going crazy. I have been to so many doctors that just keep testing me for this and for that after my GP referred me for RSD. I have been treated so badly by doctors that I am very leery about going to anyone for tests. I also have mild cerebral palsy and I actually have had doctors tell me that I didn't look like I have CP. I have had it since birth and had surgeries to correct my walking. I have RSD in my left leg, which used to be my strong one and it is slowly but surely spreading to my right leg and right arm. I am on Lexapro, Xanax,Amitriptiline,Vicobrofen,and Baclofen. I can't take any of the seizure meds and Topamax made my eyes swell shut. So, they are trying to regulate the meds that I am already on. My pain doctor is hesitant at giving me the pain blocks because of my CP. Thanks for listening and I look forward to reading everyone's stories. My family also thanks you because this forum has helped me soo much

Hi

I was just diagnosed last year also, so I am new here too. The people here are the best, and I have learned so much. This forum has made a huge difference for me, too, without it I would be lost.

You are NOT going crazy. Try to find the best medical center you can, perhaps a teaching hospital in a large city near you. Acqua therapy for your leg might be really helpful, too - do you have a good PT?

Wishing you the very best, Sandy

[cindi1965]

Thank you all for your stories and kind words. I am having a huge amount of stress this week, so I come back and read all the posts on here to make me feel better. It is so good to find friends that understand.

[Breezy55]

Cindi: Like the rest I also what to welcome you to this loving and caring group here! My Rsd stated in my L toe then went up my L leg into my arms then spread to the other side of my body. Now I have full body RSD,for over 8 years now. Yes the DR's can be cruel and they do not understand our pain,well most of them. Have you hade an emg done on either one of your legs? I am just asking this ? because you talked about all of the testing that you have gone thru. I tried three blocks and they did not work for me. They just made things worse. However everyone is different. I wish the best for you! Breezy55

[cindi1965]

I did have an EMG early on in my diagnosis, but it didn't show anything. There are not too many drs. that have seen RSD like mine here where I live. My primary dr is the only one who has seen it in a full blown flare. I have found a great pain dr, but he doesn't take my insurance. I am hoping that he will still see me and work out a payment arrangement. He's the only dr that has made me feel like I'm not crazy.