Jennelle,
Hi dear,
Just wanted to send well wishes your way! I also wanted to let you know you are not alone!
I moved to New Mexico at the advice of my Doctor because the drop and change in barometric pressure DOES have an effect on pain. There is less barometric pressure change in New Mexico, than living along the front range in Colorado.
If you find your self in a difficult situation and need help please call. Remember my brother and sister in law are Doc's in Seattle and I will get them to help even if you only need advice. Please do not feel alone. Take my phone number with you! Post when you can!
Bests and Blessings,
Diana

Hi Jennelle,

I wish you the very best of luck with the program and really hope that it helps you and gives you the relief you need and deserve!!

I have been on a similar program so if you ever want to talk, I am here for you always! I had to go on the program twice and they detoxed me off all of my medications and I had Physical Therapy daily also and got to see a Psychologist for when I was feeling down. It was h*ll for me bit it did help a bit thankfully. I don't think it was quite as hard for me coming off my meds as they didn't give me any pain relief at all so I didn't notice that much of a difference though the withdrawal symptoms were awful!!

Please don't be afraid to tell your PTs and Doctors how you are feeling - it's important they know!! When I was on the program, I found that the leading PT knew a LOT about RSD but the senior PTs didn't at all and didn't know what to do to try and help. Don't let them tell you to push through the pain if it's too much for you - the senior PTs tried doing that with me and it just didn't work at all!!

I agree with what the others said about the weather changes making RSD pain worse - it isn't psychological at all!!!! I always say that my leg is like a themometre as it ALWAYS detects how the weather is going to be !!

Take care of yourself and know that you are in my thoughts and prayers always!

Please keep us posted when you can!

DianaA, since moving to New Mexico has it eased your pain?

Hi Jim! King is my family name....To answer you question...yes I have done much better by moving to New Mexico as opposed to living in Colorado. As you may know barametric pressure does have an impact on pain levels.
I also am currently treating with HBOT.
I still have pain but manage better. RSD requires daily management of meds, diet, exercise, stress, emotions and environment. Sometimes a real challenge!!! Bests...di

My wife has the RSD and likes Arizona. We are east coasters and have been in Washington our whole life and for generations. So it would be hard to move there with no family or friends but it is something to think about. My King roots are from New England and upstate New York and then Wales in the UK around the 1750s. Two King brothers made their way to New England in those early years. My understanding is one brother beat it back to Wales the other florished here.

I have been in a real bad flare for most of the month and have been out of touch for a while so I'm just catching up -

The rebel in me is truly horrified that ANYONE can just MAKE you go somewhere and do something you might not be ready for or want to do!! I seem to remember that you are a WC case, right? Last I heard we were living in the USA - not China, or N. Korea, or some other kind of Communist state! The worst of my RSD is in my Head! It sickens me to even imagine the equivalent of detox and intensive "PT" for Head RSD. The last time my PT massaged the occipital area of my head it was the beginning of a flare that lasted 3 weeks.

If this is NOT what you want, you need to a get an attorney, or a better attorney.

On the other hand, if it IS what you want, go for it, and I wish you the very best of luck. But, it sounds like you are being forced, and that stinks.

Take care, Sandy

Pressured? I agree with what many others have said, only you know how bad it hurts, and only you should be making these type of decisions. It's not they who will be in pain. I also have an appointment with a pain clinic next month, looking at going on methadone, and apparently family docs can't script it. I am scared, frankly, that I'm going to be called a liar once again, that it is all in my head, nothing wrong with me, etc. I am also terrified that I'll get the whole 'well, you'll have needles in your spine or you'll be cut off your meds until you do.' I will not take needles, period, too late in the game for it to do any good, and I'm incredibly phobic on top of that. I truly wish the best for you, maybe it will help you. As many have said, keep us updated. God bless, may fate find you pain free. Later, Smoke